Results 1 to 7 of 7

Thread: How to quickly and almost 100% end horrible bladder pressures..urgency/frequency etc.

  1. #1

    Default How to quickly and almost 100% end horrible bladder pressures..urgency/frequency etc.

    This is not a fantasy/enjoyment thread. I've had the very best medical care and advice and this is written to genuinely help anyone that gets and wants to stop urgency/frequency aka an overactive bladder. If you have it, you'll know there's nothing at all fun about it. For anyone with a normal bladder, think about the time you most urgently, desperately needed to pee, but could not. Then triple it. Now that's what a seriously overactive bladder is. You need to go so bad that can't think, you sweat, you cross your toes, your buttocks even start trembling. You feel like driving your fingernails into your hands until you can finally let go.

    Even if you enjoy wearing diapers occasionally or even regularly, as I do, that's no fun.

    I had a very overactive bladder and genuinely wanted to stop it. I was occasionally incontinent. Normal medical referral chain: GP to a continence nurse to a bladder specialist urologist. Generally excellent level of care from real professionals with the NHS here in UK. Started bladder training and pelvic floor exercises done properly and seriously for a year. Almost no effect other than the benefits of controlling booze, caffeine etc. Then onto the antichologenic drugs: detrusitol, detrunorm, vesicare (better) then toviaz (best for me) but faily limited success. Also tried PNE (neuromodulation) with the electronic box of tricks like an ipod connected to your nerves in your spine. It would seem that my very overactive bladder was too volcanic to be tamed. Then botox. Up to a 1/3 chance of having to catheterise multiple times a day as a result of partly paralyzing your bladder nerves...oh dear that doesn't sound good. But the bladder was misbehaving so badly I thought, reluctantly I'd take the risk.

    Hospital, in and out in a day, botox injected by a surgeon whilst I was under general. Hurt to pee for three hours but fine. The bad news...I do have to catheterise myself...almost every time I pee. Is it a pain...hell yes...Am I paranoid about not bringing the caths with me wherever I go, absolutely. DOes it hurt, no. It's also v easy and quick when you are used to it. But the good news. no more urgency/frequency, and almost everyone has the same result, with 70% not even needing to cath. What a relief. The lovely NHS sort the caths out on prescription (you pay a small amount) and they are delivered to your door. They are small and easy to put in a pocket.

    If you have bad urgency frequency and want to end it, try the drugs etc, but if they don't work, do the botox...it really really works and honestly completely changed everything for me. There's no real knowledge on long term side-effects, which I don't like, but it's been used in other parts of the anatomy (admittedly less sensitive) for many years without serious mishap.

    So my advice if you follow the above is go for it. Any comments welcome. Really hope you get the result you want..you almost surely will if you go this route. HM

  2. #2

    Default

    One limitation of Botox that you don't mention is that the effect of the drug will wear off after a few months, and then you'll be back where you started with the overactive bladder. At that point, another Botox injection will be required.

  3. #3

    Default

    Glad it is working for you. I have tried it twice and it didn't help me. When I was looking into this, if my memory serves me correct, in your country they are allowed to use almost 3 times as much Botox injected than in the USA. I was hoping that it would help but just like everything else, nothing is stopping my bladder from acting up other than removing.

  4. #4

    Default



    Quote Originally Posted by Inconinmiss View Post
    One limitation of Botox that you don't mention is that the effect of the drug will wear off after a few months, and then you'll be back where you started with the overactive bladder. At that point, another Botox injection will be required.
    Yes you're right, they say 6-9 month effectiveness, altghough mine has been good for 12 months. However, you then have another injection and you're topped up. Second time can be more effective too.

    ---------- Post added at 08:21 ---------- Previous post was at 08:16 ----------

    Really sorry that's the case, although I hear the success rate is generally excellent where other treatments have failed. The only other option if you really want to end it is a clam cystoplasty, but this is fairly significant surgery and should only be considered if your symptoms are too bad to live with. Good luck. HM

  5. #5

    Default

    In his first message, hiddenme provides a vivid description of the discomfort that an overactive bladder can produce. Holding on to prevent urination during one of the "urges" can indeed be excruciating. To relieve the discomfort, I wear a diaper 24/7 and; unless a bathroom is handy, I use the diaper whenever one of the urges strikes. For me at least, releasing urine when an urge strikes ends the pain almost immediately.

  6. #6
    kmeerman

    Default

    you exactly describe my situation: I had a surgery because of these symptoms as the doctor found I had an obstruction in the urethra. Unfortunately, it only solved the pain I sometimes had while peeing. As the original issue remained, the doctor prescribed me Toviaz, without results so far (2 months) I'm sometimes afraid all these issues are related to my 'hobby' but after reading your reaction, I'm quite relieved. Yes, urges do come and are painful, I sometimes succeed to suppress them by doing something completely different (including the pee pee dance :/) and I then only have to pee after a long while. I even try to use diapers as an exercise, to hold and think of something else if possible. As the medication clearly doesn't work, I wonder what options I have left and if it will get worse over time.

  7. #7

    Default

    I am happy that the treatment worked well for your condition. I am lucky not to have an over active bladder. I look foreward to a cure for nocternal enuresis that works as well as your treatment did.

Similar Threads

  1. Holding it in & urgency - anyone like it?
    By happydl in forum Adult Babies & Littles
    Replies: 18
    Last Post: 18-Apr-2011, 00:59

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  
ADISC.org - the Adult Baby / Diaper Lover / Incontinence Support Community.
ADISC.org is designed to be viewed in Firefox, with a resolution of at least 1280 x 1024.