IBS experiences

[HeronimusM]

Hello all !

i'm "new" in the IBS-C world, and i was wondering about experiences,

The reason why is getting as much info as possible, and make this topic a general collection of experiences from IBS patients.

what i would like to know is, personal side effects,

i'm new to all stuff,

Today i had a rough start,

i'm on Metamucil, and after 2 cups of coffee ( yeah i know Caffeine is an activator)

and my BM i got all shakey hands, ( sugar shortage???)

i've had a lot of exams, blood, stool, vitamins, the whole nine yards...
the results were all good, Diabetic test was Negative, Vitamine D shortage was positive so i'm on supplements...

anyway, it would be nice to collect IBS experiences from people here so it can be a great help

 

[OmiOMy]

My IBS is officially IBS-mixed, though it was initially dx'd as plain ol' IBS-C. This means I'll go through episodes of completely NOTHING constipation followed by episodes of wild diarrhea, with nothing to warn me of which one is going to be coming up. The abdominal pain, digestive problems, and everything all act the same. The pain has been so bad before that I've missed work.

I've had endoscopes, colonoscopies, ultrasounds, CTs, and MRI's. We haven't found anything. We're stymied. All I can do is take meds that make the experience slightly less bad.

 

[HeronimusM]

Hi Omi !

i'm sorry to hear about your experiences, are you also experiencing when completely "empty" the lack of sugar dose and developing heavy shaking and somewhat light headed? which stabilizes after an hour or 2?

 

[Missy1]

When you have gone thru a rough BM either loose or constipated or both and with or without pain (ie gas ,cramps etc... ) you have pushed the resources of youe body to the extreme so then its perfectly natural that you feel compleatly waisted dear. I get that as well from time to time and then its more or less just as well going to bed and recuperate hon

As for my symptoms its pretty much sped al over in here so need to yap about al those again . And like Omi i also have same problems Severe constipation can hardly do my Bms without water Enema / Diarrhea/mucus /gas /bloated , with less then a minute to warn me if so and sometime NO warning (and sometime dont even felt it and find out when changing diaper ) . The abdominal pain, digestive problems (had them FORE YEARS ) , and continuing to have its circles in an ENDLESS circle of life and becoming more and more severe as time progress. Taking the Urine IC with it on the ride with same story & same awaited result :frown: BUT im already WELL prepared so im AL ready for whatever is to come :sweatdrop:

Heres a some info reg IBS dear http://uclacns.org/patients/disease-information/irritable-bowel-syndrome-ibs/

 

[HeronimusM]

Hiya Missy !

thanks for your update !

and your info, i will log this into my own "medical file"

 

[Spaz]

I've had IBS-D since I was very young (runs in my family). I avoid caffeine, high fatty foods and fried foods. I normally have pretty loose and frequent bms anyway, but those foods will put me into an episode. What is an episode? Moderate to severe intestinal pain, followed by sudden multiple bms. Interestingly, I also get some other symptoms with episodes such as shaking (legs and arms) and chills. My nervous system is basically resetting itself. Kinda like a machine that freezes, sputters, puffs out some smoke and fluids, then resets itself. I would watch your diet closely and keep track of what might be your trigger foods. Stress is also a trigger for me, but not as bad as the foods I mentioned above. Diary, fruits and grains do not give me problems.

A lifetime of IBS-D has weakened my ability to hold bms and I have at least 2 to 4 a week in my diaper before I can make it to the toilet.

 

[HeronimusM]

Hi Spaz !

thanks a lot for your message,
i'm on 1 or 2 BM's a day at the moment, and my life is kinda resetting from severe obstipation, shivers shakey and chills sounds familiar, "glad" i'm not the only one
my brain is all over the place feeling new stuff and so on....

 

[Missy1]

Spaz wrote I also get some other symptoms with episodes such as shaking (legs and arms) and chills & shivers

A lifetime of IBS-D has weakened my ability to hold bms

A yes forgot about that i got that too

Oh and i got my IBS & Stress stumock diagnose at 20

Same here i more or less cant do normal Bms anymore and have to use Water enema as my colons end muscles are COMPLEATLY done this days from al the years constant constipation /diarrhea and forced to use water Enema for MANY years

And i can have as many as 5 + Bms a day on my BAD days (small amount each time ) its a reel PAIN in the Butt :frown:

 

[Osito]

I had IBS symptoms but it turned out to be mild IBD when I was scanned.
Symptoms for me are pain before BM, some constipation and some loose stools, wind, bloating and sometimes going to the toilet several times a day.
Very occasionally I’ve had lightheadedness after a BM and actually passed out a couple of times.
I am very lucky and my symptoms are not too bad.
Do look after your mental health if you get worse symptoms.
Also obviously eating healthily, drinking enough water and some light exercise all help.

 

[OmiOMy]

Hi Omi !

i'm sorry to hear about your experiences, are you also experiencing when completely "empty" the lack of sugar dose and developing heavy shaking and somewhat light headed? which stabilizes after an hour or 2?

Yep. I keep orange juice or Gatorade in the house. Tbh the wooziness is slow to resolve.

 

[Spaz]

Hi Spaz !

thanks a lot for your message,
i'm on 1 or 2 BM's a day at the moment, and my life is kinda resetting from severe obstipation, shivers shakey and chills sounds familiar, "glad" i'm not the only one
my brain is all over the place feeling new stuff and so on....

No problem. The shakes and chills happen immediately after a bad episode. I've even had to stand in a hot shower for five minutes to warm up afterwards. I used to naively think everybody had 3 bms a day. On IBS days I will have more like 6+. It can be a hassle for sure.

