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Thread: time before Urgency appears and uncontrolable release.

  1. #1

    Default time before Urgency appears and uncontrolable release.

    My severe urgency is not regular at all. I can be fine one minute and the next ready to soil my diaper at a moments notice. Sometimes I can last for up to 5 minutes but most of the time not.I've been burned before thinking I had more time only to have a surprise BM when I least expect it. It's safer for me to just wait until release is iminent and just let go. Otherwise it's just to uncomfortable. I use a bulk producing fiber supplement (psyllium/ Metamucil) to keep stool firm otherewise I end up with loose stool (disgusting and really uncomfortable). My question is for those that sometimes get notice. Do you wait it out and just go in your diaper or do you try to hold it. If it wasn't so uncomfortable I would try to hold it but my failure rate is much too high and to be honest, the relief I feel is not unpleasant.

  2. #2

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    I have urinary problems and while it isn't true incontinence, generally if I am going to be more than about 3-5 minutes from a known restroom I wear some type of urinary protection. I feel you are doing all you can to minimize your problem, as we all do. After all, better safe than sorry, and if you will forgive the pun, like the lightening bug said, "when you gotta glow, you gotta glow"! Being confident around others will go a long way as they will see you as being in control, and probably never notice, unless of course an odor is involved. Proper diaper sizing though and a good pair of PUL type covers will go a long way on keeping down the odor aspect.

  3. #3

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    With a 10 second notice (only urinary) I let go. Try however to go every 1-2 hours to the toilet even if I don't feel anything.

  4. #4

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    Usually I have no feeling of needing to pee until it is too late . Sometimes I feel the need but have only seconds to do something about it. I just use my nappy most of the time it is just so much easier.

  5. #5

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    Quote Originally Posted by ST50 View Post
    Usually I have no feeling of needing to pee until it is too late . Sometimes I feel the need but have only seconds to do something about it. I just use my nappy most of the time it is just so much easier.
    Yes, nearly the same for me. How quickly did that happened for you?


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  6. #6

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    Don't forget, severe urgency doesn't always mean you will have an uncontrollable release. If your sphincter muscle is strong enough then it most certainly can overpower your bladder muscles.

    For decades I would get an urge, and if I didn't manage to pee within about 30 seconds my urge would just get more painful. A minute and the pain was intense. It finally got to a point where I couldn't do anything, including focus my vision, until I managed to strain hard enough to finally get a weak stream.

    I underwent SEVEN surgeries to try and cut out both my external and internal sphincters so I wouldn't have to strain so hard. Sadly those surgeries failed and I now have a stricture which has me 100% blocked off no matter how hard I strain.

    Count yourself lucky if you pee uncontrollably, or have an automatic relase. And especially if you can't even feel when you pee. Not being able to pee when you need to is so much more worse.

  7. #7

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    Thanks Slomo for the details. I could myself blessed then! Actually if I busy and I donít have access to toilet, the release is automatic, thatís kind of convienant. Max I ask how you manage to relieve yourself if it is blocked?


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  8. #8

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    Quote Originally Posted by joelvc View Post
    Thanks Slomo for the details. I could myself blessed then! Actually if I busy and I donít have access to toilet, the release is automatic, thatís kind of convienant. Max I ask how you manage to relieve yourself if it is blocked?


    Sent from my iPhone using Tapatalk
    About two months ago I went to the ER, and they stabbed a knife through my abdomen and into my bladder (and yes it hurt like you'd think). They then stuck in an emergency suprapubic catheter in that new hole. This allowes my bladder to drain without my actually peeing. (Which as they say I needed about as much as another hole in my body).

    Unfortunately, about a month and a half ago, that catheter disloged from my bladder, and I went back to the ER. They redirected me to the OR, where they were able to cut open the stab wound more, and put in a more proper folley type catheter.

    It's been changed out once, along with a cystoscopy via my abdomen- which hurt even more. I have another change out comming up, and they will also do an xray flow test (from both sides) to better see the blockage position and length.

    In about a month and half I will be undergoing a full urethroplasty reconstruction. NOT looking forward to it, but not much choice otherwise.

    Why the wait though? It turns out there's a general three month wait after a surgery before for any person can have another surgery performed. Half because of the anistetics wreaking havoc on your system, the other half is for enough of a recovery from the last surgery before making you recover more once again.

  9. #9

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    Slomo,
    Thanks so much for the information. Wow, that's quite an ordeal!
    Wishing you a good operations and some progress.

  10. #10

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    It started about 6 years ago and got more frequent over the next year. I have been diagnosed as having diabetic neuropathy and this is not curable. I will be in nappies for the rest of my life.

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