When you have mild incontinence and wear diapers but can use the toilet question

[Lethdale]

Point made and taken.

I just finally Googled “pots” and, surprisingly for me, postural orthostatic tachycardia syndrome was the FIRST to come up.

 

[Diaperman95]

Wishing you well

Apparently I am septic again for the 4th time in 18 months. Felling better just hanging out on antibiotics

 

[Lethdale]

Apparently I am septic again for the 4th time in 18 months. Felling better just hanging out on antibiotics

Oh Lord, hope it clears up soon and it's not getting you down too much.

 

[L2Sci]

Apparently I am septic again for the 4th time in 18 months. Felling better just hanging out on antibiotics

Wish best for you and get better soon. Hopefully they are pushing that Vancomyocin to quickly, last time i was in hospital for kidney infection they blew out my veins and arm was hot and swollenfor 2 weeks

 

[CrossfireHurricane]

I

Apparently I am septic again for the 4th time in 18 months. Felling better just hanging out on antibiotics

I heard about a college girl who had been septic when she was younger. She actually lost both of her legs. She had it again a couple of times and now she has lost both of her arms. Now completely amputated. Tragic. Apparently it can be so serious for removal. Some people just don't know how dangerous it can be.

I hope you have good doctors and get better for you.

 

[Diaperman95]

I

I heard about a college girl who had been septic when she was younger. She actually lost both of her legs. She had it again a couple of times and now she has lost both of her arms. Now completely amputated. Tragic. Apparently it can be so serious for removal. Some people just don't know how dangerous it can be.

I hope you have good doctors and get better for you.

I can't say I like hearing stories like that. I have always been able to get them easy. I get a UTI and don't realize do to the interstitial cysitis. Then they get in my kidney and then blood. All in I have had more that 12 to 15 blood infections in my adult life. Considering about 25% of the time it can be fatal. I always catch them pretty early. It makes every joint in your body hurts. I mean back, hip, knees, shoulders even the little toes.

I know it can be really bad. Both it and meningitis. (Infection or the brain and spinal fluids. It can come from sepsis too. They loose their limbs in order to save their life. My worse one ended up settling in a infection around my heart. I did have a UTI when I came in but it was not real sever. At first the ER doc was going to send me home. They can till your body is fighting infection. But they have to let blood cultures grow to see if it is in the blood and then they can test what kills it. Had my BP not dropped out he was about to send me home. The ER doc. I have a pretty caring doc. I am in a small town hospital as long as it improves I am going to stay here but if it goes south they will transport me to Tulsa. Either way I have to go see a infectious disease specialist when I get out. I have a titanium hip, stainless ankle a port and a gastric stimulator. If one of those ends up getting infected it won't be good

 

[Diaperman95]

Wish best for you and get better soon. Hopefully they are pushing that Vancomyocin to quickly, last time i was in hospital for kidney infection they blew out my veins and arm was hot and swollenfor 2 weeks

I am feeling a lot better. Just sucks because I have to stay on IV antibiotics for a while 2 times a day. 2 nights abo my BP was in the toilet tonight it was 198/97. I kept telling her I had a headache and I felt my pressure was up

 

[HumanFly]

I

I heard about a college girl who had been septic when she was younger. She actually lost both of her legs. She had it again a couple of times and now she has lost both of her arms. Now completely amputated. Tragic. Apparently it can be so serious for removal. Some people just don't know how dangerous it can be.

I hope you have good doctors and get better for you.

This is who you may be thinking of: https://www.adisc.org/forum/threads/second-battle-with-sepsis.110278/

 

[L2Sci]

I am feeling a lot better. Just sucks because I have to stay on IV antibiotics for a while 2 times a day. 2 nights abo my BP was in the toilet tonight it was 198/97. I kept telling her I had a headache and I felt my pressure was up

Good to hear, at least they trusted you when you said what is happening. Some people don't t trust you know uour body best. Especially when you are spinal cord injured and have sensory issues.

 

[berrt]

This sounds very familiar, i just started a test with ORS and it seems to help A LOT. I am down from 6000ml to 3500ml average intake now, without worsening my POTS symptoms. You should give it a try.

I have been taking vitassium 1-2x a day and it seems to help quite a bit. I will sometimes drink an LMNT if I need rapid relief. Those are more expensive, so I do try to use them sparingly.

Yesterday, for example, was a REALLY good day. It wasn't until around 730-800pm that I noticed a slight headache and was the first time all day I was really thinking about fluid intake.

