I went for my appointment at the joint continence clinic on Tuesday last week. (Both faecal and urinary consultants working together and running the clinic together)
His interpretation of the results of the testing that they performed before Christmas were actually incorrect, due to excessive nerve damage/deadness.
During the actual test, when she put the balloon thingy in my back passage, she inflated it to 280 (don't know what it is measured in) before I had any sensation of something in my back passage, the consultant, on Tuesday, said that a normal person would feel a strong urge to empty their bowels at around 60. (something) Even that much over the norm, I only had a mild sensation that I needed to go, it actually felt more like a little fart was coming out. (Based on comparing with the level of sensation prior to being poorly, I have NO idea when I am going to fart any more so that in itself can be embarrassing!)
So the results of this test made my consultant think I had a rather large distended (? Is that the right word, I can't remember what he said, and I'm stuck for which word I need, basically he thought it was very large and round like a football (but no so big as a football!)) rectum. After examination on Tuesday, (bleugh, just bleugh!) he realised that my insides were normal and that the nerves were at fault.
He is sending me for more testing, he said something about doing xrays of my back passage, so I presume that will entail them pumping something in, from which end I have no idea. *insert scared face*
He said that based on what we have found out so far, the only solution they could think of would be a colostomy bag and he asked me how I felt about that, I said I was willing to do ANYTHING to not crap myself any more, and to be able to go out, without worrying about WHEN my bowels are going to cause an embarrassing accident. At present I leave the house once in a GREEN moon, (probably no such thing, I'm just trying to show a scale of rarity) and then only for medical appointments. He said that they would do their best to find a better solution than that, but I would *HAVE* to have one fitted in the perhaps not so distant future anyway.
On the urinary side, my consultant has prescribed me vesicare again in an attempt to calm my bladder down and stop it from pushing the catheters out so often. (Longest I have kept one in so far is 3 weeks) He also prescribed Buscapen (sp?) to try and stop the bladder spasms. He also requested that I increase the size of catheter to hopefully prevent the bypassing so much. They want me to try 14ch instead of 12ch, and even go up to 16ch if 14ch makes no difference.
He also suggested I consider a suprapubic catheter instead, I said "unless they could stitch me up so I don't leak from my urethra" that it was not an option, I was half joking when I said it and he replied that it was actually an option, should I wish to change to suprapubic… (?really?!)
Just got to wait for the xray testing in Stoke Hospital now, then they will decide how to go from there.
On the side of not soiling ever again, the future is acceptable should I opt for a colostomy… but the thought of *having* to have one in the future scares me somewhat.
What do you guys think of colostomy bags? :/