I've lost complete feeling of my bladder and bowels all of the sudden..

Racingmatt550

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  1. Diaper Lover
  2. Incontinent
Since the beginning of February 2020 I had bedwetting accidents every other day for the first week. Some nights were worse than others but I didn't see it as nothing more than a random accident. So I proceeded to buy some diapers from my local store down the street. Two weeks go by and I'm waking up completely soaked in urine through my diaper,the sheets and the mattress. I end up using a whole pack of 18 diapers in two weeks. The third week goes by and I wash sitting at the table eating lunch at work and all of the sudden my diaper got real puffy so I went to the resteroom to do a "diaper check" and I discovered I'm really soaked in pee with no knowledge or feeling that it happened,so I proceeded to change myself and go about the rest of my day just fine. Fast-forward to about a week ago and I started to wake up in the middle of the night, really puffy in the rear so I thought it was just pee and said to myself "I'll change in the morning" and fell back asleep. About 5 am that next morning I woke to a horrendous smell that woke my nose up quicker than chopping onions. I got out of bed that was soaked as usual along with my diaper but there was something different about this morning than the others. I discovered I had pooped in my diaper overnight and my body didn't wake me up saying "you gotta pee and poop". I'm in shock and awe at this point when I removed my blanket discovered I not only pooped in my diaper but I essentially had a "blow out" all over me,and my sheets. I only heard about blow-out a few times and never seen or experienced one till this moment in time which was a chore to clean up but I just jumped in the shower real fast and the rest is history. I went to my urologist and told her I had no urge or feeling I was peeing or pooping till it was already in my underwear or diaper. She prescribed me some type of bladder relaxant which *knocks on wood* seems to help slow down my bladder from peeing so quick but didn't help cut down on the amount of pee.

So to make a long story short I have absolutely NO urge when I gotta pee or poop nor feel myself peeing or pooping when it is currently happening unless my diaper starts to get uncomfortable. So I guess you can say I have total incontinence now as I have NO control or feeling anymore. The urologist stumped on what to do and why my brain doesn't get a signal anymore telling me to go to the bathroom. Any suggestions or advice is appreciated.
 
Nerve damage
Talk to a neurologist >>> immediately <<< .
The same nerve cluster that controls your bladder sensations, also controls your bowl sensations and to a lesser extent, hips . Having rapidly degrading nerves is not going to get better with time, and no one on the internet is going to magically fix your issues. You need to talk to medical professionals >>> NOW <<< !

Edit: fire your urologist ... in my opinion they are incompetent not to refer you to the appropriate specialist
 
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KitsuneFox said:
Nerve damage
Talk to a urologist and neurologist >>> immediately <<< .
The same nerve cluster that controls your bladder sensations, also controls your bowl sensations and to a lesser extent, hips . Having rapidly degrading nerves is not going to get better with time, and no one on the internet is going to magically fix your issues. You need to talk to medical professionals >>> NOW <<< !
I gotta follow up in 2 weeks. The urologist blew it off as just a coincidence and nothing more. I'm suppose to take this bladder relaxant that is doing no more at this stage but delaying when I flood my diaper at random times day or night. The last major surgery I had was a circumcision about a month but that's a story for another day. I haven't been in any types of car accidents or anything that I know of. I know the internet cant fix my problem but why I am having these problems "out of the blue".
 
the nerve cluster can get damaged from disease ( such as diabetes ), simple injury ( can be something such as a straddle injury ), spinal cord problems, muscle problems ... very long list.

I'm not a neurologist - just an incontinent person on the internet :(
 
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KitsuneFox said:
Nerve damage
Talk to a neurologist >>> immediately <<< .
The same nerve cluster that controls your bladder sensations, also controls your bowl sensations and to a lesser extent, hips . Having rapidly degrading nerves is not going to get better with time, and no one on the internet is going to magically fix your issues. You need to talk to medical professionals >>> NOW <<< !

Edit: fire your urologist ... in my opinion they are incompetent not to refer you to the appropriate specialist
My first thought exactly.
 
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I'm not a neurologist either, just a software developer with an exaggerated general education disorder, but I support KitsuneFox nonetheless. Sounds like nerve damage, consult a neurologist. I would add a herniated disc or - worst case - a tumor as possible causes. Have it checked.
 
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My suggestion would be to find another urologist Because loosing all feeling in your bladder and not being able to feel when you pee is throwing up red flags all over the place. You need to get to a neurologist to find out whats going on with out delay.
 
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What the others said, they hit the nail on the head.
But to add, from what I heard it could be a pinched pudendal nerve , if it is just pinched, that may often be fixed with surgery but you must check with your insurance if they cover it.

