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Thread: Question about Urologists Appt

  1. #1

    Default Question about Urologists Appt

    Okay, so I went to the urologist about two months ago due to sporadic bouts of incontinence (both daytime and nighttime, to the point where it would happen once or twice a day) and they scheduled me for a follow up appt after doing a few tests and talking about whats going on. He initially said I have from my explanation what appears to be Urge Incontinence, as it hits me at random times and I have a small window to actually find a bathroom before wetting myself, with some Stress Incontinence.

    He ended up putting a camera up my urethra (cystoscopy, right?) on the second visit (not the most pleasant experience) and for about the next 4 days I had somewhat constant leakage (I was already diapering myself on a daily basis out of fear of wetting) where I would find my diaper wet by itself and couldn't really 'clamp' the muscle shut. This, along with the soreness that I was told to expect, made those 4 days rather unenjoyable.

    Is this normal that I would have a few days of no control after the cystoscopy? Has this happened to anyone else? Should I be worried that this would cause permanent damage?

    I've been reading online that some have experienced this, but there wasn't that much info on this and I didn't find more than a handful of accounts. I'm scheduled to go back into the Urologist's shortly, and will talk to him about it then, but can't get my mind off of it.

    As of now, they haven't found any physical signs as to what's causing this, so I'm assuming it must me a mental thing then? Is this common that its 'in your head' and if so, how do other people treat something like this?

  2. #2

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    I have had the camera up in me a few times in the last four years. Since I don't really have much feeling down there it wasn't painful for me. I didn't leak any after the procedure. You could be developing a weak sphincter and by putting the camera up there could have caused it to weaken a little more causing you to leak easier.

    Make sure you talk to your urologist about all the things that is happening to you down there. Lots of them just want to give it some name just to make it sound like they know what the are doing and try to fix you. Failure to a urologist is not an option they take lightly. Wait to see some of the other programs a treatments some of them like to do. They have did at least 3 bladder procedures where the put catheter in both ends and fill the bladder to see what it can hold or not hold. Two of them I had to stand in such a way they were able to take xray's of what was going on down there. I have also went and had surgery allowing them to inject Botox into my bladder to see if it would stop my problems and guess what it didn't.
    So diapers is the best thing I have to manage my bladder problems. I can honestly tell you that many doctors feels that diapers is a sign of failure but I find it a sign of self worth and control.

    Take if from someone that has to wear 24/7 it's not as bad as you think. Once I have found the right diaper to wear, I am living a quility of life that many others don't. My urologist whas shocked and told me that most people fighting my type of bladder loss and other medical problems would have given up on life and would live off of welfare and quit work. I told him that just because I ahve to wear diapers, I am not going to stop living. So what that I have to change my underwear more than others. My diapers are my underwear and if I am ever in an accident, I don't have to worry about clean underwear. lol

  3. #3

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    checkingoutitall... man that was said very well! The fluid test is to see how much liquid your bladder can hold before it gets the signal to expel. The cystoscopy -yep you was right- can def make you go more then usual after. Sorta like it 'cleans the pipes' for a few days. If you are already incon then I guess you might be wetting more because the urethra is widened and or the bladder is still iritated and spasming. Just a thought.

  4. #4

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    When I was having my testicular pain, I made the mistake of having a diaper on the first time I went in to see a urologist for it. He ignored me about the pain that I told him was destroying my life--the pain was putting my cluster headaches to shame and those headaches have driven people to suicide before. Why did the urologist ignore me like this? Because he felt it more appropriate to get me out of diapers.

    When I went to the next urologist, I avoided wearing a diaper to my appointments, risking accidents over and above having my complaint ignored. I went through urodynamics studies, cystoscopies, and too many prostate checks to count (I'm surprised I'm not bowel incontinent after the total number of prostate checks I had!!!). I had X-rays done while voiding and standing with contrast, I had MRI's, I had ultrasounds, I had too many tests to friggin' count. Blood, urine, it's probably easier to remember what they didn't test!

    In the end, they found nothing wrong with my testicles to cause me the pain I was having. But at the same time, they found nothing physically malformed or wrong with my bladder, though they were able to see with a lot of the tests that it is not functioning right. The urodynamics study looked like I had a stricture, but there was none. Throw in there the higher number of UTI's I get and there are big questions about why things don't work right. About all that could be said is neurological incontinence--it's something either with my nerves or my brain.

    So the net result in the end? I do the same thing as checkingoutall. I decide that I can still live life even though I need a diaper on. I can be active and happy. It isn't the end of the world. I lost my testicles because of the pain--it didn't end my sex life. Diapers don't end my regular active life, though if you go by the attitude of the urologists it sure seems like it.

  5. #5

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    I have had exactly the same problem when I've had cystoscopies.

    When I first started wetting the bed again, I went to a urologist. He did a cystoscopy and a volume test. He used an anesthetic, but it still hurt like hell. He also told me I would probably be more or less incontinent for a few hours at least, and had the nurse give me a pair of pullups. He was right; everything just flowed right out for several hours.

    I get a cystoscopy once a year, and am always incontinent afterward. It's the only time I'm incontinent when awake.

  6. #6

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    Thanks for the responses... I guess it just shocked me, because it seemed like it made me *more* incontinent when trying to figure out what's going on or whatever, but I guess you sometimes have to go down before you go up, or whatever that saying is...

