Bowel problems

I have been bladder incontinent to some degree all my life. but lately due to spinal problems and nerve damgeI have become totally bladder incontinent and have also had some bowel accidents. My continence nurse wants me to try an irrigation system ( https://www.coloplast.co.uk/peristeen-anal-irrigation-system-en-gb.aspx ) to see if it helps. However I was sexually abused by both my parents and I have an irrational fear about anything being placed in my back passage. So does anyone use this system or has used it in the past. If so any information or re-assurance would be gratefully received.
Thanks

I have needed enemas before, and have alsways insisted on doing it myself. This way I could maintain complete control/privacy and go as slow as I wanted. Also, I found the insertion tube is decently small enough. With the lube I never felt too much discomfort, and certainly no pain.

PCBaby,

Like you, I have spinal problems and nerve damage. I am medically double-incontinent and use daily morning enemas to control my bowel incontinence. These are old-fashioned soapsuds enemas administered from a hanging red rubber enema bag. This is with the approval of my gastroenterologist (who did my colonoscopy) and colorectal surgeon. It is very effective and I now rarely have a bowel accident. I have self-administered more than 4,200 enemas so I have some experience with this subject.

As I have damage to the nerves of my rectum and anal sphincters from an old accident, I can leak during enemas, particularly during cramps. Therefore I use a soft retention nozzle that also serves as an anal plug to reduce straining and allow retention. The nozzle came from Siliconnozzles.com.

You did not indicate whether you are disabled. The Peristeen system primarily is intended for those who are disabled and must take an enema while seated on the toilet. The system is designed to aid in taking the enema and retaining the enema solution by preventing the enema nozzle (with the inflated cuff) from slipping out of the rectum. Be aware that it is very expensive on a monthly basis and not covered by most health insurance providers.

On the other hand, you might try what I will call "enema lite." I mean a traditional gravity flow bag but with only 1 ½ quarts of warm saline tap water (no soap). It is best to take the enema not on the toilet (why fight gravity?). Try lying down on your left side or in a knee-chest position. Try that without any soap and see whether it works for you.

If you are not disabled you should ask your continence nurse about taking ordinary enemas, rather than the Peristeen system.

Feel free to send me a PM for more details.

--John

Hi John, thanks for the info. I'm UK based so the Continence service will cover all my needs for free. I am disabled. I have severe spinal osteoporosis with fractures at L1, 2 and 3, I also have a congenital stenosis extending down into the sacrum as well as severe stenosis at L4 and 5. I also have diabetic neuropathy.

PCBaby said:

I have been bladder incontinent to some degree all my life. but lately due to spinal problems and nerve damgeI have become totally bladder incontinent and have also had some bowel accidents. My continence nurse wants me to try an irrigation system ( https://www.coloplast.co.uk/peristeen-anal-irrigation-system-en-gb.aspx ) to see if it helps. However I was sexually abused by both my parents and I have an irrational fear about anything being placed in my back passage. So does anyone use this system or has used it in the past. If so any information or re-assurance would be gratefully received.
Thanks

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Hello my deary,

I wanted to reply to this post because I am in such a similar situation to you, as a teen I was gang raped in all orifices possible, and then the ex abused me repeatedly, he made me do things to myself too, so now - not only do I have a morbid fear of someone touching me in my "undercarriage", I am also petrified of touching it myself. (both front and back, bottoms)

I developed bladder and bowel incontinence over time, the bladder went first, then the bowels went too. Every time I soiled myself I had to endure being washed in the shower in that area, back then I thought that was bad enough.

We went to the joint continence clinic that was available in my hospital, and they suggested many solutions, and most of them were not suitable for me - irrigation I refused point blank.

I am that sensitive to all things butt related, that they were not able to properly examine me, without giving me advanced notice so I could try and prepare myself. No matter how much I prepared myself, I ended up very very upset just from them examining me. Not just during the exam, but for weeks afterwards.

The testing that they did down there, still haunts me today, and this was 3 years ago now.

