Urology appointment

[joshdiaper202]

so this morning I have a urology appointment do you people think I should wear a adult pull-up to the appointment today I would like to know before 8:30am

 

[Dinotopian2002]

If you have incontinence issues, wear your regular protection. The last place you should be hiding control issues is at a urologists.

I’ve worn my diapers to urology appointments before and it’s been no issue. They see it all the time.

Breathe Deep, Seek Peace
Dinotopian2002

 

[joshdiaper202]

If you have incontinence issues, wear your regular protection. The last place you should be hiding control issues is at a urologists.

I’ve worn my diapers to urology appointments before and it’s been no issue. They see it all the time.

Breathe Deep, Seek Peace
Dinotopian2002

I’m not had a accident for like a day and a half that’s why I was wondering should I just change in before I go or should I change when I get there when they make pee

 

[ronnieM]

It's one of the places in the world where diapers are most common to see. It's not like you have to be scared of wearing there or anything. If you have any chance of having an accident, it would be more embarrassing not to wear and to have an accident.

 

[joshdiaper202]

It's one of the places in the world where diapers are most common to see. It's not like you have to be scared of wearing there or anything. If you have any chance of having an accident, it would be more embarrassing not to wear and to have an accident.

I’m not had a accident for like a day and a half that’s why I was wondering should I just change in before I go or should I change when I get there when they make pee

 

[Dinotopian2002]

I hear you @joshdiaper202, as I’m incontinent, but I still have some control over it. So sometimes I feel it, sometimes I don’t. But I’m not a fan of playing Russian Roulette with my bladder, so I wear a diaper 24/7, just in case.

Trust me, there are some days where I really wish I didn’t need them, or that I think it’s overkill, but wet diapers are easier to change than wet pants - and much less embarrassing.

If it helps, think of a diaper like it’s an insurance policy - if you have an accident, it means your ass is covered.

As for the urologists, they’ll understand - this is something they see all the time. If anything, they’ll think it’s GOOD you’re wearing protection, because it shows that you’re taking precautions. If anything, wearing a diaper in this situation makes you MORE of an adult, not less of one. And if your incon is in your medical notes, they may even expect you to be padded.

Wear your regular daytime diaper to this appointment - I asked the same question to my urologist when I was 18 and losing daytime control. This is what they suggested to me, which helped me feel more relaxed about it.

Breathe Deep, Seek Peace
Dinotopia2002

 

[joshdiaper202]

I hear you @joshdiaper202, as I’m incontinent, but I still have some control over it. So sometimes I feel it, sometimes I don’t. But I’m not a fan of playing Russian Roulette with my bladder, so I wear a diaper 24/7, just in case.

Trust me, there are some days where I really wish I didn’t need them, or that I think it’s overkill, but wet diapers are easier to change than wet pants - and much less embarrassing.

If it helps, think of a diaper like it’s an insurance policy - if you have an accident, it means your ass is covered.

As for the urologists, they’ll understand - this is something they see all the time. If anything, they’ll think it’s GOOD you’re wearing protection, because it shows that you’re taking precautions. If anything, wearing a diaper in this situation makes you MORE of an adult, not less of one. And if your incon is in your medical notes, they may even expect you to be padded.

Wear your regular daytime diaper to this appointment - I asked the same question to my urologist when I was 18 and losing daytime control. This is what they suggested to me, which helped me feel more relaxed about it.

Breathe Deep, Seek Peace
Dinotopia2002

Is there a way I could private message you

 

[joemama]

When I got to the uro, I actually wear two pull-ups. I hate the embarrassing smell when the time comes to examine so the first catches the in transit waste. Once at the office I remove the first, wipe well and pull up the remaining. It offers a bit more cleanliness and since they usually ask for a sample, if I can, it works well for me.

