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Thread: Current continence status

  1. #1

    Default Current continence status

    Hey all,

    Well, I know it's been a really long time since I was last here properly and I am sorry for that, but we are going through hell at home at the moment with my Son's mental health and my Teen Daughter's behaviour (no excuses for leaving you all I know, but yeah, I'm weak)

    Anyway.

    Before I left I reported on my appointment for the proctogram.

    Well, after that I saw the specialists at the joint clinic, they said there were three options.

    1. To leave everything as it is and put up with it.
    2. To use medication to try and control the problem (suppositories and immodium)
    3. To have a stoma operation and colostomy bags.


    I opted to try the medication route as I was NOT going to just put up with this. They also referred me to the stoma nurse in case the medication route didn't work (they didn't think it would, but not because of my history - but I was willing to try anything) Anyway because I have a history of abuse in the nether regions, I was reluctant but tried to use a suppository - this didn't go well. (physically for a start and all the emotions and memories that were triggered put me in a bad place)

    Yesterday I had the appointment with the stoma nurse (he was off sick, then the readjourned appointment Simon was ill, then I didn't get a letter through for the next appointment so I missed it last week, and when I phoned on Monday to chase the appointment they said I'd missed it but managed a next day (yesterday) appointment for me) and it went really well, he's a lovely chap and he went through everything very thoroughly and explained everything and made sure I was clear that there could be complications and it might not work etc... But Again I emphasised that I am willing to try ANYTHING.

    So, right at this moment I am sitting with a pretend stoma stuck to my abdomen and a colostomy bag semi filled with pretend poo. Part of the pre-operative Practice Pack.

    The stoma nurse is writing to Mr Hershman to let him know that I wish to go ahead with the operation.

    So yeah... I have made the decision to poop in a bag as I already pee in a bag I am not making fun of the idea, as it's a massive decision to make and I know that it's a long and painful process.. and I also know that it might not fix my problems, it might even make them far far worse, I'm just trying to be a tinsy bit jovial about it for MY part because if I didn't laugh, I would cry methinks.

    Oh well, here's to the future. I am sure now that it is orange

  2. #2

    Default

    Though decision, which one should not take lightly. :/

    But if you think it's for the best for yourself, then it is. Furthermore it seems like you got to know everything about it - all up and downsides of it / or in contrast to choosing to use medication or keep it as it is instead. So there's nothing left to consider.

    Taking things with humor always helps a lot I think. Best of luck anyway.

  3. #3

    Default

    I haven't taken it lightly, I have been thinking about this and looking into options for months and only myself can say how awful I FEEL when I have an accident. I could never ever EVER find myself even remotely "ok" with soiling myself, there is not a product on the NHS that deals with full on soiling, just staining. I can't afford to buy privately and I wouldn't anyway, my money is better spent on my family. I don't like spending money on me. So yeah, it IS the best for me.

    I guess hoping for more replies was a little cheeky considering I have not been here for so long, perhaps those that knew me when I was here before are not even here any more, but yeah, thanks daLira for replying to me. *hugs*

  4. #4

    Default

    That's a difficult choice at such a young age. I've put up with IBS accidents for decades and my grandfather had a colostomy bag (due to colon cancer). However, I can't imagine what you are going through. I can only say I wish you the best through this difficulty. I knew a person once that would say every time they had a hardship "when life hands you lemons, make lemonade".

  5. #5

    Default



    Quote Originally Posted by Spaz View Post
    That's a difficult choice at such a young age. I've put up with IBS accidents for decades and my grandfather had a colostomy bag (due to colon cancer). However, I can't imagine what you are going through. I can only say I wish you the best through this difficulty. I knew a person once that would say every time they had a hardship "when life hands you lemons, make lemonade".
    You would consider me young? that's nice, Simon (my OH) keeps saying I am OLD, like REAL OLD, like ancient hahah (he's only 4 years my junior but he teases me about my age a lot) thanks for your kind words though, it means a lot to me.

    I never look into the negative side of things, I have some cracking positives from this...

    IF it works:

    * I don't poop myself any more
    * I can release a stink bomb whenever I want, if someone really annoys me
    * If my children are being naughty I can threaten to throw my poop at them (jk, I would never do that)
    * I don't have to scope out disabled bathrooms every where I go, and panic like hell if I can't get to one in time.
    * I can start going out again because at the moment it is hospital/GP appointments only because I don't want to risk being out of the house.

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