Mickey said:
I'm lost on the Autism Speaks thing, I notice a number of bad comments about it. I don't really engage in any of that so I am unaware of what might be the issue.
Autism Speaks was started one year after founders Bob & Suzanne Wright's grandson was diagnosed with autism. Bob was vice-president of General Electric and involved with their NBC subsidiary; Suzanne (
now deceased) was an executive housewife, I believe. With a $25 million starting donation given by The Home Depot,
AS got off the ground.
AS quickly absorbed two American and one Canadian autism advocacy groups into the foundation.
Over time, with
Autism Speaks openly stating their goal was to find a 'cure', they ran into various PR scandals, such as calling autism a 'disease', exploiting families with autistic children for PR, aggravating their board of directors (
the vast majority of them being doctors & scientists in the field, appointed honorarily) to the point of multiple resignations, at one time also budgeting part of their funds towards the autism/vaccine 'connection' studies...
AS has essentially become a trendy, country-club-style fundraising entity with little knowledge...and thus no true advocacy. They also spend much less towards furthering their mission than other autism advocacy groups, especially with lavish 6-digit salaries to
AS executives...as well as outlandish quarter-million-dollar moving allowances for them. The only thing that seems to matter to
AS' mission is overwhelming media presence. By way of comparison, other, more-able, more-aggressive and more-purposeful autism advocates are vastly overshadowed by
AS' mediocre presence.
IMHO,
Autism Speaks is like Maris Crane in a puzzle-piece t-shirt. Money, hobnobbing for money, wasting money, mindlessly prattling about what little they
really know about autism. Real, genuine, effective autism advocates simply cannot stand out on their own merits because of
AS' dominant 'look at me!' attitude. With an 'advocate' like
AS, who needs opponents? There are many reasons, including those given, why the saying "Autism Speaks doesn't speak for me" exists. Just my .0000012 Bitcoin.