Toviaz? | 1st Urology Appt

[iatec779]

Had my 1st ever urology appt today. The staff were all very respectful and informative, made me feel at ease as possible during a couple tests. They immediately had me pee in a funnel thing that measured output etc. Then had me drop the pants and do a bladder scan. It was quick and painless. They said my bladder was emptying properly so that's good. After some talking about my current issues and med history, a girl NP gave my my 1st ever prostate exam. It wasn't that horrible but, even though her fingernails weren't long, I'm pretty sure she had fake nails as they looked thicker than normal and perfectly painted. All I could feel was her damn nail digging around from the inside. Not the best feeling!
** if your reading this and are a Dr or someone who performs these tests, lay off the fake nails!
Anyway, the Dr. basically diagnosed me with OAB said it was most common thing with older men and prescribed me Toviaz. Said most insurance makes patients try this for a few months before doing any further tests (mentioned urodynamics) and further procedures if this or other medication does not help. Of course mentioned weight loss and lower A1C could help as well. Also said there are other meds to try, some people respond better to different things just have to try them.
Last issue we talked about it leaking after going pee. They said as men get older the muscles around the urethra (before the penis) slowly weaken and cause some to leak out as before, the muscles held it all tighter. Makes sense I guess but don't remember them saying much could be done about it. I go back in 3 months so might follow up on this again.

So, anyone ever take Toviaz? He mentioned dry mouth as a side affect but said 85% of people find it helpful after a couple months of taking it. So, I'm giving it a shot as a next step. Just wondering if this helped anyone else with OAB out.

Thanks!

 

[slimjiminy]

The only thing I know about it is the tv commercials I've seen advertising meds to deal with the dry mouth issue. Disturbing because the cartoon showed teeth rotting and falling out.

 

[OnePiece]

Your urology appt seems to be very like mine, except the woman checking my prostate didn't have long nails, ha ha.
I have tried several meds, including Toviaz.
The first thing that happened was dry mouth issue (and that can severely damage the teeth).
Second was headache.
After a few days I was getting very tired and was starting to have problems with memory.

The effect on the bladder was not good enough that I could stop wearing diapers, so all considered, I stopped taking the meds.
Other similar meds that I've tried, had similar effects and side effects. Some being much worse.

Remember that different people respond differently to the same meds. Also please check the listed side effects of the meds you take.
You have to make your own decision.

I've read articles in newspapers about scientific tests of IC meds that stated many of the meds had a non reversible negative effect
on the patients intellect. My personal experience is the same.

I don't mean to scare you off trying meds, but I want you to be aware that there can be possible negative effects.
Some people just don't want to use diapers, so they prefer other options, and that is also OK.

I'm now diapered almost 24/7 after declining botox treatment and is OK with that, but I had a different view to begin with.

 

[Diaperman95]

I have Never taken it as I give up on OAB beds a long time ago due to side effects and it is a newer one. The only thing I know is it is expensive. I had a friend prescribed it and even with insurance it falls under the non formulary drugs because it has no generic drug yet. So if you have no insurance or poor drug coverage hold on to your asshole because that sharp nail is going to be painless compared to the ass f##king you will receive at the pharmacy.😂😂🤣🤣🤣

My urologists' is a huge guy with large sausage fingers For real I bet he has a size 14 ring finger, and he tells me they are taught to use two fingers in med-school!!! I don't know if it is true or not?? If not he has played one hell a cruel joke on me the last 28years that I have been seeing him.🤣🤣😱😱😭 After 28 years worth of that I would take a female with skinny fingers!... Even if she has a cocaine nail on the end of them. 😂😂

 

[iatec779]

I have Never taken it as I give up on OAB beds a long time ago due to side effects and it is a newer one. The only thing I know is it is expensive. I had a friend prescribed it and even with insurance it falls under the non formulary drugs because it has no generic drug yet. So if you have no insurance or poor drug coverage hold on to your asshole because that sharp nail is going to be painless compared to the ass f##king you will receive at the pharmacy.😂😂🤣🤣🤣

My urologists' is a huge guy with large sausage fingers For real I bet he has a size 14 ring finger, and he tells me they are taught to use two fingers in med-school!!! I don't know if it is true or not?? If not he has played one hell a cruel joke on me the last 28years that I have been seeing him.🤣🤣😱😱😭 After 28 years worth of that I would take a female with skinny fingers!... Even if she has a cocaine nail on the end of them. 😂😂

Haha yea, maybe I got the better end of that deal, she was maybe 30 and hands weren’t big lol.

