rothpirate
Est. Contributor
- Messages
- 139
- Role
- Incontinent
About a year and a half ago I started having issues with my bladder, it changed from “have to go“, to “I’m going to go!”. I also notice that my thirst and urine production increased dramatically. My wife bought me pull-ups and started doing research on herbs vitamins etc. I lost almost twenty pound, diet exercise etc. It kept getting worse and I switched to diapers at night and in the car after pull-ups leaked. I was peeing out of 12 hour rated diapers by midnight and had to keep refilling my water all night. We got in to see a PA and he suspected diabetes mellitus. My blood work came back fine. We tested for ADH (anti diuretic hormone) and there was none detected. We did a 24 hour urine collection and it came back at around 10L. 2500 of which was overnight. I finally got to a urologist a month before the endocrinologist. After the normal exam and dismissing my symptoms I got really specific, he surmised that I probably had diabetes insipidus, and the chronic distension had probably injured the detrusor muscle. My wife asked what we could do for that, he said there is nothing that can be done. That was a hard moment. Further research indicated that chronic distension kills the nerves and the tiny blood vessels that supply them. The base of my bladder is shot. I have no sense of distension, hence the bedwetting, and my bladder which I believe is quite large fills rapidly. The endocrinologist confirmed partial diabetes insipidus, mri came back clean, no cancer. She thinks probably a small stroke affected the pituitary. The desmopressin has made me very sick, probably because my pit kicks out a little hormone which when added to the medication makes me very sick. So I am unmedicated and managing. The perfect storm of a rapidly filling and unstable bladder has been crazy. The trash weighs a lot every week.