I've finally got my appointment to see the surgeon to discuss the operation and to try and fully understand what is going to happen and what it will be like after it has been done.
For those of you who are reading and don't know about the operation, the plan is basically to remove the colon as it is having very little to zero movement at all and to re-attach the end of what has been removed (I can't remember exactly what it is) to the rectum. He said at my last appointment when the surgery was offered that by doing this, the need for a colostomy bag will be removed.
I have to say, I've never been so scared in my life. I admit I don't want the operation but it's at the stage now where I can't cope like this anymore. I'm constantly being kept awake by the pains in my stomach and I can't eat anything or even drink anything without it making me feel sick, even fresh fruit and veg
I'm still sort of hoping that they can't do it and they find another solution but that's wishful thinking. After 18 years of being like this (since 4 years old) there's clearly too much damage in there to do anything else, which is what my doctor told me.
I hope everyone is doing well wherever you all are,