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Thread: Latest results. feeling really upset

  1. #1

    Default Latest results. feeling really upset

    After waiting 2 months to see my urologist and go over the results of my urodynamics test I finally did so today and the results are basically what I was scared of in that they showed nothing.

    He said that no abnormalities showed other than a small capacity, there was no sign of OAB no instability nothing at all.

    Im still having anywhere between 2 and 7 accidents a day getting up to urinate twice a night sometimes, going to the bathroom over a dozen times in a day often and many days I find myself getting strong pain throughout my pelvic area and struggling not to pee myself despite having gone less than an hour ago.

    every time Ive had a test done its showed little to nothing and its absolutely ruining me. Im getting so many symptoms and nothing shows.

    I have anxiety and aspergers so they've said maybe my anxiety is just causing a little bit of trouble with my bladder but anxiety isnt really able to explain the pain or the severity of the incontinence Ive had a lot of accidents along with a lot of frequency and pain on days where everything was fine mentally

    my urologist has prescribed me betmiga which is meant to work better than the last medication I tried Im also seeing my doctor again on the 20th and my urologist in 5 weeks to see how the meds work

    Ive had the incontinence for over 2 years and nothing is showing and things just seem to be getting worse in regards to it.

    the only way that Ive been able to leave my house has been by using continence aids however previously my urologist had a diagnosis of unstable bladder which has now been ruled out Ive been in tears since I got home because Im really really scared that with no cause Im going to lose the funding Im getting and not be able to get the products I need anymore

    My urologist has said urodynamics was the last test he could do so my only options are to try the meds and maybe see a pelvic floor physiotherapist if they dont work

    I just dont know what to do at the moment I was really hoping the results would show something and now Im just upset and scared

    this whole situation is just a mess

  2. #2

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    See, it's situations like this that make me wonder why some in this community want to force incontinence. ABDL or not, we need more stories like this to help keep a balanced frame of mind.

    Sorry to hear you are going through so much turmoil with your IC, have you seeked second opinions on the matter?

  3. #3

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    Quote Originally Posted by Note View Post
    See, it's situations like this that make me wonder why some in this community want to force incontinence. ABDL or not, we need more stories like this to help keep a balanced frame of mind.

    Sorry to hear you are going through so much turmoil with your IC, have you seeked second opinions on the matter?
    I saw a continence advisor at one point who said I was doing everything right in regards to dealing with the incontinence however seeing another urologist wouldnt really do anything my current one is a professor of urology and the tests arent really showing anything so If I saw another urologist itd probably be someone who isnt as experienced whod then do the same tests and get the same results

    early next week Im going to briefly speak with the continence advisor I saw to see what the situation is regarding funding but Im still a bit of a wreck today

  4. #4

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    Your urologist might be on to something. If he cannot find anything wrong with you medically (although that doesn't explain the pelvic pains), maybe your IC is brought on by anxiety. If your IC is indeed stress induced maybe it's worth seeing a counsellor or even a hypnotist as an alternative.

    I know of another from this community that became IC after his father died, has his good days and his bad but is an ongoing problem nonetheless.

  5. #5

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    Quote Originally Posted by Note View Post
    Your urologist might be on to something. If he cannot find anything wrong with you medically (although that doesn't explain the pelvic pains), maybe your IC is brought on by anxiety. If your IC is indeed stress induced maybe it's worth seeing a counsellor or even a hypnotist as an alternative.

    I know of another from this community that became IC after his father died, has his good days and his bad but is an ongoing problem nonetheless.
    in the next month Im seeing a counsellor but there was no catalyst for this I just started getting frequency and strong urges that got worse and worse so now Im at my current point
    its a constant with me I dont have days without it its every single day and even if it were mental its still ruining my life at the moment and if I lose my funding I dont know what to do then ill just be totally screwed I cant leave my house without continence aids

  6. #6

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    Has the urologist said that without a cause the funding for the supplies will be removed? Do you know this is a valid concern? I feel that getting upset over this without knowing for certain may not be healthy.

    For me, anxiety was a huge part of how my bladder functioned. While in a hospital, I was constantly thirsty and drinking a liter per hour. Had to go every 30-40 minutes. At one point, a doctor saw possible evidence of dehydration and ordered the staff to monitor my intake and output. The first first nurse to see the order politely suggested the doctor just wanted confirmation. The rest of the staff thought it was hilarious. The output chart was largely ignored. The intake chart quickly revealed dehydration was not an issue. Over-hydration and electrolyte balance was briefly mentioned, but also quickly dismissed.

    With my anxiety better managed, so is my bladder. I completely stopped needing diapers at night. My sweating, thirst, and bladder needs have gone way down since then.


    The urologist finishing their part does not conclude the search or stop your treatment. You currently have a need and that need remains even if the explanation has not yet been found. At your next appointment, you can ask about other possible doctors who may be able to help. After all, I was not even being treated for bladder issues and received help there.

  7. #7

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    Im going to talk to the continence advisor on tuesday to find out about my funding

    its just a hard blow for me I was really expecting results and now theres nothing again being stuck like this is already bad but if I was diagnosed with something at least there would be a reason now I just have all of these problems and noone knows why
    I have all the symptoms of oab yet all the tests show nothing Im controlling my fluid intake and diet and doing pelvic floor exercises daily but nothing makes a change
    it could be mental but that doesnt explain the pain or why im waking up to pee despite limiting fluids several hours before bed and going before I fall asleep

  8. #8

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    Hey mate, dont worry about funding- "dysfunctional voiding" still fits your symptoms.

    - - - Updated - - -

    pain could be psychosomatic -
    as for the peeing at night, have you had you ADH checked?

  9. #9

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    Quote Originally Posted by Bear85 View Post
    Hey mate, dont worry about funding- "dysfunctional voiding" still fits your symptoms.

    - - - Updated - - -

    pain could be psychosomatic -
    as for the peeing at night, have you had you ADH checked?
    im not sure about the pain I get it often but not every night but its often located in my lower torso in the bladder area and genitals but I get one or 2 different types of pain
    Ive had a lot of blood and urine tests done by my urologist and doctor but im not sure about adh
    thanks for posting today has just been a real mess for me
    is urodynamics generally reliable or is it likely that there was nothing to find?

  10. #10

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    I assume this isn't the cause of the problem, but I thought I'd mention it just in case (and for anyone else googling and seeing this thread). But if you've used ketamine in recreational doses, it can cause scarring of the bladder, causing pain/discomfort, urgency and incontinence.

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