I shall start with my history...
In 1999-2000, I developed stress incontinence after giving birth to my Daughter, a physiotherapist who specialised in the pelvic floor area was sent out to me, and I saw her every week for about 8 months, and then was discharged as I was "cured".
In 2007, after falling seriously ill by some undiagnosed condition, (dx in 2010 and 2012 with my two "main" conditions) I started to become urge AND stress incontinent.
I was prescribed large pads (I have always called them nappies) and referred to Mr Elmardi, in urodynamics...
In 2011 my incontinence got so bad I was wetting myself frequently. I was given Vesicare 5mg for suspected overactive bladder.
6 months ago, I went to see Patrick, Mr Elmardi's right hand man and he confirmed that I had retention as well as incontinence, (yes, that is possible!) so I should come off the vesicare and start desmopressin to stop me going 6+ times a night.
Now my current circumstances are that my incontinence and retention have got far worse.
I CANNOT go for a pee unless my bladder is full to bursting, my bladder doesn't tell me I need to go until it is fit to bursting either! I cannot walk unaided and even then I am VERY slow AND I have to use my stairlift, because it takes SO LONG to get to the toilet, I wet myself on the way, EVERY time.
I do not have the sensation in my colon that tells me I need to poop, the only warning I get is severe abdominal cramps, IF I ignore those for too long, OR I can't get there in time, I soil myself.
I saw Patrick first yesterday, and when I had finished telling him my problems, he said that he wanted Mr Elmardi to see me, because he didn't know what else to do.
Mr Elmardi said he wishes me to have a VDU urodynamics test, which is only available in Shrewsbury, 41 miles away, or thankfully New Cross which is 11 miles away. He is going to try and get me in as an emergency as he really needs to know how much of my problem is neurological, and if it can be "fixed". He also suggested a surgical procedure, to implant a kind of "pacemaker" that stimulates the sacral nerve, read about it here, if you haven't already heard of it, which, (if my condition IS neurological) COULD cure, or greatly assist, my dual incontinence.
For a short term, and almost instant fix for my urinary incontinence, I have been asked to consider "Femsoft" which, in layman's terms, is a "bladder plug", http://www.rochestermedical.co.uk/femsoft.htm]click here for their website.[/url] I am due to see the clinic nurse at some point next week to learn more about it and how to fit it. Obviously I will not be able to fit it myself, but Si is willing to fit them each time for me. (bless him, I am really lucky to have him as my FiancÚ (&Carer) he does EVERYTHING and ANYTHING for me, without a murmur of complaint or displeasure)
He also wants to get me in urgently to his joint incontinence clinic, so that his team can start to see me regarding fecal incontinence, as I have not actually seen anyone about that either....
So, that is where I am at right now, a rather scary, but optimistic future lies ahead! :-)
Wish me luck for my incontinence nurse appointment next week.
Love and hugs
Sent from my Nexus 7 using Tapatalk 2