Their last suggestion to help with me going out, was to take lots of immodium to constipate me, then to take a suppository when I got home. Simon tried once, with me in tears whilst he was doing it - he was incredibly gentle and tried to make me laugh as he knows that's my coping mechanism - but this time it did not work. I am not sure how far he managed to get the suppository to go in, but the instant sensation of it being there was way too much for me, so I went to the loo as fast as I possibly could, to try and expel it.

We went back to the consultant and the ONLY idea he had left, was to operate and give me a colostomy, as I was also losing the ability to poop normally. (nerve damage meant I could not push out a poop) I snapped up this chance, because it was the ONLY option that left my butt well alone.

However, the problem I have now is mucus in my still attached back passage and small section of bowel. When I first had it done, it would leak whenever it wanted and ye gads did it stink. So they started looking for solutions to help me with that.

Cut forward to my very recent consultation - they had one idea left (again) which was to basically "plug me" (a medical butt plug) I knew as soon as they suggested it that this was NOT going to be a possibility even if they placed it in whilst I was sedated. My panic was, what if I could feel it, what if it hurt whilst in there, what it I wanted it removing immediately and they could not get me in for a month or more. This completely scared me off it, so I apologised and stated that it was not an option for me.

We were referred to another colorectal nurse specialist, and she just told me to poop whatever it was in my back passage, out. But now I'm not connected, my body cannot tell the lower part of the colon to void itself, not that it could before the stoma, due to nerve loss.

So yeah, I am now in the situation where they are desperately trying to find me a solution, without actually touching my bum.

I THOUGHT that a "Barbie Butt" was the solution, but when we heard that there was a mortality rate, Simon immediately (my wonderful fiance and full time carer) said I absolutely cannot do it. He wasn't willing to lose me just because of a problem I was having. So that was an immediate no no. (I didn't understand why it was such a major operation, so I googled. Basically they cut all the remaining out, and fill it with plastic surgery style materials and hope it all heals nicely. Some patients have taken two plus years to heal, some patients have never healed, and some patients have died from various complications in healing (mainly infection and sepsis) (it is called Barbie Butt because of the amount of plastic surgery used)

So yeah.. that is my story in a very large nutshell.

Now, why have I been so very open and honest and so very candid with you?

I wanted you to see that I have also had a lot of trauma in my past, which has made me morbidly scared of ANYONE going near my butt, even myself.

So, do I think emotionally, you should try it? Hell no! However, you may be immensely stronger than me, you might be able to bring yourself to cope with it. I hope you can, if it helps you.. but if I base it on my own experience, I'd say don't even try it.

Especially if you do not have the pleasure of having someone around 24/7 (not just when doing it, but before to help you prepare, and afterwards to help you cope) that is a rock and that can help you through the emotional turmoil and the fear.

If you would like to discuss this matter further with me, in private - you are more than welcome to do so.

Whatever you decide, I hope it is right for you, and that everything goes swimmingly. (no pun intended)

Best wishes x

thank you for being so open Nanny, it is appreciated.