 

[HeronimusM]

Hi Spaz !

yeah i was so cold yesterday evening, only a shower would help to regain some bodywarmth,

i'm learning a lot fast the couple of days.

also i'm not that good in balance with my body, now i've been officially diagnosed, i'm kinda full on aware from all the symptoms, i've waken up from body wintersleep, so everything is new and fresh

 

[Missy1]

Oh and i just remember i forgot the feeling physically sick to my stummock along with the tremendous cramps that is so bad you just whant to scream out and rip the seat of the floor and bacikly have to throw up Thats how i ended up starting the water enema & other methods best kept in private to get the BM to come out. its during and after those periods im shacking and al the rest & basically al knocked out for a few hours

 

[rennecfox]

for me it's urgency, coupled with leakage in the back and not always feeling when the leakage happens, at times it can be all out uncontrollable, most often it's bad urgency

 

[ddudeibs74]

As a fellow IBS sufferer I find all the different stories quite interesting, so I'll add my own in the hop that it might help someone.

My IBS started in my teenage years and peaked in my mid twenties before settling down to the point where it is today. Although I still have 2-4 BMs per day on a good day, and I do still occasionally have BM accidents it's much better than it was.The turning point for me was finding out my trigger foods, through long, sometimes painful and occasionally embarrassing experience. The list of things that I completely avoid has slowly expanded and now includes, in no particular order:
Spicy food (particularly anything with chili or ground pepper), Potato chips (aka crisps), Coffee, fried and fatty food
And the list of food I still eat but only in strict moderation includes:
Chocolate, alcohol and dairy products
I found these through elimination diets and constant experimentation. The elimination diet thing for me was not straightforward because even when I restrict myself to the most boring and safe diets I will still get some intermittent IBS symptoms.

The other main factor for me is stress, which I don't think is a trigger but seems to amplify any IBS issues I'm having.

I'm trying to make this post positive because although I still have IBS it definitely improved through time and hard work. Also, I should mention that the "hard work" part was occasionally very enjoyable, for instance, after a decade of completely avoiding all cheese I found that I can stomach it in limited quantities without any ill effects.

 

[M150]

I developed severe IBS-mix during a trip to India. My infectious disease Doctor treated me with several different antibiotics. After a couple of months with no change in symptoms, I was sent to an IBS specialist. He told me he has seen many cases like mine and it would rectify itself over the next 7-10 years. No explanation, just medications to help cope with cramping, pain, and bloating. The first year was the roughest. I missed a lot of work because I could not leave the house and sit in traffic. Luckily, I was able to find a position that allowed me to work from home.

My symptoms have improved dramatically over the last 7 years. Not totally but enough to get out without fear on messing myself. Interesting note is that it seemed to trigger urinary problems. I was a bedwetter growing up, but had a fairly good dry spell for 15 years. I am not sure if the two are related, but the timing leads me to believe they are.

In addition to the symptoms everyone else posted, I would produce a lot of saliva when my IBS was at its worse.

Sorry if I am rambling. This is my first post.

 

[Missy1]

ddudeibs74 wrote The other main factor for me is stress, which I don't think is a trigger but seems to amplify any IBS issues I'm having.

Actually stress is one of the most common triggers for IBS dear :educate:

I developed severe IBS-mix during a trip to India. My infectious disease Doctor treated me with several different antibiotics. After a couple of months with no change in symptoms, I was sent to an IBS specialist. He told me he has seen many cases like mine and it would rectify itself over the next 7-10 years. No explanation, just medications to help cope with cramping, pain, and bloating. The first year was the roughest. I missed a lot of work because I could not leave the house and sit in traffic. Luckily, I was able to find a position that allowed me to work from home.

My symptoms have improved dramatically over the last 7 years. Not totally but enough to get out without fear on messing myself. Interesting note is that it seemed to trigger urinary problems. I was a bedwetter growing up, but had a fairly good dry spell for 15 years. I am not sure if the two are related, but the timing leads me to believe they are.

In addition to the symptoms everyone else posted, I would produce a lot of saliva when my IBS was at its worse.

Sorry if I am rambling. This is my first post.

HAPPY for you that youre infact one of the few that gets this mess manage to gt helped by meds and and the rest dear :biggrin: sadly for the majority this isent case BUT as in youre case there a small % that actually do get it sorted out . There is a definite conection between Fecal (as is also IBS ) IC and urine IC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3654175/

Oh and dont worry dear you did just fine in youre first post and WARM welkome to Adisc dear :grouphug:

 

[HeronimusM]

thanks all for your very personal stories !

 

[M150]

Thank you for the kind words! The link you provided was very interesting!

 

[HeronimusM]

i'm kinda glad i've started this topic, and be able to give room for discussion on IBS in the widest form,
All the experiences say and tell me more than hours of article reading,

i've got some sort of stabilisation, the first week, and a half, the volume was kinda huge, looks like my body is getting somewhat used to Metamucil,
now the volume is less big, but still just as easy passable, perhaps this has to do with the fact, i've run out of Metamucill 3 days ago and had to use 1 bag instead of 3,
my GP has given me a sort of "trial" pack, for 20 days, now i've got stock for the whole month...

anyway, i'm slowly getting my head straight about the IBS stuff, and also me having constant brainstorms over a lot of stuff, i'm really focused on other far more important headtopics like IBS, and prepping everyday.
Also my Brain has kinda woken up from wintersleep, so the connection between brains and body is full on... ( possibly i'm repeating myself, sorry had a rough week)