Wetting and not remembering

[SeniorMan]

It's neurogenic bladder. My urologist already told me. I’ve tried medication and self cauterization. They didn’t work. My stepfather doesn’t believe CP causes bed wetting. My half sister deals with this too, even though she’s only 13. She has CP like I do. She wears Depend Night Defense diapers for her bed wetting. My biological father understands. My urologist also made me hold it for two hours and I wet my pants like a baby without protection. I was extremely embarrassed. I cannot predict when I’ll have an accident,

There is treatment described below in addition to the two you tried. Your stepfather is wrong. There are other causes also. Neurogenic bladder can also be present at birth. More information follows.

Neurogenic Bladder​

Neurogenic bladder refers to what happens when the relationship between the nervous system and bladder function is disrupted by injury or disease. It cannot be cured but can be managed. Treatment options include medications, use of catheters and lifestyle changes.

• Appointments & Access
• Contact Us

• Symptoms and Causes
• Diagnosis and Tests
• Management and Treatment

Overview​

What is neurogenic bladder?​

Your bladder is a hollow organ located in your pelvis or lower abdomen. One of the main jobs of your bladder is to store urine (pee). The other is to remove urine from your body in response to signals from your spinal cord and brain.
Neurogenic bladder is the term for what happens when neurological (nervous system) conditions affect the way your bladder works. There are two major types of bladder control problems linked to neurogenic bladder. Depending on the nerves involved and the nature of the damage, your bladder becomes either overactive (spastic or hyper-reflexive) or underactive (flaccid or hypotonic).

How common is neurogenic bladder?​

Neurogenic bladder dysfunction is very common among people with spinal cord injuries, affecting more than 90% of them. About 95% of people with spina bifida have neurogenic bladder dysfunction. The condition also affects 50% to 80% of people who have multiple sclerosis. Neurogenic bladder affects people with stroke and Parkinson’s disease and many other types of nervous system conditions. Conditions that damage nerves like advanced diabetes can also cause neurogenic bladder.

Symptoms and Causes​

What causes neurogenic bladder?​

Neurogenic bladder can be congenital (present at birth). Birth defects that can cause neurogenic bladder include:

• Spina bifida (myelomeningocele): This disorder occurs when the spine doesn’t completely develop during the first month of pregnancy. Babies born with myelomeningocele often have paralysis or weakness that affects how their bladder works.
• Sacral agenesis: This is a condition in which parts of the lower spine are missing.
• Cerebral palsy: Cerebral palsy refers to a group of chronic (long-term) disorders that weaken a person's ability to control body movement and posture. These disorders result from injury to the motor areas of their brain. The problem causing cerebral palsy may occur while during development or after birth. Cerebral palsy isn’t always found during a child's first year of life.

Medical conditions that involve the nervous system can cause neurogenic bladder. Common causes include:

• Stroke.
• Parkinson's disease.
• Multiple sclerosis.
• Central nervous system tumors.

Other conditions include:

• Spinal cord injuries and spine surgeries.
• Erectile dysfunction.
• Trauma/accidents.

What are the symptoms of neurogenic bladder?​

The most common symptom of neurogenic bladder is being unable to control urination. Other neurogenic bladder symptoms include:

• A weak or dribbling urinary stream.
• Frequent urination (urinating eight or more times daily).
• Urgency (a feeling or need to urinate immediately).
• Painful urination, which may mean there is a urinary tract infection.
• Urinary leakage.

Diagnosis and Tests​

How is neurogenic bladder diagnosed?​

If your healthcare provider suspects neurogenic bladder, they’ll do an exam and probably order several tests of the nervous system and the bladder. Tests may include:

• Urodynamic studies: These bladder function tests measure how much urine your bladder can hold, the pressure within your bladder, how well urine flows, and how well your bladder empties when it is full. Special sensors may be placed on your skin near your urethra (the tube through which urine passes) or rectum to see if the muscles and nerves in those parts of your body are working properly.
• Cystoscopy: Your provider may perform this procedure to examine the inside of your bladder and urethra with the use of a small telescope (cystoscope).
• Ultrasound tests.
• X-rays.
• Computed tomography (CT) scans.
• Magnetic resonance imaging (MRI) scans.