 

[joshdiaper202]

When I got to the uro, I actually wear two pull-ups. I hate the embarrassing smell when the time comes to examine so the first catches the in transit waste. Once at the office I remove the first, wipe well and pull up the remaining. It offers a bit more cleanliness and since they usually ask for a sample, if I can, it works well for me.

Can I please private message about this

 

[Dinotopian2002]

Is there a way I could private message you

Just responded privately. Check your messages.

Breathe Deep, Seek Peace
Dinotopian2002

 

[Diaperman95]

I don't understand the question. My IC does not give me a choice. The closest I get is do I wear a diaper or a pull up. With a pull up I have to change more often but sometimes I like a bit less padding when I have to do things like physical therapy or something but No way I go without anything at all on. Especially to the urologists. I want him to know the hell I go through daily.

 

[KrankyPants]

Sure! Wear what you think is most comfortable. Its important to be comfortable at doctor's appx..

 

[ltaluv]

Wear what you need.

If you're going to the optometrist, do you debate whether to wear your glasses? If you're going to the audiologist, do you wonder whether to wear your hearing aid? Why, then, would you think about whether to wear a diaper to the urologist?

 

[AnalogRTO]

Wear what you need.

If you're going to the optometrist, do you debate whether to wear your glasses? If you're going to the audiologist, do you wonder whether to wear your hearing aid? Why, then, would you think about whether to wear a diaper to the urologist?

Honestly, I can understand the OP's position somewhat. I was sent by my GP to see a urologist because of severe testicular pain. When the urologist saw my diaper, he dismissed the pain as "inconsequential" and said "it doesn't matter" and instead swore that he needed to get me out of diapers over anything else. It didn't matter I've dealt with bladder control issues my entire life, nor did the plea for help with the pain that was destroying my life go anywhere. I refused a second appointment with that urologist and avoided wearing a diaper to any subsequent visits to any urologist so that they would focus on the issue at hand, not something that hasn't been able to get fixed in 30+ years.

 

[joshdiaper202]

Honestly, I can understand the OP's position somewhat. I was sent by my GP to see a urologist because of severe testicular pain. When the urologist saw my diaper, he dismissed the pain as "inconsequential" and said "it doesn't matter" and instead swore that he needed to get me out of diapers over anything else. It didn't matter I've dealt with bladder control issues my entire life, nor did the plea for help with the pain that was destroying my life go anywhere. I refused a second appointment with that urologist and avoided wearing a diaper to any subsequent visits to any urologist so that they would focus on the issue at hand, not something that hasn't been able to get fixed in 30+ years.

Could you please private message me

 

[joshdiaper202]

Honestly, I can understand the OP's position somewhat. I was sent by my GP to see a urologist because of severe testicular pain. When the urologist saw my diaper, he dismissed the pain as "inconsequential" and said "it doesn't matter" and instead swore that he needed to get me out of diapers over anything else. It didn't matter I've dealt with bladder control issues my entire life, nor did the plea for help with the pain that was destroying my life go anywhere. I refused a second appointment with that urologist and avoided wearing a diaper to any subsequent visits to any urologist so that they would focus on the issue at hand, not something that hasn't been able to get fixed in 30+ years.

Because there’s some things I would like to talk about

 

[joemama]

Honestly, I can understand the OP's position somewhat. I was sent by my GP to see a urologist because of severe testicular pain. When the urologist saw my diaper, he dismissed the pain as "inconsequential" and said "it doesn't matter" and instead swore that he needed to get me out of diapers over anything else. It didn't matter I've dealt with bladder control issues my entire life, nor did the plea for help with the pain that was destroying my life go anywhere. I refused a second appointment with that urologist and avoided wearing a diaper to any subsequent visits to any urologist so that they would focus on the issue at hand, not something that hasn't been able to get fixed in 30+ years.

AnalogRTO, you just told my story. I still fight the pain every day. I would love to know more about you path and outcome. I desperately want my testicle removed at this point as no pain blockers or anything has helped. Uros love to talk about my diaper and the latest mess rather than why I really made the apt.

