I'm going to see my urologist Friday morning. I have been advised by several folks here that they often want "diaries" of urination, and I spent part of today pre-writing one for him: a patient history/quasi-diary/introduction/explanation of who I am and what I am looking for that pulls no punches. I intend to drive it over to his office tomorrow morning and give it to the receptionist in the hope that he might read it before our appointment. He might not, of course, but hey: I'm an optimist.
Near its beginning, I wrote:
Then I went through a full history and a clear summation of what happens to me on a daily basis. At the end, to make things absolutely clear, I wrote this:I contemplated calling this document “Notes From the Diaperbound,” a play on Dostoyevsky, but I figured that probably wasn’t necessary. Still, the fact that it even occurred to me ought to give you a clue about my state of mind:
I am approaching this situation in the same way I approach most everything else in my life: with realism, humor, and an open mind. I get upset about things, and I certainly had my initial meltdowns about losing bladder control, but that was two months ago; I have since accepted and started to deal with the issue and found that, well, I can. So I come to you not so much expecting a miracle cure—hoping for one maybe, but only if there is some underlying cause that you can find that can be dealt with—as desiring to rule out any serious or life-threatening issues that might be causing it.
I figure the more upfront I am about all of this from the start, the better result I can get.What I Am Looking For:
First and foremost, I am not interested in someone whose first priority is “getting me out of diapers.” As I believe I have mentioned, I don’t care about diapers. One solution or another to manage IC is a personal preference, and this is the one that works for me. Pads I overflow and catheters…um, NO. What I do want is to know what is causing this (if possible) and to work with a doctor to resolve it (if possible) and to keep me as healthy as we possibly can. So if “getting rid of the IC” or “doing what we can about the IC” is your stated priority, that works fine for me, because that is my priority too.