VA

WoodenBelly

Est. Contributor
Messages
54
Role
Incontinent
Fellow vets,

So how does the VA handle incontinence? I had a urine culture come back clean, they lab tested my prostate and checked labs for STDS, all good in the hood. As said in other posts they threw me Trospium and said to see me in October.

I just want answers at this point, I thought I was going to have other tests run and all this and that like one doc said they would , but over the phone they said Urge IC and a severe OAB. I feel confused and sick a lot and going on 20 lbs lost in a month although I haven’t done shit. I want to get well, I know y’all aren’t docs. I just don’t know the process or what’s going on, 3 messages and no response in a week. Only 33 so.. this sucks ass.

Curious about your experiences.

Cheers
 

DOT

Est. Contributor
Messages
72
Role
Diaper Lover, Little
What are your symptoms? Do you leak a little or have random releases? Can you provide us with more information on your incontinence?
 

WoodenBelly

Est. Contributor
Messages
54
Role
Incontinent
Dribbles and streams after most urinations, well all.
Best way to say it is urge, I feel I have to go all the time. Even after I let out a full bladder, in 15 mns it’s full again.

Now I experience more streams, been wearing depends 24/7 for 3-4 weeks now because I’ve had a few night accidents. It’s like I’m awake but can’t move when I wake up and I just go for a minute, then I’m able to move to the bathroom. Same in day time every once in awhile, it’s like a silent killer and goes straight through me, then I can move.
 

mickdl

Est. Contributor
Messages
206
Role
Diaper Lover, Incontinent
Hey WoodenBelly,

I understand that all of this sucks. How ever, I think that a diagnosis may take a while. The point is, that most of the doctors are only good in finding more or less obvious physical problems - and even there they perform sometimes pretty poor (for me it tooks 3 years until they found the real reason for my problem...). The good news is, that - if it is urge UIC - it can be treated pretty well with blader training, a change of diet and sometimes also with kegel. So if the doc‘s have no better ideas I would ask for a specialized PT. Medication may also help - especially in a first phase. How ever depending on the drug it may take a couple of weeks until a effects sets in.

For me it worked even with PBS pretty well, and I was able to reduce the episodes from may 10 to 20 at the beginning down to one or two - sometimes even non over the daytime. So if you wont to cure it, my suggestion is hang in there. Maybe also this forum is not the best place in this case. A good idea is to check for locale support groups.
 

mickdl

Est. Contributor
Messages
206
Role
Diaper Lover, Incontinent
P.S. With the night time accidents this seems to be a problem. I also didn’t found a solution here ether and still need diapers. Mostly I wake up from the urge, but if I sit up or stand up I loose control in most of the cases.
 

WoodenBelly

Est. Contributor
Messages
54
Role
Incontinent
Hey WoodenBelly,

I understand that all of this sucks. How ever, I think that a diagnosis may take a while. The point is, that most of the doctors are only good in finding more or less obvious physical problems - and even there they perform sometimes pretty poor (for me it tooks 3 years until they found the real reason for my problem...). The good news is, that - if it is urge UIC - it can be treated pretty well with blader training, a change of diet and sometimes also with kegel. So if the doc‘s have no better ideas I would ask for a specialized PT. Medication may also help - especially in a first phase. How ever depending on the drug it may take a couple of weeks until a effects sets in.

For me it worked even with PBS pretty well, and I was able to reduce the episodes from may 10 to 20 at the beginning down to one or two - sometimes even non over the daytime. So if you wont to cure it, my suggestion is hang in there. Maybe also this forum is not the best place in this case. A good idea is to check for locale support groups.
I’ll look around
 

PaddedStag

Contributor
Messages
182
Role
Incontinent
Fellow vets,

So how does the VA handle incontinence? I had a urine culture come back clean, they lab tested my prostate and checked labs for STDS, all good in the hood. As said in other posts they threw me Trospium and said to see me in October.

I just want answers at this point, I thought I was going to have other tests run and all this and that like one doc said they would , but over the phone they said Urge IC and a severe OAB. I feel confused and sick a lot and going on 20 lbs lost in a month although I haven’t done shit. I want to get well, I know y’all aren’t docs. I just don’t know the process or what’s going on, 3 messages and no response in a week. Only 33 so.. this sucks ass.

Curious about your experiences.

Cheers
The V.A. experience(s) seem to be widely different so take that with a grain of salt when I say-

The V.A. treats incontinence issues the same way they treat everything else: incompetently.

That is all.
 

WoodenBelly

Est. Contributor
Messages
54
Role
Incontinent
The V.A. experience(s) seem to be widely different so take that with a grain of salt when I say-

The V.A. treats incontinence issues the same way they treat everything else: incompetently.

That is all.
Correct. I had a ultrasound the other day, they called the day before to tell me to fast.. my wife and I drove an hour just to get a detailed lecture about the liver (I’m fine it’s just high) but no US.. Today I was told they screwed up. Not the first time..

