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Thread: Feeling very unsure and Frustrated

  1. #1

    Default Feeling very unsure and Frustrated

    This is not a post about being ABDL.

    In the last few weeks my health has gone down hill a lot. I finally had gotten back to working at a Job I love and not a month later I start going down hill. This happens every time I try to get back to a normal life.

    I am having seizures and we have not figured out why yet. All the scans of my head are fine. But still they are happening. It gets me really down sometimes. I am n ot longer allowed to Drive, or Swim, and I can only shower and do certain things when someone is home. I now spend my days sitting at home and just doing nothing productive. It really make me so upset that I can't do normal things. Right now just walking is hard for me and I can not even make it through the grocery store without a wheel chair or scooter. I just want things to go back to normal and me back to feeling good.

  2. #2

    Default

    Hello

    I have had this situation also and I hope I can offer you something to help.

    Not knowing the financial situation or skills level this maybe problematic.

    First is there a way for you to work from home?

    I would suggest to look into that. A lot of times there is data entry stuff that some employer would be delighted to have somebody do to help in time out situations.

    Second do you have a hobby that you can work on or would like to learn. For me Latch hook rugs are a great therapy device that I can sit and do. They can be somewhat inexpensive to very expensive. But it keeps my mind busy and off the health issues.

    Third do you have any outside support i.e. friends or family to talk to (that is that listen)?

    Fourth You might look into some place that you can donate time. There is some groups that would love someone that can stuff envelops.

    And lastly, and I know this is a pain because it means yet another Dr. apt, but have you considered therapy to help deal with the psychological issues of health situations.
    Having a good mental outlook makes healing go a lot faster and more times then not the primary care doctors do not look deep enough into that aspect of healing.

    So again I hope this is of help to you.

    Egor

  3. #3

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    I feel for you, been in a similar situation for almost two years now, its hard, try to focus on the things you can still do, read, research, meet new people online, try different diets, eat healthy, and work out if you can at all. Find ways of reducing stress, seems like you do ok till you get to a stressful environment, maybe learn to meditate, or see a psychologist. You are not alone in your suffering, I promise you that.

  4. #4

    Default



    Quote Originally Posted by binkygirl View Post
    This is not a post about being ABDL.

    In the last few weeks my health has gone down hill a lot. I finally had gotten back to working at a Job I love and not a month later I start going down hill. This happens every time I try to get back to a normal life.

    I am having seizures and we have not figured out why yet. All the scans of my head are fine. But still they are happening. It gets me really down sometimes. I am n ot longer allowed to Drive, or Swim, and I can only shower and do certain things when someone is home. I now spend my days sitting at home and just doing nothing productive. It really make me so upset that I can't do normal things. Right now just walking is hard for me and I can not even make it through the grocery store without a wheel chair or scooter. I just want things to go back to normal and me back to feeling good.
    Hey binkygirl,

    You have my best wishes for getting back on track.
    Whilst I can not personally relate to anything as drastic as you describe, I know the feeling of not being able to do what you want just too well after I was nearly "totaled" after an accident. Some doctors thought I'd never do anything remotely sporty again... but here I am today on top of my game....
    But it had been a frustrating long road.
    The one thing I took from this experience: Suck it up and soldier on. I know it can sound dumb - but my point here is that no matter how bad it looks, don't let it drag you down - embrace it... or as winston churchill said: "if you're going through hell - keep going".

    Take one day - one step at a time, try to set SMALL goals - stuff you are positive about that you can achieve them... achieve these goals and progress.
    Also I think it would be the best for the time being if you'd figure out some kind of work you can do from home.
    Sitting around and feeling "unproductive" can have a devastating effect on improving your situation.

    And one last thing: Don't give up on trying to figure out what's wrong. if you have to see a dozen more different specialists - so what... I know it's a pain in the a... but the alternatives are not better anyhow. Also there's tons of "sporty things" you can do at home with minimal health risks involved...
    If you are not already doing this... start living "healthy" (good food, real cooking - healthy nutrition in general)... use the free time to venture into arts, books, etc.. whatever peeks your interest... try to get some minimal impact work out routine done. maybe go to a professional physical therapy.
    Why physical therapy? Well unlike regular gyms or trainers - those places & folks are trained to deal with people suffering from a range of medical complications... so they can provide the save environment and recommend specific things. Especially if you're needing a wheelchair - there's even sports possibilities if you have some major disabilities.

    The thing in my book is that you should try to make the best out of your predicament, never give up, and improving your physical fitness, eating healthy and engaging in mental challenges (try philosophy, chess, try to master a new educational topic such as mathematics or whatever) will work "wonders" in improving your situation.
    Stuff like that can become your own little "power source"... and that can work magic in terms of conquering a lot of other issues.

  5. #5

    Default

    There are some medications that can help certain individuals suffering from seizures such as *Dilantin and others. I personally know someone who has been able to manage the siezures since being treated.

    The crappy thing is that such diagnosis' are misunderstood in their causes. Epilepsy, for instance, is the most commonly known type but is still subject to little understanding in the medical field.

    There are ways to help one direct their own symptoms online and plan a course of possible treatment. Some symptoms include:

    -A feeling of being electrocuted or shocked
    -Sudden dizziness or confusion
    -Losing conciousness and collapsing
    -Decrease in autonomic or physical dexterity

    Some levels of anxiety or panick attack or stroke can mimick these symptoms.

    My advice would be search the 'heck' out of this topic online. There may be persons who have/are goiing through a similar scenario, crisis, or dilemma. Don't give up. Sometimes seeking new professional advice or diagnosis can be life-changing.

    I am sorry you have to suffer through this. I hope you find an answer.

  6. #6

    Default

    Thank you all for the support. I am looking for a job from home. One of my goals is to get my spare room organized so that we can do two things. I want to get my sewing business off the ground. I make a wide variety of things from Hand made soft sculpture dolls and Animals. I also make baby clothing and lots of other baby items. I am also have the patterns to start making some AB/incontinence clothing. Secondly we want to make that room safe for me after seizures. We plan on doing sort of a nursery. We need a space where I can be where I can't get hurt while I recover from a seizures.

    As far as exercise it is very hard to do it. I have some pretty severe leg issues, Weakness and pain. I was in physical therapy before I moved. I am working on getting back into it. The doctors are just starting to try and figure things out. It has been two and a half years and finally doctors are trying to figure it out. The seizure we are not sure of why they are happening. My last test was normal so that was no answers. My doctor is out of town for the next month.

    I do have family to talk to . My family is very supportive and so is my boyfriends family. They are all very willing to help out. I spend a lot of the weekends over at their place so that Someone is there to watch me while he works. That also gets me out of the house.

    And the eating thing well that is another story. I have some severe Digestion issues. I have had so many surgeries and I have to be very careful what I eat. Meaning I can not eat certain veggies and fruits. I have to puree them to eat them at all. So that is something I am trying to figure out. I try to eat healthy stuff when I can. Usually that means pretty much eating baby food.

    Anyway now I shall end my rambling. Thank all for the suggestions and support.

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