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Thread: What I called "mobility issues"

  1. #1

    Default What I called "mobility issues"

    Hey, it's Mia

    I have already talked about this with some people but I think I'm okay with sharing this, a recent post wanted to know why I take a long time to change and the thought came across that it's okay to share this with everyone.
    I usually don't like the feeling of talking about this as a public post, but here it goes.

    what happened was when I was small I got a bacterial infection and it got really bad and long story short I went into sepsis. Both my legs were amputated above the knee..... The doctors did all they could to keep me alive so at least I came through that episode. That's also how I became incontinent because of a lot of tissue damage in that area. I mean I don't remember much myself but it was a mess down there and I went through multiple surgeries to minimize some of the damage.
    Going for further surgery is quite a risk for me since my last surgery to have a artificial sphinctor to control my bowels failed and went sideways.... It's part of the reason why I haven't been able to get a colostomy yet. Not sure if I ever can..... Anyway I just wanted to share this with everyone.

    I'm okay with any question but really I prefer everyone to be cool about it..... Physically I'm okay now and other than the incontinence and the mobility issues I'm okay physically.

  2. #2

    Default

    No one on here will judge you (I know I will not). We are all damaged in some way, shape or form (physically and/or emotionally). Do you think a colostomy will be easier to deal with? I know a family member who had one and it was hard on him.

  3. #3

    Default

    Wow, that sounds like quite an ordeal. Sepsis can be deadly. I think I would have an even harder time adjusting to the lack of legs than dealing with incontinence. Do you use prosthetics to walk? Did the infection affect anything else like your reproductive system too?

  4. #4

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    Quote Originally Posted by Spaz View Post
    No one on here will judge you (I know I will not). We are all damaged in some way, shape or form (physically and/or emotionally). Do you think a colostomy will be easier to deal with? I know a family member who had one and it was hard on him.
    Thanks.
    Cleaning up and changing is quite tedious for me at the moment. When I'm home it's pretty straight forward because everything is adapted to make it easy for me. But when I'm outside it takes a really long time as I've mentioned before.... Handicap toilets are a lot easier but nothing compared to home...I feel like a colostomy would make it easier for me but of coarse there's both pro's and cons to it. The doctor isn't as optimistic about a colostomy surgery as I am. It's risky especially for me so I'm not even sure whether it'll ever happen.

  5. #5

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    Quote Originally Posted by INTrePid View Post
    Wow, that sounds like quite an ordeal. Sepsis can be deadly. I think I would have an even harder time adjusting to the lack of legs than dealing with incontinence. Do you use prosthetics to walk? Did the infection affect anything else like your reproductive system too?
    Yeah.... Anyway I had tons of support from family.....I wouldn't have made it this far without them and it made everything a lot better than it was.

    I've met quite a few people who have gotten sepsis in different circumstances, it can be really bad. I personally know someone just a few years older than me who lost all 4 limbs. She can do a lot more than you'd think by herself. Modern prosthetics are improving. Unfortunately as far as I know I'm the only one where it affected my plumbing....... Honestly I don't want to get into my reproductive system if that's okay.

    I do use prosthetics, they are not as limited as someone would think. My stumps aren't the same length which made walking on prosthetic's a little hard to learn but I've had plenty of physiotherapy to be able to go without crutches. There are some limitations like the prosthetic's knee only bends while walking. Not while I'm walking up stairs or anything, it's like walking up the stairs without bending your knee or anything. so somethings are a little hard to tackle like stairs, standing up and sitting back down. Totally doable and most of the time I manage by myself.
    What I have been using all this time a mechanical prosthetics which are 'affordable'. The titanium knee itself is pretty expensive.
    I hope to get a c-leg prosthetic one day, it's not going to drastically change anything because of how short my stumps are but it will be much easier to walk on.

    Actually the incontinence feels way worse, maybe that's just me but it's like something which is unsanitary and just in general grosses me out despite me having it as long as I did. I guess it's just perspective. As I became older out felt like a worse thing. By the time I was in high school I thought it's probably the worst thing out of everything what happened.

  6. #6

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    Quote Originally Posted by miapeters View Post
    Thanks. Cleaning up and changing is quite tedious for me at the moment. When I'm home it's pretty straight forward because everything is adapted to make it easy for me. But when I'm outside it takes a really long time as I've mentioned before.... Handicap toilets are a lot easier but nothing compared to home...I feel like a colostomy would make it easier for me but of coarse there's both pro's and cons to it. The doctor isn't as optimistic about a colostomy surgery as I am. It's risky especially for me so I'm not even sure whether it'll ever happen.
    This thread explains a lot of your struggles. Thanks for sharing. I think anyone who is incontinent will agree that home is way better than public bathrooms. I can deal with my mess and my family's mess at home. I admit I am somewhat OCD when it comes to cleanliness, but I have a hard time dealing with other peoples mess. Yuck.

    I am fortunate because I can usually control my IBS-D through diet. I am sorry you have to deal with constant bowel IC. I don't blame you for wanting a colostomy, but surgery is kinda scary any way you look at it.

  7. #7

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    Hi and thanks for sharing. We've talked so I know your history just as you know my wife's. Life has a way of throwing some really big obstacles our way. You're young, so you'd have that colostomy bag for a lot of years, so I think I'd listen to you doctor. If he's worried about a future infection site, that will have to be something to consider.

    My wife and I met with some specialists about a kidney transplant for her, but they didn't think she was a good candidate. In fact, they weren't even sure she would survive the surgery so we had to accept the difficult news. Sometimes we have to live with things we hate and we have to find ways that enable it to happen. It's never easy.

  8. #8

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    Quote Originally Posted by miapeters View Post
    Hey, it's Mia

    I have already talked about this with some people but I think I'm okay with sharing this, a recent post wanted to know why I take a long time to change and the thought came across that it's okay to share this with everyone.
    I usually don't like the feeling of talking about this as a public post, but here it goes.

    what happened was when I was small I got a bacterial infection and it got really bad and long story short I went into sepsis. Both my legs were amputated above the knee..... The doctors did all they could to keep me alive so at least I came through that episode. That's also how I became incontinent because of a lot of tissue damage in that area. I mean I don't remember much myself but it was a mess down there and I went through multiple surgeries to minimize some of the damage.
    Going for further surgery is quite a risk for me since my last surgery to have a artificial sphinctor to control my bowels failed and went sideways.... It's part of the reason why I haven't been able to get a colostomy yet. Not sure if I ever can..... Anyway I just wanted to share this with everyone.

    I'm okay with any question but really I prefer everyone to be cool about it..... Physically I'm okay now and other than the incontinence and the mobility issues I'm okay physically.
    It is not an issue with me, since I myself have Cerebral Palsy and Autism and in diapers 24/7.

  9. #9

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    Wow, holy crap! Yeah, thanks for sharing and that does explain a lot. You've been through so much, you're a trooper for even being able to work through it all.

  10. #10

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    Wow, Mia. It took guts to share with the forum. I'm proud of you and I hope it feels right.

    Of course we've been talking a lot privately so I already knew this stuff, but I have to think your interactions here will be easier and more meaningful now that everyone can understand where you are truly coming from. And call me Pollyanna but I also believe that someone with your clear strength will get through your current difficulties and have a remarkable life.

    Pollyanna (I mean Kerry)

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