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Thread: cerebral palsy

  1. #1

    Default cerebral palsy

    i have cerebral palsy and i cannot talk, walk, or control my hands. i like to show myself in my diaper on twitter.

  2. #2

    Default

    Hello Huggie and welcome to the group.

    There is several people that have cerebral palsy and I am sure they will be more then willing to talk.

    Egor

  3. #3

  4. #4

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    Quote Originally Posted by Huggie View Post
    i have cerebral palsy and i cannot talk, walk, or control my hands. i like to show myself in my diaper on twitter.
    Hello Huggie!

    I too have Cerebral Palsy, and I also have Autism.
    I can talk, and I use forearm crutches and AFO leg braces to stand and walk (not very well).
    I too am in diapers 24/7.
    I am in New Hampshire.

    caitianx

  5. #5

  6. #6

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    Quote Originally Posted by caitianx View Post
    Hello Huggie!

    I too have Cerebral Palsy, and I also have Autism.
    I can talk, and I use forearm crutches and AFO leg braces to stand and walk (not very well).
    I too am in diapers 24/7.
    I am in New Hampshire.

    caitianx
    i used to wear AFOs too. they were p;lastic and hurt when i tense up. I got sores on my feet cuz of them, but i don't wear them anymore.

  7. #7

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    Quote Originally Posted by Huggie View Post
    i used to wear AFOs too. they were p;lastic and hurt when i tense up. I got sores on my feet cuz of them, but i don't wear them anymore.
    My latest AFO's are high-strength carbon fiber composite that force me out of crouch stance/crouch gait.
    Anyway, as a CP walker, I go through 3 pairs of sneakers a year.
    I am so hard on footwear.
    Oh! I am a retired Electronics Engineering Techn

  8. #8

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    Quote Originally Posted by caitianx View Post
    My latest AFO's are high-strength carbon fiber composite that force me out of crouch stance/crouch gait.
    Anyway, as a CP walker, I go through 3 pairs of sneakers a year.
    I am so hard on footwear.
    Oh! I am a retired Electronics Engineering Techn
    I also used to use a gait trainer to walk. i loved runningn in it!
    AWESOME!b what kind of electrionics

  9. #9

    Default



    Quote Originally Posted by Huggie View Post
    I also used to use a gait trainer to walk. i loved runningn in it!
    AWESOME!b what kind of electrionics
    Besides my forearm crutches, I myself have a 4-wheel rollator walker I use, if I have to carry stuff, like one of the cameras I use at the Derry, NH Community Public Access CATV channel where I volunteer.

    My last job was in the Design Engineering Lab of a robotics company which designed and built silicon wafer handler systems for the semiconductor manufacturing industry.

    As I said, I am retired on SSDI.
    Oh! I do drive, and my car is equipped with hand-controls, so I do not have to use my legs/feet to work the pedals.

    Yes, I see your Avatar picture, and you are lot younger than me.

    Coming up in June, I will be on a Public Forum Discussion Panel about living with Cerebral Palsy with 3 other people I know who also have Cerebral Palsy.

    From age 4 to age 29, I was "Toilet Trained", but after that age, I went "backwards".

    I have been back in diapers 24/7 since 1987.

    Oh! What brand of dydees are you using?

    I am stuck using the Walgreen's CERTAINTY "House Brand" Dydees.

    At least I am still able to "wipe myself" after pooping in my diaper.

    Several of my Cerebral Palsy friends I know face-to-face have to have others to do that for them.

    Anyway, I just got back from Keene, NH where I had gone standard 10-pin bowling with 3 other adults with Autism.

    Cerebral Palsy (and Autism) guy, me, defeated the 3 of them, with my bowling an 83.

    And I had the physical disability disadvantage.

  10. #10

    Default



    Quote Originally Posted by caitianx View Post
    Besides my forearm crutches, I myself have a 4-wheel rollator walker I use, if I have to carry stuff, like one of the cameras I use at the Derry, NH Community Public Access CATV channel where I volunteer.

    My last job was in the Design Engineering Lab of a robotics company which designed and built silicon wafer handler systems for the semiconductor manufacturing industry.

    As I said, I am retired on SSDI.
    Oh! I do drive, and my car is equipped with hand-controls, so I do not have to use my legs/feet to work the pedals.

    Yes, I see your Avatar picture, and you are lot younger than me.

    Coming up in June, I will be on a Public Forum Discussion Panel about living with Cerebral Palsy with 3 other people I know who also have Cerebral Palsy.

    From age 4 to age 29, I was "Toilet Trained", but after that age, I went "backwards".

    I have been back in diapers 24/7 since 1987.

    Oh! What brand of dydees are you using?

    I am stuck using the Walgreen's CERTAINTY "House Brand" Dydees.

    At least I am still able to "wipe myself" after pooping in my diaper.

    Several of my Cerebral Palsy friends I know face-to-face have to have others to do that for them.

    Anyway, I just got back from Keene, NH where I had gone standard 10-pin bowling with 3 other adults with Autism.

    Cerebral Palsy (and Autism) guy, me, defeated the 3 of them, with my bowling an 83.

    And I had the physical disability disadvantage.
    i'm not sure what brand i wear.
    ive bowl at school.

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