If it is worse, such as a herniated disc you're also in for surgery but I have no further knowledge on that subject.
Lastly I do hope there is no permanent nerve damage in your spinal cord

You already mentioned you didn't have an accident that might have caused this but do you have good posture if you sit on a chair, do you have a desk job or does your job require you to lift a lot of stuff? All these things can lead to herniated discs or pinched nerves.

You should definitely have that checked out as others said but try to analyze the past and your lifestyle as it may help that doctor to give a better diagnosis and treatment.
 
Thanks to all that replied. I'll take your suggestions into consideration.
 
Racingmatt550 said:
Thanks to all that replied. I'll take your suggestions into consideration.
Please please please do more than just consider it.
 
DippyDawg said:
Please please please do more than just consider it.
I'll do something about it asap.
 
Sorry for the delayed update. I got diagnosed with severe dual incontinence a few days ago due to my autism not letting me feel/control when I need to urinate/poop until it's too late. They ran tests to see how much I could hold back and I couldn't hold back a coke can worth of liquid for 5 minutes before my bladder contracted and I drowned myself in pee. He said diapers are my best route so I am gonna make the best of it.
 
Good to hear that you got an answer and it's one year happy with 👍
 
Racingmatt550 said:
Sorry for the delayed update. I got diagnosed with severe dual incontinence a few days ago due to my autism not letting me feel/control when I need to urinate/poop until it's too late. They ran tests to see how much I could hold back and I couldn't hold back a coke can worth of liquid for 5 minutes before my bladder contracted and I drowned myself in pee. He said diapers are my best route so I am gonna make the best of it.

You mentioned your autism causing that? Out of curiosity is that sort of thing possible with aspergers as well?
 
SnowPrincessSophie said:
You mentioned your autism causing that? Out of curiosity is that sort of thing possible with aspergers as well?
Autism has a way of mixing up the signals between the gut,bladder and the colon. I learned that when I was diagnosed a few years ago (18 at the time). I'm 25 now. Aspergers as of 2013 has merged into a signal grouping called, ASD (AUTISM SPECTRUM DISORDER),a range of symptoms that are associated with autism. So to answer your question,yes it is possible with aspergers.
 
KitsuneFox said:
Nerve damage
Talk to a neurologist >>> immediately <<< .
The same nerve cluster that controls your bladder sensations, also controls your bowl sensations and to a lesser extent, hips . Having rapidly degrading nerves is not going to get better with time, and no one on the internet is going to magically fix your issues. You need to talk to medical professionals >>> NOW <<< !

Edit: fire your urologist ... in my opinion they are incompetent not to refer you to the appropriate specialist
I had a follow appointment this morning and my urologist finally told me to go see a "neurologist". I just gotta wait for a call back to schedule an appointment.
 
I started having the same issues you had when I was younger, and it progressed over many years. I have a lot of health issues that are caused by my neurofibromatosis(NF1). Some of the issues I have are comormid ASD/ADHD, as well as spinal tumors at C4-C6, and a subcutaneous tumor in my lubosacral region. About a year ago I was getting tired of the issues I was having, and got a referral to see a neurologist. The neurologist had me get a brain and full-spinal MRI, and that is how I was able to find out why I was having incontinence issues. When I first meet with my specialist, she was a bit perplexed on why I was having incontinence, but after seeing the tumors on my spine, she said that the nerves were being compressed and are preventing the signal from getting to my brain from the bladder, and having both ASD and ADHD doesn't help either.
 
not a doctor here but i am going threw the very same stuff come to find out i have tethered cord syndrome the adult kind and yes there is a pediatric and adult forms stay on top of it and be sure to pester the living hell out of the doctors took me 10 years to even get mine found while you can get money put in a place to have it ready for when you can no longer work it will happen do not want to scare you in a way but do want to see you prepare for what will happen if you have the same thing i have to deal with i am a firm believer in keeping it real and not beating around the bush if you are lucky you get yours found soon enough you will not be like me in diapers full time double incon on walker and power chair for longer more uneven areas
 
The cervical spinal damage that I had in 1989 has caused accompanying problems and then they were compounded by a seizure about 5 years ago. I’m not a physician but I have dealt with several over the past 3 decades and the one thing I’m sure that they would agree with is the sooner you’re problem is diagnosed the better the chance of successful treatment, especially when dealing with nerve/spinal cord disfunction. I’ll add my voice to the others here urging you to pursue a satisfactory diagnosis and treatment as soon as you possibly can. Godspeed.
 
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