I am in the good old USA other wise known as hell, i am disabled in a power chair all peristeen is :basicly a small baloon retention nozzle thats disposable, with a reservoir for tap water and a pump ,you could buy aquarium supplies and make one, with a reusable sillicon nozzle , here in the USA Those disposable baloon nozzles would at last check over the winter cost $3000 a month out of pocket .
Then again today the house passed on party lines the bullshit american healthcare act that they couldnt pass before earlier, so unless the senate acts more resposably ,PRE EXISTING conditions will exclude you from health care (pregnacy , even acne will once again keep you from being insured ), they also have killed CHIP cut back medicaid( it will no longer cover ambulances èmergency room visits or prescription drugs to the point that it will be useless for anything and cut funding so severly to Medicare( which we pay into our entire lives ) that it will become unsustainable.
If you have insurance and are considered high risk ,your copay per year will be over $26,000 if you are elderly 50 or over it will be an additional $13,000 all so we can give more tax cuts to the 1% of billionaires, 99 % of the country will be 1 medical emergency away from bankruptcy and losing everything,the disabled like us young children and the elderly will start dying of rapidly, i am diabetic insulin (a hormone first made over 100 years ago ,never patented or trademarked by anyone costs $1100 per month doesn't make sense) ,economists are warning that this country will plunge into the next great deppresion in October as the goverment needs funding and the treasury has to find a country that is sucker enough to buy almost 2.3 trillion dollars of IOU because the treasury has no money because the 1 % got it back ,(The intrest on that will be 20 billion dollars a day ) they are predicting very immediate financial emergency being touched off and the dominoes will start falling and of course no politician that voted for this stands a chance of surviving a public encounter , this country is going to come unglued ,civility has been destroyed by the foul mouthed fool ,America is the only country that in its history has not had a coup ,we are fast organizing to throw one ,my advice tell your friends don't come to America, which is joke considering the tourism industry is having a "trump slump" revenue is down 73 billion in the last 2 years ,so most people all ready aren't coming here ! Sorry my blood is boiling at how horrific this country has become. Do too a bumbling fool and his swallowers in the GOP ,who swore to destroy these programs back in the 30's when they enacted the same stupid policies it didn't work then it's not working now .

Sent from my SM-T810 using Tapatalk

Tetra said:

I am in the good old USA other wise known as hell, i am disabled in a power chair all peristeen is :basicly a small baloon retention nozzle thats disposable, with a reservoir for tap water and a pump ,you could buy aquarium supplies and make one, with a reusable sillicon nozzle , here in the USA Those disposable baloon nozzles would at last check over the winter cost $3000 a month out of pocket .
Then again today the house passed on party lines the bullshit american healthcare act that they couldnt pass before earlier, so unless the senate acts more resposably ,PRE EXISTING conditions will exclude you from health care (pregnacy , even acne will once again keep you from being insured ), they also have killed CHIP cut back medicaid( it will no longer cover ambulances èmergency room visits or prescription drugs to the point that it will be useless for anything and cut funding so severly to Medicare( which we pay into our entire lives ) that it will become unsustainable.
If you have insurance and are considered high risk ,your copay per year will be over $26,000 if you are elderly 50 or over it will be an additional $13,000 all so we can give more tax cuts to the 1% of billionaires, 99 % of the country will be 1 medical emergency away from bankruptcy and losing everything,the disabled like us young children and the elderly will start dying of rapidly, i am diabetic insulin (a hormone first made over 100 years ago ,never patented or trademarked by anyone costs $1100 per month doesn't make sense) ,economists are warning that this country will plunge into the next great deppresion in October as the goverment needs funding and the treasury has to find a country that is sucker enough to buy almost 2.3 trillion dollars of IOU because the treasury has no money because the 1 % got it back ,(The intrest on that will be 20 billion dollars a day ) they are predicting very immediate financial emergency being touched off and the dominoes will start falling and of course no politician that voted for this stands a chance of surviving a public encounter , this country is going to come unglued ,civility has been destroyed by the foul mouthed fool ,America is the only country that in its history has not had a coup ,we are fast organizing to throw one ,my advice tell your friends don't come to America, which is joke considering the tourism industry is having a "trump slump" revenue is down 73 billion in the last 2 years ,so most people all ready aren't coming here ! Sorry my blood is boiling at how horrific this country has become. Do too a bumbling fool and his swallowers in the GOP ,who swore to destroy these programs back in the 30's when they enacted the same stupid policies it didn't work then it's not working now .

Sent from my SM-T810 using Tapatalk

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Well, "good" new for you. Drumpf is making temporary insurance that does not meet the minimum requirements available for up to 3 years now! https://www.nytimes.com/2018/08/01/us/politics/trump-short-term-health-insurance.html

Though on that note, the CBP is already on record saying everyone's premiums will go up thanks to this.