Reeiving a little bit of assistance in paying for adult diapers...

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caitianx

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As an older adult with Autism and Cerebral Palsy who is incontinent, the cost of a month's worth of adult diapers is a large expense out of my fixed monthly SSDI Income Budget.

I receive no assistance through the State of New Hampshire with easing the out-of-pocket cost of having to be diapered 24/7.

Therefore, I do receive a little bit of assistance via my church. This morning after worship I was given a 28-count package of Walgreen's "Certainty" brand adult diapers.

Medicare itself does not cover the cost of incontinence products, except in a Nursing Home.

It does suck, that I have to rely upon my own faith community to assist me with this necessary medical supply.

Yet, I am grateful for this "tiny" act of assistance every month.
 
I wonder if you could help offset some of the the expense by slowly acquiring cloth diapers? Of course there are downsides. There is the cost of replacing plastic pants, the expense of washing and drying and there is a smell issue with cloth. It's something to think about however. If you're not going out in public, cloth might be an option.
 
That's good to hear.
 
dogboy said:
I wonder if you could help offset some of the the expense by slowly acquiring cloth diapers? Of course there are downsides. There is the cost of replacing plastic pants, the expense of washing and drying and there is a smell issue with cloth. It's something to think about however. If you're not going out in public, cloth might be an option.

Yes! I may consider using cloth diapers with plastic pants in the future.
 
Cloth diapers should help pretty significantly. Dependeco should be great for you. They are really easy to put on and are quite durable. Just take care of them and they should lay long enough so that you could be able to save money for other necessities.
 
Because of my own needs with CP, I like the idea of the SOPO kind at http://sewyourown.blogspot.com/ I like the idea of the slip-off pull-on kind, because I can pre-snap the snaps and put them on like pull-ups, only unsnapping them when need be. This helps because my right hand and arm are tight enough to make snapping/Velcroing a pain in the tushy. If you can't snap, there's a Velcro version, too. They're the pocket kind, but a talented seamstress could easily switch them to all-in-ones, and use less bunchy fold-over elastic.

Dependicos are cute as buttons, and have AB designs in cotton and flannel, but the microfiber in them may hold poo. I dunno. Ask Tyger. http://dependeco-adult-diapers.com/catalog.php?category=1&page=all

If you want to cloth diaper in public, you'll need a "wet bag," for used ones. Just dump and flush if need be. Be sure to use a cloth-safe diaper cream like CJs BUTTer. Cloth safe detergent too.
 
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Caitianx , You do get a poor deal in the USA as here in the uk the NHS ( national health service ) would pay for all your diapers and the local council would have collected the dirty ones in yellow bags for free
 
Hello,

Weather Medi-care or state medical insurance covering diapers differs state to state. When I was in New York my doctor wrote me a prescription for disposables and the medicare covered it. Since moving to California, California is another state where diapers are covered. But not a unlimited supply. I wear 24/7, but my medicare will ONLY cover 5 diapers per day. If I need more I have to pay for them myself. I use a average of 6 diapers a day. I use baby diapers with slits cut in the plastic backing to help increase how long I can get out of them. I use either Huggies Overnites or Pampers Cruisers when awake as a soaker pad, and when sleeping use Pampers Easy-Up's. Before when paying cash I could easily spent $250.00-$300.00 a month on diaper needs. Now I spend on average 40-50 dollars on my diapering needs. And that's partly because medicare only covers the diapers. Not wipes, powder or rash cream. So I buy those and the baby diapers myself. I make it work. Sometimes if it's a small wetting, I can pull out the baby diaper and slip a new one in without having to toss the adult diaper right away. This makes the adult diapers last me a little longer. Anyway, yea, diapers are expensive and ANY help is always great.

-Baby Stanley
 
caitianx said:
As an older adult with Autism and Cerebral Palsy who is incontinent, the cost of a month's worth of adult diapers is a large expense out of my fixed monthly SSDI Income Budget.

I receive no assistance through the State of New Hampshire with easing the out-of-pocket cost of having to be diapered 24/7.

Therefore, I do receive a little bit of assistance via my church. This morning after worship I was given a 28-count package of Walgreen's "Certainty" brand adult diapers.

Medicare itself does not cover the cost of incontinence products, except in a Nursing Home.

It does suck, that I have to rely upon my own faith community to assist me with this necessary medical supply.

Yet, I am grateful for this "tiny" act of assistance every month.

do you have medicaid? I know medicaid can allow your primary doctor to write you scripts for diapers and you can get coverage for diapers that way because I myself get diapers as well this way. Be advised Medicaid is different from medicare and I have both. Please keep in mind I have 6 cloth diapers as well on top of that. The only diapers I actually pay money for are one's that are convenient (making a mess of myself in public is not fun so I want something high performance usually) or something that I intend to use for regression purposes when I have all my other necessities taken care of since the rent comes first and I get enough diapers through medicaid any how.
 
Im sure it differs by state, bu what brands does Medicaid cover for you?
 
Medicaid does NOT pay for adult diapers in all states. I should know, I live in one that doesn't.

What Medicaid will pay for varies GREATLY from state to state in terms of diapers. I heard of one person who receives the new NorthShore Supremes through Medicaid. Where I live, Medicaid will only pay a vendor up to 50 cents per diaper, and only for those up to 21 years old. You can imagine the quality of the diapers that are received because the vendors want to make a few dollars per case, too. It's like wearing a piece of tissue paper...thin, paper backed, and no absorbency whatsoever.
 
BabyJ316 said:
Im sure it differs by state, bu what brands does Medicaid cover for you?