 

[Rob110]

Wear what ever diaper you wear on a daily baises. Also take a spare diaper or 2 with you so you can change into a fresh diaper after your appointment.

 

[ltaluv]

Honestly, I can understand the OP's position somewhat. I was sent by my GP to see a urologist because of severe testicular pain. When the urologist saw my diaper, he dismissed the pain as "inconsequential" and said "it doesn't matter" and instead swore that he needed to get me out of diapers over anything else. It didn't matter I've dealt with bladder control issues my entire life, nor did the plea for help with the pain that was destroying my life go anywhere. I refused a second appointment with that urologist and avoided wearing a diaper to any subsequent visits to any urologist so that they would focus on the issue at hand, not something that hasn't been able to get fixed in 30+ years.

That is a good point, but I think it's really its own issue of managing your doctors.

Many doctors want to fit what they see into some neat little box, rather than dealing with the complexities of the actual patient. When I see a new general practitioner, they usually want to do blood tests, then they want to address my high liver enzymes (which can only be fixed with a transplant) rather than the issues that brought me to them in the first place. When I see a dermatologist, they want to address my chronic itching (due to liver disease, and again only fixable with a transplant) rather than focusing on the skin cancer screening or other issues that brought me in the door. I have to work to keep them on task, and if I can't keep them on task then I have to find another doctor. Since I can't leave my elevated liver enzymes or shredded skin at home, I have had to find effective strategies to get my other needs addressed.

If incontinence is severe, wearing a diaper is likewise not optional, yet those who need to be seen for other issues such as testicular pain still need to be treated appropriately. Being able to redirect doctors back to the correct things is a skill that can be learned and refined through practice. Until then, it may be necessary to seek out doctors who are more willing to isten to the patient's concerns.

 

[AnalogRTO]

AnalogRTO, you just told my story. I still fight the pain every day. I would love to know more about you path and outcome. I desperately want my testicle removed at this point as no pain blockers or anything has helped. Uros love to talk about my diaper and the latest mess rather than why I really made the apt.

I refused to see that first urologist ever again because every time I tried to point out that I dealt with the incontinence as a lifelong issue and it didn't keep me from living life, that the testicular pain was making it so I couldn't do anything that I enjoyed in life where diapers didn't, every time I stressed those items he dismissed me entirely.

The second urologist I saw I refused to wear diapers and risk wet pants just so I never had that issue come up. Even with that, it took months of trying prostate medications, urodynamic studies, and a few other items before he tried a simple lidocaine injection into the nerves coming from the testicles to determine that was the source of the pain. A five minute procedure that had no long term side effects and was able to determine the root cause took him months to get around to trying. I actually broke down in tears the relief from the pain was so great.

After that I was referred to a pain management specialist who went through three separate attempts to deaden the nerves that all lasted only an average of a month apiece. After the third attempt we were talking about next steps and the only option left from a pain management standpoint was to implant a neurostimulator. The surgery to do so would be rather involved as it went in low on my abdomen on one side and then they would have to tunnel across to the other side to attach to the nerves on each side to help control the pain. I would need follow-up surgeries every five years to service the neurostimulator unit. He recommended I ask about orchiectomy as it could be much simpler and easier and be a "one and done" surgery.

I went back to urologist number two and brought up what I was told by the pain doctor and was flat out denied that he would ever consider doing that for me. I was told my only option was the neurostimulator and there was nowhere else I could take it besides that. I stopped him and said I wanted another opinion. Being in the SF Bay Area, I was given referrals to Stanford and UCSF. I ended up at Stanford.

The urologist at Stanford spent a month and a half gathering information, talking to my other doctors, and asking other, more senior urologists about my case. At the end of it, he agreed that a simple orchiectomy may very well give me the relief I needed and scheduled it. He performed the surgery, and immediately I was pain-free. When I did the follow-up with him after the surgery, he was worried I might still be suffering but instead I was gushing about how great it was to be back living life.