They found out I have MS a while ago. I have an overactive bladder since many years, but the last months it feels like the urge frequency is increased. I only have experienced wet pants a few times, but it feels like it's getting worse. But how is this type of IC with MS evolving? Will the urges become more painful that one day you're no longer able to hold it? Or is it related to a schub where at a point in time you just can't feel/stop it anymore? Or is it too difficult to predict now?
I recently got a cortisone treatment; the first 4 days after the last session were like heaven. No urges whatever, probably because the cortisone held all fluid. The 5th night was hell, I had to get up about every hour. Since then, the results vary; still urges during the day, but less awakenings during the night. Is this still the result of the treatment? Will the original urges come back when the cortisone influence disappears completely?
To try to give myself some rest from physically have to go to the bathroom and to distress (I'm a DL afterall) I decided to try to wear diapers at night. This didn't go well, as it seems I can't get back to sleep after an urge. Who else is successfully using diapers for nocturnia, so not only for fun? Any tips to relax? I'm a bit afraid of medicines, especially their side effects. Will this eventually lead to bedwetting? I still wake up from the urges, so I think the answer will be negative.
That said, I'm particularly seeking experiences from other MS patients who once were in my situation and can help me out. I have a follow up with my urologist and neurologist soon and want to know what I can ask them.