I honestly don't know what I want, regarding my IC issues at the moment. I don't see my urologist now until March, so I don't know whether they'll tell me I need urethral reconstruction or not, and whether that will improve my continence, or cause more IC.
My immediate family (sisters & a niece) know of my IC issues, and are cool with knowing I wear nappies, but haven't actually seen them yet. The niece is actually exhibiting signs of being a bit AB herself, but anyway. Extended family may know, but haven't said anything. Elder sister introduced me to a friend of hers the other day as "meet my baby sister ... " (I don't know whether elder sis knows my AB tendencies...)
I've seen benefits of going 24/7 - much better sleep quality, no binge/purges, being emotionally closer with my immediate family, we talk more often, I can open up to my sisters more about my feelings, rather than bottle them up. I'm also far more aware of what I've been drinking (water, coffee, alcohol). I'm quite ok with and have fun wearing my nappies at home, going out shopping and visiting friends family, social activities etc. I'm having fun exploring my AB side too, with pacifiers and bottles - have had some _wonderfully relaxing_ sleeps lately because of these.
But at the same time, I've have had at least one UTI, have had a bit of nappy rash, am seeing gradual loss of what continence I do have, including increasing fecal IC. I went through periods late last year and over the Christmas break where I was having large floods into nappies. Now I'm seeing more frequent and lower volume releases, with no clamping sensations, and increasing frequency of gravity-assisted wees. Some of my night nappies have been thoroughly soaked, with no recollection of waking up to releases of large volume wees.
I'm worried about the effects my IC will have on my work and career, which would have flow on effects regarding repaying the house mortgage, loans etc.
I'm yet to wear nappies to work (I wear pullups), because of the intricacies of changing at work. Though we have disabled/accessible toilets, there's nowhere to dispose of used nappies. I'd have to hide the used nappy in my bag until I can dispose of it in a street bin, or carry it into the train station or even home. Or make a case to HR to get covered bins, black garbage bags, or larger-opening sanitary pad bins in the accessible toilets. My pullups are occasionally wet, but never saturated, as I can get to the toilet every hour or so.
So yeah, I don't know what I want to have happen. I'm of a mindset and conviction that I'd accept wearing nappies 24/7 as part of my IC, but for the moment, I can remain sitting on the proverbial fence, and see what happens over time.