Diaperman95
Est. Contributor
- Messages
- 3,840
- Role
- Incontinent
They talked to me about opening up some space in my spine around some nerves but my pain management doctor tells me it might make thing worse and also said if nerves have been pinched over 6 years now he doubted they would bounce back. I should of done something about it already but the last 3 years I have been battling gastroparesis and it is horrible I will throw up every few minutes for days sometimes. I was admitted to the hospital over 20 times in the last few years due to that. Then also last year both hips got avascular necrosis in them an had to do core decompression on them. Now ,y left hip side failed and I am going to have it replaced this coming summer. I just have to pick and choose my battles and my stomach was #1 to get fixed. They put a pacemaker in my gut to shock my stomach so it will empty. that was a big surgery he cut me 8tor 9 inches open down the midline and another 3 to 4 inches off to the right sidevaris67 said:My disc had degenerated quite a bit. normally the L5-S1 should be about 11-12 mm thick. Mine was down to 1mm, so somtimes my vertebrae would touch. Based on what you indicate of your symptoms you could have gradual onset cauda equina, so I would recommend asking your doctor about that.
No obviously it's not the first time my parents have seen me diapered, but it was the first time in 38 years... They actually took it well. My mother has since asked me a few questions, but I don't feel she is prying. Rather I think she is just trying to understand what I'm dealing with. If anything it's kinda surprising as I figured she'd be demanding that I get more tests, or try more options or see more doctors. Instead she seems to be accepting everything. She did ask if pull-ups were an option and I told her no. I may only have urinary inc but as far as I'm concerned pull-ups are junk pushed by the manufacturers to increase their profits. I'd rather wear an actual plastic backed, THICK, LOUD, diaper and KNOW that I'm not going to leak.
As for Megamax, that's what I was wearing in the hospital. I brought my own and requested that the nursing staff use them. They had zero issue with that and most made comments as to the quality being so much better than what they had. At home I use Rearz safari or alpaca, but if I need to go to the doctor I use a white megamax. Over the holidays I used a white bambino (thinner and quieter) and my wife helped me with checks/changes while at various family members houses. Since I'm still using a walker no one questioned her going into the bathroom with me.
The fusion helped with the pain. I have recently had some issues with my hips, but I will be going in for my 6 week follow-up soon so I will be asking the DR at that time about it. For the surgery I had a 7.5 inch incision with 34 staples. When I went for my 2 week follow-up it was with the nurse and she was able to remove 23 of the staples. Overnight I had a noticable drop in pain. 5 days later I went back to get the other 11 staples taken out and again had a noticable drop in pain. I am now 5 weeks out and I don't have any surgical pain, but I can feel the muscles that had to be cut, slowly rebuilding themselves.
I chose to take the surgical option because I was getting worse. Somedays would be OK, but the bad days were getting to the point where it was painful to even stand up much less walk. I couldn't lift much due to the pain, and I had a LOT of issues while sleeping. Like most people I would roll over in my sleep every 45 minutes- 1 hour. When this would happen I would get that sharp pain from my back and down my legs which would instantly wake me up. Waking 5-6 times in a night starts to mess with your mental health and I was starting to have feelings of depression. (been there done that when I was a teen and almost ended up in a mental ward- so I did NOT want to keep going down that road)
All in all I am glad that I got my fusion surgery. I know that a few months from now I will be back at 100% (incont not withstanding). My mental health has mostly returned. Most importantly I regards to wearing diapers, I used to live in constant fear that someone would find out. Even when my incont started last July I know that if someone had caught me I had the legit excuse of having spinal issues, but it was something that I still was very anxious about. Now, if someone were to figure out that I'm diapered I have more of a who cares attitude. I'm not going to advertise it, but I'm also not going to worry about hiding it either.
I cant tell you the number of times I will be sound a sleep and go to roll over and the worse charley horse ever will take off in my left thigh. It feels like half is pulling one direction and the other half the other direction and feels like the muscle is tearing and on fire. I will wakeup a few times a weeks screaming over that. BS.