Management and Treatment​

Can neurogenic bladder be cured?​

There is no cure for neurogenic bladder. However, symptoms of neurogenic bladder can be managed.

How is neurogenic bladder treated?​

Your healthcare provider will work with you to decide on a treatment plan that is appropriate for what is causing neurogenic bladder. Some neurogenic bladder treatment options include:

• Lifestyle changes: These might include avoiding certain foods or drinks that can irritate your bladder. These include alcohol, certain caffeinated drinks like coffee and soda. Good blood glucose management for people with diabetes and constipation management can also help.
• Clean intermittent catheterization (CIC): Catheters are thin, flexible tubes that can be inserted through your urethra and into your bladder to drain urine. You can learn how to do this yourself so that you can empty your bladder on your schedule.
• Continuous catheterization: This method calls for a catheter to be worn at all times. The catheter is a small tube that can be placed through your urethra or through the lower abdominal wall (suprapubic tube).
• Drugs: Medications that treat neurogenic bladder include oxybutynin, tolterodine, mirabegron, solifenacin succinate and others.
• Injections of botulinum A toxin (Botox®): Your healthcare provider injects botulinum A toxin into your bladder or urinary sphincters.
• Bladder augmentation (augmentation cystoplasty): In this surgery, a surgeon removes segments of your intestine (sigmoid colon) and attaches them to the walls of your bladder. This reduces the bladder's internal pressure and increases its ability to store urine.
• Ileal conduit: Part of the small bowel is used to make a urine stoma. This stoma drains to a bag attached to the outside of the body.

Absorbent undergarments, pads, panty shields, panty liners and adult diapers can help prevent wetness and odors while protecting skin and clothing. Bed pads can protect sheets and mattresses.

What complications are related to neurogenic bladder?​

People who have neurogenic bladder are at higher risk for other urological problems, including repeated infections, kidney damage, vesicoureteral reflux and stones that form in the urinary tract.
People with bladder control conditions such as neurogenic bladder may experience quality of life issues. It’s important to recognize these issues and get help with them.

How can I prevent neurogenic bladder?​

Most cases of neurogenic bladder can’t be prevented.

When should I contact my healthcare provider about neurogenic bladder?​

If you have any type of nervous system disorder, chances are that your healthcare provider will already know to address the issue of neurogenic bladder. Still, it’s important to be honest with your provider about the issues you face. Make sure you speak to your provider if you have new or worsening concerns, including things that might indicate infection like pain or fever.
A note from Cleveland Clinic
Neurogenic bladder can be managed, even though it can’t be treated. Methods for dealing with neurogenic bladder dysfunction are being refined. You can help by following the suggestions that you get from your healthcare provider about lifestyle changes and nutritional choices. Maintaining a healthy weight can help with urinary incontinence.

See my.clevelandclinic.org/health/diseases/15133-neurogenic-bladder

 

[Danielgartin691993]

There is treatment described below in addition to the two you tried. Your stepfather is wrong. There are other causes also. Neurogenic bladder can also be present at birth. More information follows.

Neurogenic Bladder​

Neurogenic bladder refers to what happens when the relationship between the nervous system and bladder function is disrupted by injury or disease. It cannot be cured but can be managed. Treatment options include medications, use of catheters and lifestyle changes.

• Appointments & Access
• Contact Us

• Symptoms and Causes
• Diagnosis and Tests
• Management and Treatment

Overview​

What is neurogenic bladder?​

Your bladder is a hollow organ located in your pelvis or lower abdomen. One of the main jobs of your bladder is to store urine (pee). The other is to remove urine from your body in response to signals from your spinal cord and brain.
Neurogenic bladder is the term for what happens when neurological (nervous system) conditions affect the way your bladder works. There are two major types of bladder control problems linked to neurogenic bladder. Depending on the nerves involved and the nature of the damage, your bladder becomes either overactive (spastic or hyper-reflexive) or underactive (flaccid or hypotonic).

