How do you manage?
I have required assistance with toileting in general for several years and never really was able to change my own diapers. Early on when I still had some coordination in my arms (I have muscular dystrophy) but now that's mostly gone except some hand and wristmovement
I have been trying to be empathetic with my care givers because I'm sure it isn't easy for then either. I get changed by my husband, my mom, my nurses and staff at the adult medical day care facility I go to while my husband works
Some people like my husband and the Rn's well be stoic, professional, and matter of fact.
Sometimes my mom cries while changing my diaper. I think it makes hersad. She has been doing this a lot the past few months
And some like the staff at the care program I go to, wipe my bottom like they're scrubbing a cast iron pan, they're in a hurry and don't care if they're rough and it hurts. I'm a sexual abuse survivor and it is really triggering. And the fact that I feel so paralyzed when someone's touching me down there just triggers more
How do you work with the people who change you