I have decent insurance. 90 tablets (3 months) cost me $25.
Figured I give it a shot and see how the side effects people talk about go.

 

[Edgewater]

As noted above, the side-effects are commonly worst than wearing diapers. A close friend was faced with about 3000 USD each year for Dental work caused by dry-mouth! FYI: Please try the different medications because if you are one of the lucky ones that find one that works and has limited side-effects. That's Great!!
FYI, call your Dentist and ask their recommendation to combat dry mouth!

 

[Scaramouche]

Did your doc do a blood test to check your PSA?

 

[Rob110]

Im still skipping the meds and using diapers to manage my OAB issues even though they say the new meds have less side effects Im taking meds for my heart now so no need to add tp the mix and im ok with being diapered 24/7 its been 9 years now and diapers are simply apart of my daily life

 

[Abdlchriscrinkle]

Did your doc do a blood test to check your PSA?

I'm in Ontario Canada, and I've never had a digital rectal exam because the only do the PSA blood test now to check the prostate. I asked why no d.r.e, and they said too many nurses misinterpret the feeling of a prostate and diagnosis is too different from one to the other, basically no consistency.

 

[chamberpot]

I told my urologist that i was fine with diapers and that I did not want to try the different med game.. you end up taking a drug to fix the problem that the drug your taking for the original problem is and then taking another drug for the drug your taking to fix the first drug .. on and on ... He was fine with my diapering as a solution as long as I was happy with it..

 

[iatec779]

Did your doc do a blood test to check your PSA?

They did take blood, guessing that’s why

 

[iatec779]

I told my urologist that i was fine with diapers and that I did not want to try the different med game.. you end up taking a drug to fix the problem that the drug your taking for the original problem is and then taking another drug for the drug your taking to fix the first drug .. on and on ... He was fine with my diapering as a solution as long as I was happy with it..

They told me basically the whole thing is about quality of life and what I want to do.
Do nothing, get used to wearing protection forever.
Try different meds and see if that’s something that helps.
If does not help then they offer further testing, a Botox option and some pacemaker type thing for your bladder they implant in you and it supposedly puts the bladder spasms back in check. Think there was a surgical option as well if all above failed.
So the ball is kind of in my court. Figured don’t hurt to try med or 2 for a few months. If they don’t work or side effects suck then I can either just stop or move forward trying something else.
I don’t think I will do anything past trying a med or 2 for a while. My IC is not as bad as some on here so think I will deal with pads during the day for years before doing anything surgically.
Don’t sound like many people have had good luck with the IC meds though.

 

[ltaluv]

I've taken Toviaz. It helped a lot, but not as much as the Myrbetriq I'm taking now.

I have an Interstim, which is the "bladder pacemaker" device. It sends electrical signals to the nerves in the spine to moderate some of the signals being sent from the bladder to the brain. It has helped me a great deal.

I also get Botox every few months. It wears off over time and must be repeated regularly. It's probably the most helpful treatment I've had.

Since I got the Interstim and found the right frequency for Botox (every four months in my case), I'm fully continent nearly all of the time. I still wear a diaper if I'm going to be somewhere that I won't have restroom access for a long time, but accidents are very rare. Beyond that, I usually need a diaper for a couple of days after the Botox injections because it gets my bladder irritated, and occasionally towards the end of the Botox cycle if it's wearing off a little quicker than expected.

Good luck with your new urologist and finding a treatment that works for you!

 

[hbic60]

Im still skipping the meds and using diapers to manage my OAB issues even though they say the new meds have less side effects Im taking meds for my heart now so no need to add tp the mix and im ok with being diapered 24/7 its been 9 years now and diapers are simply apart of my daily life

I'm in the same position. Have to take 5 meds daily after heart stroke /surgery 2 years ago - 4 of those meds can have side effect concerning continence...and it seems I'm one of those where this effect takes place. Im also OK wearing diapers with my combined urge and dribble IC instead of trying out adding further meds - my doc warned me if I would really like the side effects only for a decrease of my IC - it for sure won't cure it completely.

 

[iatec779]

I've taken Toviaz. It helped a lot, but not as much as the Myrbetriq I'm taking now.

I have an Interstim, which is the "bladder pacemaker" device. It sends electrical signals to the nerves in the spine to moderate some of the signals being sent from the bladder to the brain. It has helped me a great deal.

