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Thread: Rather annoyed!

  1. #1

    Default Rather annoyed!

    First, see my previous post: http://www.adisc.org/forum/showthread.php?t=74393

    Why am I now annoyed?

    District Nurse arrived today to change my catheter to the latex one..

    After trying one of the latex ones AND THREE of my old silicone ones, she gave up trying to put a new catheter in and asked me to wait until tomorrow for another district nurse to come and fit my last one in stock.

    She also asked me to phone script easy to urgently order more of the latex catheters as I only had one left now.

    Phoned script easy, they said they couldn't send any more out until they received a prescription for outstanding, already received by me, order. They phoned docs surgery and docs told them they posted it on Thursday.

    Docs refused to FAX script easy another prescription, so script easy cannot get me any catheters either tomorrow or even Monday!

    I am getting sick of my docs treating me so badly and docs AND support staff being so damn lazy!

    It took well over a month to sort out ordering a new type of catheter, now I fear it's going to take forever to get new catheters.

    In the meantime, until a district nurse comes out tomorrow and hopefully manages to insert new catheter, I am back to relying solely on Tena Comfort Super Pads!

    *Sigh*

  2. #2

    Default

    I'm sorry you're going through this. I should remember, but I'm guessing you live in the U. K.? After my back surgery in '86, I had to learn how to catheterize myself as I had nerve damage from the tumor which was removed from the nerves in my spine. The hospital taught me how to catheterize myself and set me up with catheters. I also had access to buying some smaller ones at our local LynCare store, a store which deals with such things. They were inexpensive. I bought some smaller diameters, and there was no pain in catheterizing myself. All of this was accomplished in one day.

    I now how traumatic this can be, so you have my sympathy.

  3. #3

    Default

    Vimes,

    four things cross my mind:

    1) have simon go to a med-supply store (or even large pharmacy - they can usually order next day) and have him buy 6-10 of the new catheters for you.
    I know - it's your money being spent - whereas your insurance should cover this.
    But until the insurance shit is sorted, this might be the best option to avoid further stress on the situation.
    You'd be a tad less frustrated and it would work.

    2) Give the pad option another try - I mean as a true alternative to the cath...
    As said before, I think you have had one too many UTI in the last few months .... so maybe giving your body some chance NOT to get another one by the use of a cath would be a welcome option?
    Maybe try different pads (although I myself like the comfort super pads from tena best).
    But different manufacturers' pads = different sizes & shapes... and different kind of leak guards (etc.) - there are the Abri Pads which have HUGE leak guards (just like a diaper) and thus might work better for you.

    3) Change Insurance company. (i don't know where you live ... so this might not be an option)...
    But here in switzerland it's worlds-apart between some of the insurance providers... OK, some are even more freakishly expensive - others are "cheap" (for local standards)... some work like a charm, some bugger about every lil' shit.
    I've had to deal with nasty insurance companies before -some even wanted to "fight" my gvt. sanctioned minimum amount of insurance based support I should get regarding my IC needs.... against the law? yes... but they were trying to bully their way out of having to pay.. then I changend Insurance Company and it's been a different world

    4) Get a medical professional (nurse, etc.) to TEACH SIMON how to change your cath!
    I assume that you can't do it yourself - so you need help.
    I guess if Simon is willing to learn, that would be your BEST option... this way you DO NOT have to rely on the District Nurse to do this for you.
    Also in case it becomes uncomfy, he could remove it or replace it.
    I used to work as a paramedic... I've got some experience with this - but not a LOT.
    But it's NOT difficult AT ALL. You need to make sure it's done "CLEAN" (as sterile as possible...), ... try to create a so called sterile field, work with sterile gloves (or at least normal gloves that you have cleaned after putting on with antibacterial stuff (but better use sterile ones).
    etc... actually it's a LOT easier to do the procedure on a women than on a man.
    I'm not speaking about self-cathing with one time cath. but about placing a foley type cath "yourself".
    There's a good number of IC people who have learned to to this on their own.
    beats going to the doc once every two weeks, or having the district nurse do this.
    And as Always: if it becomes "sore", painful, infected, etc - go and get help.
    But it's a ROUTINE thing, and easy to learn by home-care-taking folks.
    Talk with simon and see how he'd feel about this.

  4. #4

    Default



    Quote Originally Posted by EPO1 View Post
    Vimes,

    four things cross my mind:

    1) have simon go to a med-supply store (or even large pharmacy - they can usually order next day) and have him buy 6-10 of the new catheters for you.
    I know - it's your money being spent - whereas your insurance should cover this.
    But until the insurance shit is sorted, this might be the best option to avoid further stress on the situation.
    You'd be a tad less frustrated and it would work.

    2) Give the pad option another try - I mean as a true alternative to the cath...
    As said before, I think you have had one too many UTI in the last few months .... so maybe giving your body some chance NOT to get another one by the use of a cath would be a welcome option?
    Maybe try different pads (although I myself like the comfort super pads from tena best).
    But different manufacturers' pads = different sizes & shapes... and different kind of leak guards (etc.) - there are the Abri Pads which have HUGE leak guards (just like a diaper) and thus might work better for you.

