emp711 said:
Tot… I have exactly the same feeling about using catheters… I only use them like you when I am in an inpatient hospital setting. The only person I really had to battle is my mom initially because she was so proud to toilet trained me as a kid.… However I would always get punished as I continued to have accidents throughout my teen years. At college I finally met the a urologist and he actually showed me on the video scope that my bladder muscles were actually spasming like any other muscle in my body could. Once I had a medical justification mom actually apologized one time when she was visiting. However for some reason it still awkward for her.
As a guy I still wear condom catheters to reduce the number of changes depending on caregiver availability. Recently, I have even grown to hate doing that.. I have had my own place for over 20 years always hundreds of miles away from either parent and after countless experiments, a premium diaper is still the best option for me and it seems like you have reached the same conclusion in your life.… Love your attitude… We need to talk more
To correct a reply fragment from this morning that I was trying to do from my iPad in bed… I called the CSR's at North Shore right after Gary and XP informed all of us that he was discontinuing the A+ product. I expressed my disappointment with his decision. His recommendation was the Abena classic level 4, which by itself has never been able to last all day for me. North Shore and I have had this discussion several times since and they have assured that I am in their best option (mega max), which has caused some of the worst breakdown I have had. Tried the dry 24/7 before that with the same result.
For the past week or so I have been wearing the Abena with a North Shore extra-large booster while I am in the chair and then mega max when I am lying down. Would like to settle on a single product for everything for cost reasons. I have learned over the years that an insurance company or Medicaid/Medicare will never cover anything with capacity near what I need, even with specific orders from the MD.
Consequently I am frustrated and searching for options
It's awkward for
her, because it never occurred to
her, to
read the literature that would've told her maybe yelling at you, when the bladder is a
muscle and you have
cerebral boinking palsy which
causes trouble controlling your, oh, here's a thought,
muscles, was a
stupid, bad boinking idea! I'm sorry you were yelled at and punished. I know what that's like. I can't even give you enough appologies for that! Can she imagine how much more awkward it was for
you, being punished for something you couldn't help!? I do get it. Isn't it ironic?
I am what I am, but, "I'm going to put you in diapers," or, "They'll put you somewhere, and you'll be sitting in a corner, drooling and in diapers," is still a very effective threat.
When I was younger, I was punished for accidents, and had eyes rolled at me when parents and guardians weren't expecting to have to help me toilet. Well, excuse me! I didn't mean to need to pee in the middle of an appointment! They had no clue how much I just barely drank all day, or that what looked like good bowel control, was actually fear of pooping, and probably really bad constipation. My gut is cantankerous as hell, now. Sometimes, I wonder if I'm completing my BMs. Was it worth it!? Stupid people! I very seldom poop myself, and I'm dry a lot of the time. That's what matters, right?
It's as if that piece of normal is all that matters to parents/guardians.
More pediatricians need to tell parents to be compassionate about potty learning, especially with us! Try as they might, parents can't make us Normies. Heads up. Normal kids can get voiding disorders, too, so, don't be an ass about potty learning!
Hear how wrong this sounds.
"He fell, learning to ride a bike? Yell. Take stuff away. Beat his ass. . . Something, or he'll never learn!"
Abusive, huh? Well, same deal about the dang toilet!
Are you lucky enough to have an air cushion? With skin breakdown, a lot of the time, the problem is pressure. I agree. Let's try to keep those leak guards away from your skin, if that's what's actually causing the problem. As far as something that just doesn't have to have leak guards if you don't want them, the only thing that comes to mind is cloth.
Usually, I'm ambulatory enough to go, "bedside toilet," in the hospital, unless I'm unconscious, not subconscious, unconscious!
Going without knowing it, naw, just go ahead and plan my funeral, so, only if I'm unconscious, catheters.
If I were you, I'd ditch the catheters, and go diapers, even there, unless I was having a long enough surgery to actually require a catheter, but be prepared for staff to give you flack. They're starting to brainwash med and nursing students against them. They wanted to give my sister incopads, flat, cloth, über underpads, saying diapers cause skin breakdown. Well, except with incopads, she'd naked from the waist down, and forever bedridden! Nah, that's not worse than diapers!
ABU Simple Ultra would be great, if you can get those darn leak guards off!
