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Thread: Artificial urinary sphincter

  1. #1

    Default Artificial urinary sphincter

    Hi all,
    Itís a while since I last posted so just to recap, I have an ineffective sphincter and urethral stricture due to medical negligence.
    The doctors are suggesting re-constructive surgery and inserting an artificial urinary sphincter such as the AS800.
    I have an appointment with a specialist at the end of November and I would like to be prepared and know what questions I should be asking him.
    Has anyone here got experience of an artificial urinary sphincter, what were the issues having it fitted e.g. the procedure and any rejection issues?

    Here is a useful link, but all the articles are reports of various trials etc. no first hand reports.

    as800 - PubMed - NCBI

    Thank you in anticipation. Bj

  2. #2


    I am not a medical person or a doctor.
    But, I have my doubts about any artificial item being fitted or implanted inside of anyone.
    I would be asking about the possiblity of infections, how is this valve operated ? if your bladder gets too full over night what then ? and how long will this thing last before it fails ?
    If you can cope as you are you might be safer leaving things as they are.

  3. #3


    Quote Originally Posted by Leakyvalve View Post
    I have an appointment with a specialist at the end of November and I would like to be prepared and know what questions I should be asking him.
    from 1 study, the patients said they had an average of 90% improved continence but there was still an average of 1 in 5 that had to have another surgical procedure done. I would ask more about what these possible complications in the cuff compression, erosion or the part might be removed later actually means and what symptoms should be expected to be. Also if there are 'symptoms' that seem strange but are expected. If there is a complication, is it covered also? Are there any alternatives suggested? Another thing is I don't know how old you are but the study I read was on much older people (mean age 70), if you are younger would that make a difference in possible rejection? Would it need to be 'adjusted' later? Just some of the questions that come to our mind first.

  4. #4


    I would suggest that you ask your question in other incontinence forums. This forum is frequented by a great many very young people and by people of all ages who enjoy wearing diapers. I assume that, if you're considering getting an artificial sphincter, you probably do not enjoy wearing diapers. You're more likely to find people who have experience with an artificial sphincter in an incontinence forum where most contributors are older and do not like diapers.

    Having said that, I would be wary of relying on the proper functioning of an artificial device. Having to deal with an artificial sphincter sounds to me like something that would be more of a nuisance than wearing a diaper or an external catheter. But that's just my opinion.

  5. #5


    I have had to many surguries to think that another may improve functioning. I;ll take the Diapers, and no more wondering if this is gonna work. Not gonna gamble even one more time! Good luck!

  6. #6


    Thank you all for your thoughts and advice.

    kitsiulla – Sometimes I get overwhelmed with the sheer volume of information presented. Your comments help me to focus on the important points. Thank you for your input.

    Inconinmiss – you kindly took time to reply to my previous request for help (Flying Leg Bag) for which I thank you.
    I have posted this question on two other forums but the only replies I’ve had are on here.
    I’m not actively considering an artificial sphincter, this proposal is being put forward by my current urologist who was appalled at the poor treatment I have previously received. (I think he’s doing his best to make amends).
    Personally I have not had much success with pads, I do not like having to sit in wet pads, too many leaking accidents, and the constant battle with nappy rash.
    I am 69 years old (29 in the head) and I would appreciate any suggestions for forums where the contributors are older and may have experience of an artificial sphincter and be in a position to give me the advice I’m seeking.

    regards Bj

  7. #7


    It all depends. If you spend all day stressing and thinking about your IC problem and it is greatly affecting your life (i.e. you do things MUCH differently because of it), then go for it.

    If it's only night time IC and you just get annoyed waking up in a wet bed (which I'm sure you do), but within an hour you pretty much forget it ever happened and go along normally during the day, then it probably wouldn't be worth all the money and discomfort.

    Honestly, if I were you, I don't know if I would do it. If I suffered from night time urinary IC only, I probably wouldn't do it. If it were day time urinary IC, then I'd consider it. But that's only because most the people I deal with are younger and are therefor usually less understanding and more judgmental than older people. If I were your age, at that point I think there'd be more important things to me.

    However, I haven't suffered from IC in a long time (I use to wet the bed) so I'm sure if I still did, I probably would feel a little differently and I don't know exactly how all the aspects of your life are affected by it. I guess what I'm trying to say is, are you looking to forums to convince you to do it or to give you a reason not do it? If you need to be convinced to do it, then don't do it. If you're looking for a reason to not do it, then do it. I have a lot of faith in modern medicine and in general it looked like it worked most of the time according to the articles or at least the ones I read. Hope this helps make up you're mind .

  8. #8


    Quote Originally Posted by Leakyvalve View Post
    Thank you all for your thoughts and advice.
    kitsiulla – Sometimes I get overwhelmed with the sheer volume of information presented. Your comments help me to focus on the important points. Thank you for your input.
    Anytime I spend most of my time here for "incon support" than anything. You can find some really good advice anywhere online as well as some really bad - take what makes the most sense and weed out the rest but always make a well-informed decision before doing anything that affects your body. The statistics, biased reports from profiteering doctors and marketers who submit/create pro-only articles to sell their products make it really hard to get to the truth sometimes. Always be a lil skeptical when reading anything that doesn't show "cons" in the reports.

  9. #9


    Being 67 I can sympathize with the need for age related support sites - but this is about as good as they get especially since the B&BF one closed in the UK. B&BF (Bladder and Bowel foundation) do have a help line that might point you to info on artificial sphincters but this is a pretty specialized area. When I tried to do some internet research the information available was pretty contradictory. It really is down to your consultant/GP to give you the full picture. Perhaps a question that needs asking is "if it will not give 100% reliable control for a reasonable period of time - is it worth the invasion and stress on my body? so please Mr Doctor can you give me the latest success rates overall and in this hospital in particular?

  10. #10


    well said I have had very little "luck" talking with people about specific problems on 'regular' incon forums. It's very slow and the 'info' is barely different than reading yahoo answers when/if there is a reply.

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