People there are really good people, it’s the system that ties their hands
 

Mickeymic

I usually wear diapers and sometimes wets pants
Est. Contributor
Messages
194
Age
54
Role
Diaper Lover, Incontinent
I have had mixed experiences, depending on where I lived. In Gainesville, Fl I was given hospital pull-ups. But, here in Pensacola, I'm given nothing unless I see a specialist 120 miles away in Biloxi, MS. I think I'm moving back to Gainesville.
 

WoodenBelly

Est. Contributor
Messages
54
Role
Incontinent
I have had mixed experiences, depending on where I lived. In Gainesville, Fl I was given hospital pull-ups. But, here in Pensacola, I'm given nothing unless I see a specialist 120 miles away in Biloxi, MS. I think I'm moving back to Gainesville.
Damn I’m sorry
 

Resnov1913

Contributor
Messages
13
Role
Incontinent
I currently get tranquility atn from the va. I asked for tape diapers. They gave me poor quality ones. Insaid they dont work give me these. They gave me cloth like of that brand. I sent message saying these do not work do you have these (atn) and been getting them sense. Far as the process of treating symptoms well...i will type up something later tonight when off work.
 

PaddedStag

Contributor
Messages
182
Role
Incontinent
Correct. I had a ultrasound the other day, they called the day before to tell me to fast.. my wife and I drove an hour just to get a detailed lecture about the liver (I’m fine it’s just high) but no US.. Today I was told they screwed up. Not the first time..

People there are really good people, it’s the system that ties their hands
The folks doing the work have always been very professional and I sense their hearts are truly in their work. I applaud each and ever one of them.

The System is utterly fucked.

One year to get an MRI done, TWO aborted trips (2 hours one way), only to arrive with paperwork in hand, to be told at the check-in desk: "I'm sorry, but you're not scheduled today. You're free to wait and see if there is a 'No-Show'?" The waiting room is *PACKED*. Kiss my ass, V.A..

I would rather die in the gutter, than deal with the V.A. any further. (actually, I intend on dying in a very nice spot in the forest, surrounded by nature instead of 'Hospital' tripe)...

What a travesty.
 

mickdl

Est. Contributor
Messages
206
Role
Diaper Lover, Incontinent
I‘m a German- so I have only experiances with the german VA but I can tell you that the German VA is probably not even better if it comes to incontinence supply. I had to fight over 7 month to get a propper supply that worked for me. It might be better if it comes to the diagnostics because most of the clinics and doctors accept the VA payment so I had no problems at all but if it come to the supply... The problem here is, that the VA had there complete incontinence supply management sourced out. They had put the risk on the dealers by making contracts that give them an averaged fee per absorbing incontinence aid. You have to negotiate with the dealer to get a proper supply and they have to offer a qualified consulting. How ever - if you tell them what you need they don’t care at all and will allways offer your the cheapest pad’s they can get to maximize there profits or ask you to pay extra what is against the contract they have with the VA in place - but they don’t care much about that. The problem is that you can’t put your claims directly because you are not the contractor and they know this... So you have to go over the VA and this take a lot of time and often end’s up at the curt. In may case it ends up with a gentle agreement with the supplier and round about 20€ extra charge in a month... No fun at all but also no reason not to fight. Unfortunately there are to many people who give up and pay - but this support this unfair system...
 

Seasonedcitizen

Est. Contributor
Messages
764
Role
Diaper Lover, Sissy
Could you have some sort of neurological problem? Back injury or any abdominal surgery?

I use the VA once a year for blood work and a check up. I once went to the main hospital for a stress test and the cardiologist doing the test didn't tell me what was wrong but wanted me to have an angioplasty the following week. If I needed a stent, they would put me into an ambulance and take me to another hospital. No thank you, I have no chest pain or shortness of breath. I went to a local hospital that specializes in heart and lung problems and got a thallium stress test. I was normal.
 

509er

Contributor
Messages
3
Role
Incontinent
I had a though time with the VA for a while. They did an ultrasound and gave me two different pills. Passed out each time I took them. Meds were not an option. They gave me cheap adult diapers that leaked. I went and bought some. Finally convinced them to give me Tranquility atn. The nurse had to fight the VA supply system to get them for me. After 3 years and no answers, I went through Choice as I am remote. Picked a great urologist and am a week out of surgery. Had a bladder neck incision and took some of the prostate by the urethra that was causing problems. Waiting to see of that fixed the problem. Still having to use adult diapers for now.
Woodenbelly, be proactive and don't wait around for the VA. Be a pest and get your nurse on your side. The nurse clinic manager will be able to help you out too.
 

WoodenBelly

Est. Contributor
Messages
54
Role
Incontinent
Most definitely, I message all the time but I’ll pick up the momentum. I can’t live this way and done with it.
 

srgsng25

Contributor
Messages
78
Role
Private
I am quite lucky I live inteh PNW and have access to the Seattle VA they are sending me 8 cases of Abena's every month we're still working with them to get wipes in the formulary. it took about a year to work through all the formulary diapers but I have has a really good results
 
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