    Yeah, I'm seeing diapers as a likely solution to this problem for now, just because as I understand, any medications they would put me on could very well harm me more than cure me, considering other meds I'm on - and surgery, even with insurance, would still cost me more than I could probably afford, so I don't know what I could do there... especially as mentioned by checkingoutall that its not guarenteed to fix things... surgery isn't like buying a TV where if it doesn't work you can take it back... but so goes one of the joys of living in the states I guess, with more love for insurance companies than the patients.

  7. #7

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    I would rather live here in the US than many other countries. Insurance, while being heavily maligned, is not the evil portrayed by the socialists and media. We have by far some of the best health care in the world with a surprisingly low tax rate to accompany it. But I would rather not get off on the political slant of how we are getting screwed more by tort laws than insurance companies who just play CYA.

    As for what you may get from meds and/or surgery, you are correct: YMMV (Your Mileage May Vary). Everybody is different and responds individually to medication differently and surgery is not any guarantee of results. When I spoke to a gentleman who was a doctor that had spanned many decades of experience, he said about the only two things he ever had any faith in things being right is when he set a broken bone or delivered a baby.

  8. #8

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    I'll resist the whole political debate though my whole being wants so badly to jump into it.

    I live and work full-time in Los Angeles, along with side jobs at night too. Not a cheap place to live. I don't go out often, I spend barely anything on myself (went to one move in the past year), I'm still paying HUGE amounts of student loans, and with that said, I have to pay for diapers on top of that now, which we all know is not cheap.

    My complaint with my healthcare (which I'm lucky to even get while working at a startup company) is simply that it covers only a portion of what might be needed and therefore, I'm either forced to go into further debt (which I've been digging myself out of since I got out here a few years ago), or just not have the surgery. I understand that our health care providers are some of the better ones in the world, but what good is that if a person can't afford it without going much further into debt... and on top of that, its not guaranteed to work. I believe there should be a safety net because of things like that, but of course that gets into the whole political side again.

    I just don't see the logic in having to choose massive debt or health.

  9. #9

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    Quote Originally Posted by BloodyElle View Post
    I'll resist the whole political debate though my whole being wants so badly to jump into it.

    I live and work full-time in Los Angeles, along with side jobs at night too. Not a cheap place to live. I don't go out often, I spend barely anything on myself (went to one move in the past year), I'm still paying HUGE amounts of student loans, and with that said, I have to pay for diapers on top of that now, which we all know is not cheap.

    My complaint with my healthcare (which I'm lucky to even get while working at a startup company) is simply that it covers only a portion of what might be needed and therefore, I'm either forced to go into further debt (which I've been digging myself out of since I got out here a few years ago), or just not have the surgery. I understand that our health care providers are some of the better ones in the world, but what good is that if a person can't afford it without going much further into debt... and on top of that, its not guaranteed to work. I believe there should be a safety net because of things like that, but of course that gets into the whole political side again.

    I just don't see the logic in having to choose massive debt or health.
    I live in Silicon Valley. If you want to talk about expensive, this place beats Los Angeles. I am the sole wage earner supporting my family of five here, with one child in college and one in private school. I can understand your financial frustration. I too graduated college with student loans and had been in diapers all my life with no doctor either trying to figure it out ("you'll outgrow the problem") or able to figure it out ("we can do exploratory surgery to see if we can find anything!?!").

    While in college I paid fully ONE-THIRD of my monthly income on health insurance premiums and deductibles. One-third was rent, and the rest covered every other monthly bill we had. Not cheap.

    Political bit under here:


    By the way, the company I work for self-funds its health insurance: a provider such as Blue Cross is used to get lower costs and for administration of claims (Blue Cross gets paid a nominal yearly fee). Any claim that comes in, however, is paid straight from the company coffers, up to a certain dollar amount (I think it is either $50k or $100k) at which point we have a special insurance plan to cover that. This covers both medical and dental insurance here where I work. Talk about paying your own bills!

  10. #10

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    AnalogRTO, I hope I didn't come off sounding like I'm the only one who's struggling financially with this thing. I know it is unfortunately the way it goes for a lot of things and I can complain all I want about this country but its not going to change anything. I just see it as the moment surgery of any kind is looked at as a profitable commodity in society, i.e. ones where doctors/hospitals can pick and choose which insurances to accept, etc based on rates and therefore instituting a competitive profit structure, it sort of 'cheapens' healthcare as a profession to do good, and makes the concept of good health more accessible to those who have money, rather than everyone. I guess I just don't belong in the country because I see that as a human right, more so than public education, though I would never trade off education for healthcare. It's sad that a person can get into so much financial trouble just because they get sick or injured, and can spend the rest of their life trying to get out of debt just because a doctor assumed they needed surgery (and I'm sure some doctors out there push it even though its not necessary just for extra profit).

    I know its naive to think that government is here to provide a utopian structure for us all to live under as we work our lives away for the society, as they are a business too. It just gets hard when you get down to the personal level and actually have to make the decision of do I avoid surgery because of finances, or do I sell my dog/computer/car/whatever just to make the ends meet and possibly have a chance at getting better post surgery after missing weeks of work with little to no pay. It hasn't been that drastic for me yet, but it could get to that point easily if things keep adding up.

    Enough of the lamenting. No way to solve problems with my complaints, unfortunately.

    Anyway, thanks for the reply!

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