I also get Botox every few months. It wears off over time and must be repeated regularly. It's probably the most helpful treatment I've had.

Since I got the Interstim and found the right frequency for Botox (every four months in my case), I'm fully continent nearly all of the time. I still wear a diaper if I'm going to be somewhere that I won't have restroom access for a long time, but accidents are very rare. Beyond that, I usually need a diaper for a couple of days after the Botox injections because it gets my bladder irritated, and occasionally towards the end of the Botox cycle if it's wearing off a little quicker than expected.

Good luck with your new urologist and finding a treatment that works for you!

Thanks for the info. Good to hear first hand experience from someone who has tried some of these things and how it helped you out!
Appreciate it!

 

[Edgewater]

They did take blood, guessing that’s why

They likely also looked a kidney functions as well. That would be common.

 

[Diaperman95]

I've taken Toviaz. It helped a lot, but not as much as the Myrbetriq I'm taking now.

I have an Interstim, which is the "bladder pacemaker" device. It sends electrical signals to the nerves in the spine to moderate some of the signals being sent from the bladder to the brain. It has helped me a great deal.

I also get Botox every few months. It wears off over time and must be repeated regularly. It's probably the most helpful treatment I've had.

Since I got the Interstim and found the right frequency for Botox (every four months in my case), I'm fully continent nearly all of the time. I still wear a diaper if I'm going to be somewhere that I won't have restroom access for a long time, but accidents are very rare. Beyond that, I usually need a diaper for a couple of days after the Botox injections because it gets my bladder irritated, and occasionally towards the end of the Botox cycle if it's wearing off a little quicker than expected.

Good luck with your new urologist and finding a treatment that works for you!

I had a stimulator for about six months to calm my Interstitial cystitis and OAB. It kept getting infected and it landed me in the hospital 3 times so I told them to take it out. It did help some but just did not work out for me. I had that done back in 06 when it was still pretty new tech. I now have basically the same device in my stomach due to my gastroparesis. It was a life saver. I can deal with having to wear diapers for life but not throwing up every day. I was offered a few times to have it put back in for my bladder but I just accept my IC and trying to live life the best I can. Besides I do not know if you can even have two devices in or if they will interfere with each other.

 

[Edgewater]

They told me basically the whole thing is about quality of life and what I want to do.
Do nothing, get used to wearing protection forever.
Try different meds and see if that’s something that helps.
If does not help then they offer further testing, a Botox option and some pacemaker type thing for your bladder they implant in you and it supposedly puts the bladder spasms back in check. Think there was a surgical option as well if all above failed.
So the ball is kind of in my court. Figured don’t hurt to try med or 2 for a few months. If they don’t work or side effects suck then I can either just stop or move forward trying something else.
I don’t think I will do anything past trying a med or 2 for a while. My IC is not as bad as some on here so think I will deal with pads during the day for years before doing anything surgically.
Don’t sound like many people have had good luck with the IC meds though.

Please understand that the majority of the Meds used for urinary issues had been designed and developed for other specific medical issues and as part of the testing process, they found that as a side-effect, there was some level of improvement with urinary issues. It comes down to percentages and whether you are one of the lucky ones.

 

[DiaperedJoey]

The first one my Urologist had me try was Vesicare. That gave me serious dry mouth and didnt really do much. Next was trospium, which constipated me something fierce and made me thirsty. I didnt continue it long enough to know if it worked. Last one I tried was mybertiq, I dont remember being thirsty but it did constipate me at first. Ibstopped for a bit and tried again, no constipation, but got headaches, and BP went up. I stopped. I have good blood pressure, I did not want to end up on bp pills.

 

[OnePiece]

The first one my Urologist had me try was Vesicare. That gave me serious dry mouth and didnt really do much. Next was trospium, which constipated me something fierce and made me thirsty. I didnt continue it long enough to know if it worked. Last one I tried was mybertiq, I dont remember being thirsty but it did constipate me at first. Ibstopped for a bit and tried again, no constipation, but got headaches, and BP went up. I stopped. I have good blood pressure, I did not want to end up on bp pills.

I have tried Vesicare. They are kind of heavy. In addition to dry mouth and headaches, they made me somewhat foggy, forgetful
and very tired. I couldn't do my job right and after falling asleep driving home (20 mins) and nearly have an accident, I quit.
They did have good effect on my bladder, though, but I preferred staying alive, in diapers.

All the meds I've tried, gave some constipation, dry mouth and headaches.