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- Incontinent
Hi guys
I had to make an awkward phone call earlier this week to my incontinence supplier, which is provided by the NHS in the UK. Normally I just reorder my usual supplies every three months online, but this time I had to change the order to something thicker.
The basic rule is that they can provide me with three nappies per day. I've been using two Tena Flex Pluses in the day and then a Tena Slip Maxi for evening/night wear. However, I've been using up to four Flex Plus in the day, and I've realised that I need thicker padding to stay dry. As such, I've now ordered Tena Flex Super instead.
I'm normally relaxed about my incontinence and this should be a routine issue, but this morning I've been wrestling with a number of emotions. I'm feeling disappointed that my control problems are continuing to get worse, even with taking medication and using the toilet when possible. If this continues at this pace, I'll be lucky if I don't end up in taped diapers 24/7 with zero control before I'm 30.
I should point out my control issues are caused by a neurological illness which I developed in my teens and also left me in chronic nerve pain and unable to walk very far, so I know I shouldn't be too harsh on myself, but I do value what control I do have and to see it being taken away from me bit by bit is scary for me. What's worse is that no-one is able to help me give advice, as this illness is rare and incontinence is not a common symptom of it. It's taken me ten and a half years to get a diagnosis over why my control was worsening and they've already said there's nothing they can do, except wear thicker nappies or use a catheter. That gives you an idea of how unknown this is.
Honestly, I don't know why this is a issue for me, but it is. I've spent enough years mourning what I have lost and I was becoming more confident and secure about my condition, and now this happens. I think it's because I'm afraid of being rejected because of my nappies but considering I need a wheelchair too, you would think adjusting to wearing nappies much more easily by comparison. It also helps that most people are quite accepting of wearing nappies if you're visibly disabled.
I just need to relax and trust my nappies to keep me dry. This really isn't a big deal unless you make it one. Compared to other things I've faced it's not much, even if it becomes full-blown double incontinence. But I've now realised that I've worn nappies my whole adult life, and I'm now going to be in them for the rest of my life too. And I'm finding that hard to deal with.
Breathe Deep, Seek Peace
Dinotopian2002
I had to make an awkward phone call earlier this week to my incontinence supplier, which is provided by the NHS in the UK. Normally I just reorder my usual supplies every three months online, but this time I had to change the order to something thicker.
The basic rule is that they can provide me with three nappies per day. I've been using two Tena Flex Pluses in the day and then a Tena Slip Maxi for evening/night wear. However, I've been using up to four Flex Plus in the day, and I've realised that I need thicker padding to stay dry. As such, I've now ordered Tena Flex Super instead.
I'm normally relaxed about my incontinence and this should be a routine issue, but this morning I've been wrestling with a number of emotions. I'm feeling disappointed that my control problems are continuing to get worse, even with taking medication and using the toilet when possible. If this continues at this pace, I'll be lucky if I don't end up in taped diapers 24/7 with zero control before I'm 30.
I should point out my control issues are caused by a neurological illness which I developed in my teens and also left me in chronic nerve pain and unable to walk very far, so I know I shouldn't be too harsh on myself, but I do value what control I do have and to see it being taken away from me bit by bit is scary for me. What's worse is that no-one is able to help me give advice, as this illness is rare and incontinence is not a common symptom of it. It's taken me ten and a half years to get a diagnosis over why my control was worsening and they've already said there's nothing they can do, except wear thicker nappies or use a catheter. That gives you an idea of how unknown this is.
Honestly, I don't know why this is a issue for me, but it is. I've spent enough years mourning what I have lost and I was becoming more confident and secure about my condition, and now this happens. I think it's because I'm afraid of being rejected because of my nappies but considering I need a wheelchair too, you would think adjusting to wearing nappies much more easily by comparison. It also helps that most people are quite accepting of wearing nappies if you're visibly disabled.
I just need to relax and trust my nappies to keep me dry. This really isn't a big deal unless you make it one. Compared to other things I've faced it's not much, even if it becomes full-blown double incontinence. But I've now realised that I've worn nappies my whole adult life, and I'm now going to be in them for the rest of my life too. And I'm finding that hard to deal with.
Breathe Deep, Seek Peace
Dinotopian2002