My last endocrinologist said that I shouldn't take them due to my serum sodium being in the "normal" range before taking it - it was still within a "good range" even while taking the additional sodium supplements. I stopped for about 8 weeks and got sick of the constant migraines, hot/cold flashes, etc and started back on it. I would say that I am averaging ~4 or so good days to my 1 bad day now that I have increased the sodium in my diet.

 

[Diaperman95]

Good to hear, at least they trusted you when you said what is happening. Some people don't t trust you know uour body best. Especially when you are spinal cord injured and have sensory issues.

I have some nerve issues but nothing like you and a few others here. Most of my stuff is autoimmune. Either way we all have are own battles. I really enjoy when people share. It makes the rest of us feel less messed up. Lol. I am glad you found us and have a place to vent and see others vent. I know it is more ABDL but we do have a lot of incontinent members and most of those all have other health problems. Most healthy folks have bladders and bowels that behave . But I love how even the ABDLs are always supportive. We do have a great group. That and this day and age everyone either has or know someone who has some serious health troubles. Keep your head up concentrate on the things you can still do.

 

[nikthewerelion]

I think a big part of the mental struggle with using your diaper voluntarily even if you only have mild incontinence is something that we all go through. I think a lot has to do with societies perception of needing Diapers, as being of the two extremes, you either need them or you don’t. but the struggle that we go through is really stupid in this respect because we all know damn well that there’s a spectrum with medical issues. So we’re still falling for the same old bullshit of society thinking it’s one or the other. I am blind by society standards, but I still see some things. It’s just a lot harder for me to do a lot of things, but it’s not as though I can’t see at all, try to explain that to people that don’t understand blindness, and it fucking blows their minds , because they have no concept of the in between that a lot of blind people live in. It can be the same thing for incontinence issues and we all know that yet we still have the struggle in our mind especially as it’s slow going. Also, especially when you consider the fact that a lot of us started out as a B or DL, not everybody here, but there is enough of us. I think the only thing that that really helps with , in general is our ability to cope with the transition of actually needing to use Diapers and accepting it is a lot easier. Since that’s how I started out, as a DL I always thought we Diapers was just an easier thing to do, it’s just taking a while for my medical issues to get to that point and even though I’m not needing to use Diapers completely for everything, I’m still in them 24/7 because it’s just easier than having to run to the bathroom 20 times a day. And Diapers make my life that much easier and get rid of the stress then that’s much better than the other way around, it’s already hard enough for me in general to do things in life I don’t need having to piss all the time or possibly having an accident to be getting the way of things . someday I will explain this whole situation to my mom and hopefully she will better understand it but the big problem is really that she knew I was into wearing diapers long before I actually needed them. So she really thinks it’s more of a psychological thing for me still, and that may be true to a point even now, but it’s definitely more related to the fact of the combined situations I’m dealing with. sometimes the only negative thing I really think about Diapers is the cost, we all bitch and complain about that. It’s just sad that if you need them, it is quite a fight to get them and even when you do, it’s some really shitty quality ones that don’t do anything for protection. matter what we’re forced to spend our own money on good quality Diapers no matter what your situation is with needing them or how you justify that. It’s just even harder when you’re on a fixed income like a lot of people with disabilities are.

 

[Bigbabybret]

Yeah the Vegus nerve in my body is all messed up. I am in the hospital now from Wed when my blood pressure bottomed and kidneys shutting down. Plus my gastroparesis

Very common for me as well, I havent been in the icu this year though, or even the er...Had some low BP a couple times but nothing really bad, and the midodrine does help with bringing up the BP as does some Epi as well.

I went through disautonomic testing at mayo and they saw a bunch of issues, but not any "fix" for it at this point, just mitigate the symptoms when they arise.

I've been going through this a lot since 2020, found with no detectable pulse, they did an IO for meds and a lot of stuff i dont know of per se, i was not awake, but was when they used the IO a couple days later after lost the Iv's from a BP drop again, that was painful to say the least.

I get the Hyper/Hypo BP +- 100pts in 5-10 mins and Tach quite a bit, Migrains, Light sucks, AKI, constipation and diar...all the fun plus i get body temp swings and sweatting/cold feeling randomly as well just for fun.

But you hang in there...Know there is others out here going through some the same things. It's really a hard thing to explain to people how much can go wrong in a min or two, I mean i might pass out at any time of the day randomly, so driving is not in the cards, and TBH the last time i was in the van i passed out just sitting there but the harness kept me in place till my PCA pulled over/helped out...Had a nice drewl spot on my shirt though I also have some muscle/skeletal issues as well from accident as well as the autonomic issue.

If you ever want to chat i'm open for a PM anytime