How common is neurogenic bladder?​

Neurogenic bladder dysfunction is very common among people with spinal cord injuries, affecting more than 90% of them. About 95% of people with spina bifida have neurogenic bladder dysfunction. The condition also affects 50% to 80% of people who have multiple sclerosis. Neurogenic bladder affects people with stroke and Parkinson’s disease and many other types of nervous system conditions. Conditions that damage nerves like advanced diabetes can also cause neurogenic bladder.

Symptoms and Causes​

What causes neurogenic bladder?​

Neurogenic bladder can be congenital (present at birth). Birth defects that can cause neurogenic bladder include:

• Spina bifida (myelomeningocele): This disorder occurs when the spine doesn’t completely develop during the first month of pregnancy. Babies born with myelomeningocele often have paralysis or weakness that affects how their bladder works.
• Sacral agenesis: This is a condition in which parts of the lower spine are missing.
• Cerebral palsy: Cerebral palsy refers to a group of chronic (long-term) disorders that weaken a person's ability to control body movement and posture. These disorders result from injury to the motor areas of their brain. The problem causing cerebral palsy may occur while during development or after birth. Cerebral palsy isn’t always found during a child's first year of life.

Medical conditions that involve the nervous system can cause neurogenic bladder. Common causes include:

• Stroke.
• Parkinson's disease.
• Multiple sclerosis.
• Central nervous system tumors.

Other conditions include:

• Spinal cord injuries and spine surgeries.
• Erectile dysfunction.
• Trauma/accidents.

What are the symptoms of neurogenic bladder?​

The most common symptom of neurogenic bladder is being unable to control urination. Other neurogenic bladder symptoms include:

• A weak or dribbling urinary stream.
• Frequent urination (urinating eight or more times daily).
• Urgency (a feeling or need to urinate immediately).
• Painful urination, which may mean there is a urinary tract infection.
• Urinary leakage.

Diagnosis and Tests​

How is neurogenic bladder diagnosed?​

If your healthcare provider suspects neurogenic bladder, they’ll do an exam and probably order several tests of the nervous system and the bladder. Tests may include:

• Urodynamic studies: These bladder function tests measure how much urine your bladder can hold, the pressure within your bladder, how well urine flows, and how well your bladder empties when it is full. Special sensors may be placed on your skin near your urethra (the tube through which urine passes) or rectum to see if the muscles and nerves in those parts of your body are working properly.
• Cystoscopy: Your provider may perform this procedure to examine the inside of your bladder and urethra with the use of a small telescope (cystoscope).
• Ultrasound tests.
• X-rays.
• Computed tomography (CT) scans.
• Magnetic resonance imaging (MRI) scans.

Management and Treatment​

Can neurogenic bladder be cured?​

There is no cure for neurogenic bladder. However, symptoms of neurogenic bladder can be managed.

How is neurogenic bladder treated?​

Your healthcare provider will work with you to decide on a treatment plan that is appropriate for what is causing neurogenic bladder. Some neurogenic bladder treatment options include:

• Lifestyle changes: These might include avoiding certain foods or drinks that can irritate your bladder. These include alcohol, certain caffeinated drinks like coffee and soda. Good blood glucose management for people with diabetes and constipation management can also help.
• Clean intermittent catheterization (CIC): Catheters are thin, flexible tubes that can be inserted through your urethra and into your bladder to drain urine. You can learn how to do this yourself so that you can empty your bladder on your schedule.
• Continuous catheterization: This method calls for a catheter to be worn at all times. The catheter is a small tube that can be placed through your urethra or through the lower abdominal wall (suprapubic tube).
• Drugs: Medications that treat neurogenic bladder include oxybutynin, tolterodine, mirabegron, solifenacin succinate and others.
• Injections of botulinum A toxin (Botox®): Your healthcare provider injects botulinum A toxin into your bladder or urinary sphincters.
• Bladder augmentation (augmentation cystoplasty): In this surgery, a surgeon removes segments of your intestine (sigmoid colon) and attaches them to the walls of your bladder. This reduces the bladder's internal pressure and increases its ability to store urine.
• Ileal conduit: Part of the small bowel is used to make a urine stoma. This stoma drains to a bag attached to the outside of the body.

