Roan and Tess are twins born on 19/03/2008. They are born with a severe mental disability by a genetic brain disorder.
Their spiritual development is stopped at an age of 11-12 months.
They can not talk and do not understand anything, even their name Specialists say that they will never be able to this.
All other forms of communication are difficult to non-existent, with all the problems this entails.
They can only express anger, sadness or limited by affection such as hugging.
They have stereotypical behaviors and utterances that repeat themselves all day.
Also, they are not trained.
More specifically, the problems are:
- Aggression attacks, accompanied by biting;
- Severe eating disorders: do not eat solid food, only porridge, fruitpap and sometimes mixed vegetables / potatoes (baby food);
- Great fear of crowds, strange environments, wind, noise, ...
- Dare to sleep alone; get panic attacks when he is alone.
- Do not risk (walking street, climbs on and get off the table ...);
- Eat real everything they find, even inedible things like paper, leaves, dust, ...
- Hyperactive, has no inhibitions;
- Big sleep problem, has no day-night rhythm and sleep occasionally small pieces of 3 or 4 hours.
Looking to the future, they will be increasingly dependent. Normal or even custom schools, let alone exercise a profession or raise families are excluded.
They will always have to stay in! Custom settings
The costs are currently approximately € -1,200 (without refund!) Per month for each to let go + additional costs physiotherapist. To a medical teaching nursery
Other costs are all sorts of custom materials at home (bedding, gates, care pillow, stairs)
a custom (large) stroller, diapers, medicine, extra medical expenses (specialists, genetic research),
costs for short stay.
Eg. The cost of the buggy which we would need is a little over 5000 euros ...
Do you have your heart in the right place, the story of Roan and Tess you got ...?