Diaperman95

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This is a horrible stomach disorder that keeps your stomach from emptying. then the food sours and you get bloated and sick very bad to the point I am dry heaving for 20 plus hours a time every 2 min. I throw up from10 times to over 100 every day. They was supposed to implant a gastric stimulator to help move my stomach along but my insurance called it elective and said no to paying for it. But they paid for 6 stays all from 3 to 8 days a stay just this year. I don't know what the surgery cost but It hast to be less than what it cost to stay in the hospital all the time.


IF anyone or their loved ones have this disorder PLEASE PM me I am looking for ways to cope with this. Also looking to speak to someone who had the gastric stimulator and how it worked out for you. Or if you know of another procedure or medicine that works too. Only 2.4 me out of 100,000 people get this shit so it is very rare.

Any help I can get or some Ideas on it like does and dont's for what to eat and how did you convince the insurance into doing. Then if you had a gastric implant please explain how it went and howmuchif any relief you got. Thank you
 

winterheart01

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Unfortunately I am unable provide help, I do have gastroparesis as you already read in a previous post but at a much much lighter level.
I only need to take meds to regulate my stomach acid and for hot meals domperidone to speed up digestion, but in your case this is not sufficient, the doc said there used to be stronger medication that helped much better but they banned it here because people abused it and died from heart problems.
I do avoid food with heavy thick sauces like a fish stew with a thick broth, that makes my stomach bloat for hours and make me feel sick, that and too much strong coffee, while i'm a coffee addict, this is a pain, but I must refrain from drinking more than one espresso in a day.
 

Pino

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This is a horrible stomach disorder that keeps your stomach from emptying. then the food sours and you get bloated and sick very bad to the point I am dry heaving for 20 plus hours a time every 2 min. I throw up from10 times to over 100 every day. They was supposed to implant a gastric stimulator to help move my stomach along but my insurance called it elective and said no to paying for it. But they paid for 6 stays all from 3 to 8 days a stay just this year. I don't know what the surgery cost but It hast to be less than what it cost to stay in the hospital all the time.


IF anyone or their loved ones have this disorder PLEASE PM me I am looking for ways to cope with this. Also looking to speak to someone who had the gastric stimulator and how it worked out for you. Or if you know of another procedure or medicine that works too. Only 2.4 me out of 100,000 people get this shit so it is very rare.

Any help I can get or some Ideas on it like does and dont's for what to eat and how did you convince the insurance into doing. Then if you had a gastric implant please explain how it went and howmuchif any relief you got. Thank you
Hi,

i friend of mine has this condition for years now, the way to diagnosis was hell for him, nobody took him serious.

But in the end he got botox into the muscle at the end of the stomach, that worked very well for three years, but now he got an operation, i do not know what they did, i will ask for that, but he is not well now for a long time, so perhaps you should ask for the Botox first.

Side note: As far as i know the Botox injection for the stomach is a new procedure, only one or two doctors in Germany do that.

Best wishes

Pino
 
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PCBaby

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You need to keep a food diary and see if that throws anything up (sorry pun not intended), but you should be talking to your Doctor and your Insurance provider. with any illness you will find people that have the same one, but they may haave a slight case or a worse case than you, and what tghey did to resolve iot or get their insurance provider to supply may well not be the answer you need.
 

Nibbley15

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For the person I directly know that has it. They haven't gotten any implants for it. The triggers are anything fibrous. White meats (fish, chicken) have been good. Steak is a big no no. Hot water mixed with Jell-O works great to calm their stomach down. Like PCBaby says, keep a journal and start small and see what aggravates it for you. The person I speak of is able to tell within minutes if the food will make it angry or possibly settle out (20 minutes is the longest).
 
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