Absorbent undergarments, pads, panty shields, panty liners and adult diapers can help prevent wetness and odors while protecting skin and clothing. Bed pads can protect sheets and mattresses.

What complications are related to neurogenic bladder?​

People who have neurogenic bladder are at higher risk for other urological problems, including repeated infections, kidney damage, vesicoureteral reflux and stones that form in the urinary tract.
People with bladder control conditions such as neurogenic bladder may experience quality of life issues. It’s important to recognize these issues and get help with them.

How can I prevent neurogenic bladder?​

Most cases of neurogenic bladder can’t be prevented.

When should I contact my healthcare provider about neurogenic bladder?​

If you have any type of nervous system disorder, chances are that your healthcare provider will already know to address the issue of neurogenic bladder. Still, it’s important to be honest with your provider about the issues you face. Make sure you speak to your provider if you have new or worsening concerns, including things that might indicate infection like pain or fever.
A note from Cleveland Clinic
Neurogenic bladder can be managed, even though it can’t be treated. Methods for dealing with neurogenic bladder dysfunction are being refined. You can help by following the suggestions that you get from your healthcare provider about lifestyle changes and nutritional choices. Maintaining a healthy weight can help with urinary incontinence.

See my.clevelandclinic.org/health/diseases/15133-neurogenic-bladder

I don’t like surgery,and Botox hurts, I’ve had that done for my spasticity and it didn’t work

 

[Rita]

Its just normal for this gal !

 

[hbic60]

Yep, and it’s happening more frequently as my urge incontinence worsens. I’m wetting progressively smaller amounts more frequently. Similar to others here, I have mixed incontinence and my symptoms are all over the place. Usually I can tell when I’m peeing, but sometimes I don’t pay attentions and I’m surprised to see that I’m wet.

It mostly happens when I’m standing and working on a project and in the zone. I may or may not have a fuzzy recollection that I wet at some point in the not too distant past, but I couldn’t tell you what I was doing or where I was at at the time. It’s a weird sensation.

For me nearly the same. For sure I can feel and usually I remark the urge coming and have a short time window to decide if I try to reach a toilet or release in my diaper (which happens more and more often). Of course, if I'm busy working on something or deep in a project it happens sometimes more automatically without really remarking it.
Also in the morning I sometimes can remember only one or two small night wettings but remark, that my night diaper is anyway quite well saturated, so there must happen something without my knowledge...

 

[diaperdude]

For me nearly the same. For sure I can feel and usually I remark the urge coming and have a short time window to decide if I try to reach a toilet or release in my diaper (which happens more and more often). Of course, if I'm busy working on something or deep in a project it happens sometimes more automatically without really remarking it.
Also in the morning I sometimes can remember only one or two small night wettings but remark, that my night diaper is anyway quite well saturated, so there must happen something without my knowledge...

Same

 

[Danielgartin691993]

Its just normal for this gal !

Which diapers do you wear young lady?

 

[CheshireCat]

my stepfather doesn’t believe CP causes bed wetting

Isn't he special! Inform him that his lack of medical knowledge will be met by your lack of empathy when he has a medical crisis!

Actually don't. I'm just sorry that you have to put up with ignorance as bad as his. Why doesn't your mother step in and correct him?

 

[Danielgartin691993]

Isn't he special! Inform him that his lack of medical knowledge will be met by your lack of empathy when he has a medical crisis!

Actually don't. I'm just sorry that you have to put up with ignorance as bad as his. Why doesn't your mother step in and correct him?

She believes me which is why my mattress is protected, but my skin isn’t

 

[lilshelly]

It happens as your body adapts to being diapered and you get use to using your diaper.

The only thing is I hear all the time that you can't become incontinent?

 

[lilshelly]

She believes me which is why my mattress is protected, but my skin isn’t

Yeah cp can be an issue I don't care what the Dr's say what anyone thinks I am someone who is aging with cp. This is something I feel the aches and pains of every day I know there are something

 

[Edgewater]

The only thing is I hear all the time that you can't become incontinent?