Well the best (and only decent diapers that I know are covered) happens to be tranquility slimline diapers actually. Those are not to be confused with tranquility ATN's fyi. Essentially they are like a ATN minus a lot of the SAP (they only hold 15 oz) which is not a big problem since I can just fix that issue with booster pads that are also covered to make them not leak. Otherwise those diapers are actually average. Most of the diapers Medicaid covers do not even have leak guards while the slimline ones have a average quality leak guard. I can get any combination of 200 diapers and/or booster pads with full coverage for this. Please keep in mind I have to pay $451 for the extra insurance that covers this and it's only worthwhile to me right now because that extra insurance covers for me to see specialist doctors right now for other issues. Essentially I am paying $451 a month to cover $2,000 a month in medical expenses that I otherwise would not be able to afford. There are other plastic backed brands like confidence briefs but most of what they cover are the cloth-like backed kinds that you can get off a store shelf anyways. Most of the time people involved in Medicaid will not tell you that tranquility slimline diapers are covered and in fact some pharmacies will not even order those for you. I just happen to get my diapers from a medical supply store that is extremely nice to me and scoured what Medicaid could cover and orders those diapers for me. Most of the diapers covered by medicaid are something you would expect to find on a store shelf but the tranquility slimline diapers are actually average not great so I greatly appreciate them because they actually get the job done unlike so many other's.

Please keep in mind caitianx that Medicaid might be worth it for you because it covers for a lot more then just diapers. It covers for booster pads as I said above. It also covers for either 150 disposable under pads or 6 reusable under pads as well. Medicaid also covers for most copays for doctors visits of any kind including specialist doctors as well as diabetes testing supplies if your on insulin. I am only pre-diabetic so I can't get coverage for that but all you need is a formal diagnoses of full diabetes and you will be able to get coverage for that. Medicaid also covers for a lot of things beyond this that I probably don't know about. It's possible that what you can get coverage for is going to be different depending on what state you live in.

- - - Updated - - -

AndresMommy said:
Medicaid does NOT pay for adult diapers in all states. I should know, I live in one that doesn't.

What Medicaid will pay for varies GREATLY from state to state in terms of diapers. I heard of one person who receives the new NorthShore Supremes through Medicaid. Where I live, Medicaid will only pay a vendor up to 50 cents per diaper, and only for those up to 21 years old. You can imagine the quality of the diapers that are received because the vendors want to make a few dollars per case, too. It's like wearing a piece of tissue paper...thin, paper backed, and no absorbency whatsoever.

Yes I am not surprised by that. Southern states tend to be the worst place to live if your on public assistance like SSDI or SSI (or Medicare or Medicaid in this case) as far as the U.S is concerned. It's because of the lack of health coverage that most southern states spend more money on healthcare then most other countries. I myself would never need coverage for diapers if I was able to get looked at when I was younger but unfortunately now everyone has to pay that price tag much to my chagrin.

It is possible to get coverage for diapers in Louisiana actually. But let me take a guess the requirements are actually hard to meet correct? This was just something that I found real quick on Google and it looks like you need to be terminally ill to receive coverage for diapers Louisiana correct? Here's a link I found talking about that. http://new.dhh.louisiana.gov/index.cfm/page/334
 
accepted; It is possible to get coverage for diapers in Louisiana actually. But let me take a guess the requirements are actually hard to meet correct? This was just something that I found real quick on Google and it looks like you need to be terminally ill to receive coverage for diapers Louisiana correct? Here's a link I found talking about that. [url said:
http://new.dhh.louisiana.gov/index.cfm/page/334[/url]


The link you provided was to the program that will pay for diapers from birth to 21 years of age. It is stated in the eligibility section. Honestly, I have no idea if diapers are provided to those who are terminally ill. But, in general, they are not provided once someone turns 21. Also, booster pads are not paid for, even under age 21. Disposable underpads are paid for up until age 21, but if you take them, the number of diapers you receive is reduced.
 
AndresMommy said:
The link you provided was to the program that will pay for diapers from birth to 21 years of age. It is stated in the eligibility section. Honestly, I have no idea if diapers are provided to those who are terminally ill. But, in general, they are not provided once someone turns 21. Also, booster pads are not paid for, even under age 21. Disposable underpads are paid for up until age 21, but if you take them, the number of diapers you receive is reduced.


Yeah I thought it was something like that. I just did not have much time to look into it that's all. I knew it had something to do with who is eligible. Louisiana happens to be the the 10th worst state in the U.S as far as social programs go. I'm not surprised by this though that conversation should go to mature topics instead of here so I will not get into detail about it. But caitianx lives in New Hampshire anyways. I did try to find something similiar about New Hampshire but it's possible that caitianx could get coverage for diapers and just not realize it. I know that social workers usually don't inform people on the services they can get because it costs the state money to actually use federal grant money when someone is eligible.
 
Go to HDIS for them and they take Medicaid if you have it because I get 240 a months for me. Sine I wear 24/7 for my IC problem and it big help if you can get Dr script.
 
accepted said:
Yeah I thought it was something like that. I just did not have much time to look into it that's all. I knew it had something to do with who is eligible. Louisiana happens to be the the 10th worst state in the U.S as far as social programs go. I'm not surprised by this though that conversation should go to mature topics instead of here so I will not get into detail about it. But caitianx lives in New Hampshire anyways. I did try to find something similiar about New Hampshire but it's possible that caitianx could get coverage for diapers and just not realize it. I know that social workers usually don't inform people on the services they can get because it costs the state money to actually use federal grant money when someone is eligible.

New Hampshire as a State is well noted for its reluctance to aid its disabled population in any way whatsoever. A disabled person has to practically have to drive up to the State Capitol Building in Concord and get ready to publicly commit suicide on the Capitol Building front steps, before any social services are granted.
 
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