    3) Change Insurance company. (i don't know where you live ... so this might not be an option)...
    But here in switzerland it's worlds-apart between some of the insurance providers... OK, some are even more freakishly expensive - others are "cheap" (for local standards)... some work like a charm, some bugger about every lil' shit.
    I've had to deal with nasty insurance companies before -some even wanted to "fight" my gvt. sanctioned minimum amount of insurance based support I should get regarding my IC needs.... against the law? yes... but they were trying to bully their way out of having to pay.. then I changend Insurance Company and it's been a different world

    4) Get a medical professional (nurse, etc.) to TEACH SIMON how to change your cath!
    I assume that you can't do it yourself - so you need help.
    I guess if Simon is willing to learn, that would be your BEST option... this way you DO NOT have to rely on the District Nurse to do this for you.
    Also in case it becomes uncomfy, he could remove it or replace it.
    I used to work as a paramedic... I've got some experience with this - but not a LOT.
    But it's NOT difficult AT ALL. You need to make sure it's done "CLEAN" (as sterile as possible...), ... try to create a so called sterile field, work with sterile gloves (or at least normal gloves that you have cleaned after putting on with antibacterial stuff (but better use sterile ones).
    etc... actually it's a LOT easier to do the procedure on a women than on a man.
    I'm not speaking about self-cathing with one time cath. but about placing a foley type cath "yourself".
    There's a good number of IC people who have learned to to this on their own.
    beats going to the doc once every two weeks, or having the district nurse do this.
    And as Always: if it becomes "sore", painful, infected, etc - go and get help.
    But it's a ROUTINE thing, and easy to learn by home-care-taking folks.
    Talk with simon and see how he'd feel about this.
    Hi,

    1. My chemist cannot order catheters or incontinence equipment. It is all dealt with by scripteasy and the continence service.

    2. Not an option, my bladder only empties when it's stupidly full (800ml+) and then it gushes so fast, nothing would have time to soak it up. There's also the issue with retention, main reason for having catheter fitted was to provide continual draining, to allow the bladder to shrink down to "normal size" again and to prevent the urine tracking back to my kidneys.

    3. N/a (in Uk)

    4. There isn't an issue with district nurses dealing with me, the issue is with that one nurse not being able to fit it and then with script easy not being able to send more out until they received the prescription for the first lot they sent.

    Doesn't matter now as latex catheter has been fitted :-)

  5. #5

    Default



    Quote Originally Posted by CaptainVimes View Post
    Hi,

    1. My chemist cannot order catheters or incontinence equipment. It is all dealt with by scripteasy and the continence service.

    2. Not an option, my bladder only empties when it's stupidly full (800ml+) and then it gushes so fast, nothing would have time to soak it up. There's also the issue with retention, main reason for having catheter fitted was to provide continual draining, to allow the bladder to shrink down to "normal size" again and to prevent the urine tracking back to my kidneys.

    3. N/a (in Uk)

    4. There isn't an issue with district nurses dealing with me, the issue is with that one nurse not being able to fit it and then with script easy not being able to send more out until they received the prescription for the first lot they sent.

    Doesn't matter now as latex catheter has been fitted :-)
    I know in the states that most medical supply stores require a prescription. But online, I've been able to get them without a prescription.maybe you can try purchasing online instead and not have to go through a bunch of steps to get some.

  6. #6

    Default



    Quote Originally Posted by EPO1 View Post
    beats going to the doc once every two weeks, or having the district nurse do this.
    My catheters are changed every 12 weeks ;-)

  7. #7

    Default



    Quote Originally Posted by CaptainVimes View Post
    My catheters are changed every 12 weeks ;-)
    Wow that seems like a long time between changes.

  8. #8

    Default



    Quote Originally Posted by CaptainVimes View Post
    My catheters are changed every 12 weeks ;-)
    12 Weeks? 1 Cath?
    Seriously?

    I might not be "up to date" with the latest innovations about catheters... but by any stretch 12 weeks (3 Month) sounds like a far too long time!
    to be honest I have NEVER before heard of anyone keeping a foley-type indwelling transurethral catheter in for such a long time.
    The "usual" schedule is 4 weeks, but should be individualized to a patients need - especially if the person is prone to get UTIs, encrustation of the Cath, etc... then more frequent changes (2 Weeks usually) are a LOT better.

    Vimes - guessing that your health is IMPORTANT TO YOU - do SOMETHING about that 3 month thing.
    Unless I'm entirely misinformed about modern catheters (but I doubt so much has changed in the past five years) - 3 month is a risky business.


    About ordering catheters: if you know (which you should) brand, size, etc... then you easily can order them (often cheaper) over the internet.
    Back when I had to do some home caregiving to a family member we bought them over the net.
    Why? expenses. the Insurance company only would cover a certain amount per year/month and the best catheters would have been overly expensive (same for the good bags). so we ordered them online after having gotten hold of brand/type infos.
    Saved us a lot of money - and allowed for more frequent changes without straining the budget.

  9. #9

    Default

    Vimes, here in the UK we're able to choose who we go to for help when we get unwell. If you're unhappy with your surgery then you need to get on the books for another one. It shouldn't change any specialists you see, but will hopefully make your day to day care a bit better.

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