I would not recommend that anyone that is not IC, work at becoming IC! As relearning toilet training is far more difficult the next time around. Also, being IC means that there is no days-off, weekends or weekdays off, or Holidays or vacations as everything revolves around being IC. If you are not IC, please do not work at become IC!!

 

[lilshelly]

Yeah I agree it is not fun. No convenient time to change. The occasional leak which can be most embarrassing. Especially in a dress which I don't get to wear much anymore. Not to mention the costs so by no means is it something I would encourage.

 

[Danielgartin691993]

She believes me which is why my mattress is protected, but my skin isn’t

I’m surprised he doesn’t wet the bed because of his diabetes

 

[Danielgartin691993]

Yeah cp can be an issue I don't care what the Dr's say what anyone thinks I am someone who is aging with cp. This is something I feel the aches and pains of every day I know there are something

My half sister Rebecca has CP and she wets the bed and she wears Depend Night Defense diapers, she’s actually really beautiful, she’s 13 and a blonde

 

[nwm]

I am functionally incontinent I still can go to the bathroom when I am at home. I have issues when I go out or don't have quick access to the bathroom.
I know when I have to go and I can feel myself go but there are times when I can't remember going until I check myself. Is this common even if you are aware that you wet?

i have just never felt anything until after I already wet my diaper - but yes I usually will notice I am wet right away, but easy to forget about if I don't get changed pretty quickly. (This actually happens a lot).

 

[sport1]

I am functionally incontinent I still can go to the bathroom when I am at home. I have issues when I go out or don't have quick access to the bathroom.
I know when I have to go and I can feel myself go but there are times when I can't remember going until I check myself. Is this common even if you are aware that you wet?

I am functionally incontinent I still can go to the bathroom when I am at home. I have issues when I go out or don't have quick access to the bathroom.
I know when I have to go and I can feel myself go but there are times when I can't remember going until I check myself. Is this common even if you are aware that you wet?

I sometimes look at the wetness indicator.

 

[tiron101]

I am functionally incontinent I still can go to the bathroom when I am at home. I have issues when I go out or don't have quick access to the bathroom.
I know when I have to go and I can feel myself go but there are times when I can't remember going until I check myself. Is this common even if you are aware that you wet

After a while doing anything repeatedly that isn't significant your brain can actually stop storing memories of doing it even though you may be aware of it at the time. There are different factors that may contribute to that such as what you're paying attention to and how much attention you divert to, for example, having an accident. Over time of wearing regularly I've realized I remember very few of the actual accidents, and barely notice being wet unless it's very wet.

My accidents vary quite a bit. Sometimes I get 2-3 warnings with minor urge incontinence/slight wetness, then the final one is a complete bladder release. Others it seems my bladder just opens up and I have an accident and feel the wetness. Today I had an odd one where I had an accident and then afterwards I got a weird cramping feeling around the bladder area making my abdominal muscles tense up, after wetting. I remembered that. But I don't remember wetting every time today.

 

[Andrewgdfw]

Ha! I recall a time when it was 'Remembering and Not Wetting' !!

 

[Angelapinks]

I am functionally incontinent I still can go to the bathroom when I am at home. I have issues when I go out or don't have quick access to the bathroom.
I know when I have to go and I can feel myself go but there are times when I can't remember going until I check myself. Is this common even if you are aware that you wet?

It happens to me every night. I wake up with a soaking wet diaper and even the flannel pants I wear over top and I don't ever remember going or having the urge to go. I am a very heavy sleeper. I am just glad I wear rubber pants over top of everything so no wet bed.

 

[nikthewerelion]

at this point, it’s been six or seven years since I’ve been back in Diapers 24/7., I’m only now coming to realize that I would consider myself functionally incontinent. I have to pee 15 to 20 times a day, three or four at night. I have leaks sometimes. And I am so used to using my diaper that I often times wet and even though I’m aware that I’m doing it, a few hours later, I’m often times wondering if I had already wet myself and need to check the diaper to see if it’s wet and then I don’t remember doing it. I think it becomes second nature once you’re so used to using diapers . Like other people have said.