Diaperman95
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- Incontinent
I have interstitial cystitis pretty bad and as my bladder fills it will start spasms and become painful to the point I can no longer hold it. I use to be able to hold it 5 -10minutes or so and do the pee dance on the way to the toilet. But if it is really flared up then it makes me go as often as every 10 minutes and feels a lot like a bladder infection. I use to have a lot bigger floods to0 but just out of being tired of making 30 or 40 trips to the bathroom a day I started letting it go at first urge in my diaper. I mean I used diapers as a insurance when I first had issues before to the giving in the painful urges. When I started driving Truck is when I feel I really started truly loosing my bladder control to the point of no control. Now I get a urge and 15 to 30 seconds later it is draining and it does not mater if I am in bed standing walking or sitting my bladder says nope I do not want to stretch and it contracts. But unless I am a sleep I pretty well know when I am peeing because it hurts almost every damn time. Every once in a while it will settle down to were I can hold a small to medium flood but most of mine is more what I call a mini flood. Unless I am just not drinking fluids I always pee at least once a hour minimum. Many Doctors say IC will not make you incontinent but my question is who is going to run to the bathroom every 10 minutes? Then after a while of letting it go when it becomes painful it goes to it is just letting go and I have no choice. I have been like this since a teenager. I was diagnosed at age 19.
If you are having painful urges out side the normal, I held it it to long pain, then you really should follow up with a urologists, if you have never been. Mine is pretty weird because my bladder never empties either it always holds back some and I can tell when it is holding back a lot because I keep having spasms after I have peed. If I pass a catheter I can get rid of my residual pee and normally it will settle down a bit. But I have always had issue with having retention also. If I do not drain it out then I take the chance of getting infected. Now my bladder has shrank & I normally retain 50 to 75 cc and hold no more than 250cc tops. I use to hold over 600cc and retain over 200cc.
My bladder is just jacked up. I have a good urologist a see at least every 4 to 6 months. doctor has been my 28years now.
Incontinence and OAB is a symptom and they can do some test to tell you the problem causing the symptom. It might be something they can fix. If I was you I would try to retain as much control as you can. But it sounds like your bladder is shrinking and what is going to happen is the walls are going to grow thick and it is not going function correct and your issue is going to become worse. This highly increases your risk of bladder cancer too as well as developing cystitis. (not fun) My bladder walls are 3times as thick as a normal bladder. Every 5 years or so the doctor scopes me and looks it over really good.
If you are having painful urges out side the normal, I held it it to long pain, then you really should follow up with a urologists, if you have never been. Mine is pretty weird because my bladder never empties either it always holds back some and I can tell when it is holding back a lot because I keep having spasms after I have peed. If I pass a catheter I can get rid of my residual pee and normally it will settle down a bit. But I have always had issue with having retention also. If I do not drain it out then I take the chance of getting infected. Now my bladder has shrank & I normally retain 50 to 75 cc and hold no more than 250cc tops. I use to hold over 600cc and retain over 200cc.
My bladder is just jacked up. I have a good urologist a see at least every 4 to 6 months. doctor has been my 28years now.
Incontinence and OAB is a symptom and they can do some test to tell you the problem causing the symptom. It might be something they can fix. If I was you I would try to retain as much control as you can. But it sounds like your bladder is shrinking and what is going to happen is the walls are going to grow thick and it is not going function correct and your issue is going to become worse. This highly increases your risk of bladder cancer too as well as developing cystitis. (not fun) My bladder walls are 3times as thick as a normal bladder. Every 5 years or so the doctor scopes me and looks it over really good.