iam32bit
Est. Contributor
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- Incontinent
mickdl said:Hey Iam32bit,
i‘am an DL but you can be shure that the beginning of my UIC was verry irritating for me too... In faxt it was a bit shocking, because I had also blood in my urin and ended up in a hospital. I can tell you that I started hating pads and diapers in the first year and started fighting hard to get my continence back. I had in a couple of way‘s a bit luck, because the medication and therapies helped me to get at last parts of my control back. After 3 month of fighting with the insurance I made it, that they took over most of the costs I was able to make a deal with the supplier, so I have to pay only round about 20€ extra in a month - but I live in Germany so it‘s not that easy to compare the situation with the US.
How ever, the pain is often still there and since I‘m diagnosted with IC/PBS there are not that much chances that thing getting better over the time. This is something I‘m still have to cope with. At work I wear only pads, and I’m luckily that they are good enaugh to hold an accident that still happens from time to time. If I’m on the way I need diapers, and I mostly did‘t make it to get dry home. At the beginning of my problem I needed to changed the pads round about 5 times a day. I had to talk with my employer about this, because they did‘t had bins in the stalls and for me it was important that he had a understanding of my situation. Luckily he reacted very professional and helped me to cope with this situation.
So I not sure what to do in your situation, I heared that UIC is a pretty common side effect of MS - but probably a minor problem compared to the rest. So I crossing thumps for you that it is a bladder problem only. If it is not MS I would consult a specialist. In my case nether in the hospital nor the urological ambulance was able to diagnose my problem correctly. This year I leared while visiting a specialist, that this seems to be a really rare illness for man (f.m. 9:1)... and more over you need some some kind of a high resultion camera and a lot of experiace to see this if it is in an early stage. This was probably the reason why it tooks so long to find it out. I’m now also on a new medication, I can not say for the moment if it realy help because it takes round about 6 month before it will show some effects. But at last it doesn’t have the side effect from tolderodin...
I have most of the common symptoms of MS, my bladder is honestly the least of my worries. Walking into walls and having my brain feel like it is shutting down is not fun at all. It is very likely I have MS, we just need to find some more evidence beyond symptoms.
When I last pursued treatment for my bladder they also found blood in my urine. They checked everything and couldn't find a cause.