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Thread: Urology trauma

  1. #1

    Default Urology trauma

    I am not sute where this belongs. Following my car crash 2 years ago I have been having urinary issues and pelvic issues on top of all my other pains, weakness and shaking etc since then. I have been able to recover mostly from my back pain and much of the pelvic pain and such. But I still have some urinary issues namely leaking slight to moderate amount a lot of time quite suddenly.
    I saw a number of urologists and also had many bad experiences with lousy doctors and therapists. Due to urinary retention nonresponsive bladder, pelvic floor issues I had to be catheterized in fact multiple times. And on top of that I underwent many painful procedures from couple cystoscopy to urodynamics and such. Each time my penis and genitals hurt a ton. I tried to push through it all and was in large part by myself dealing with all the pain, doctors, medical bills and whole mess.
    Many of doctors laughed or otherwise dismissued my urinary and pelvic complaints as did my family(whom I was very reluctant to even share with)
    I was left feeling very alone and ashamed and degraded on top of all the pain I had. I ended up being depressed and developing ptsd from the car crash experience.
    Working with my therapists I have been able to relieve some of those flashback of my car crash itself. I still get some but now it seem to change some.

    They are largely focused and centered around my urology visits, the pain, shame and helplessness as I laid there on hospital bed having some nurse and doctor sticking a huge tube up my penis. I even recall quite vividly how the nurses laughed and joked about catching me. But I was too scared, exhausted, ashamed and in pain to do anything
    Later when I finally got home I end up crying from all of that.

    I have scheduled to see a new urologist to help manage my care. From the reviews I read online he seems to be pretty good. I don't expect too much from his end as those medI cation largely gives me nasty side effects.
    Has anyone else ever had any flashbacks or sudden terrors/Panic to urological/medical procedure or such?

  2. #2

    Default

    kdlstarry9, you're not the only one who has had their share of issues with urologists. Out of all the specialists I've gone to over the years, they seem to be the ones who are most insensitive to their patient's needs and desires. Trying to find a good one is extremely difficult--when it comes to other specialties I can talk to good doctors I already use and get a recommendation of someone who knows their stuff and is a good doctor--not so with urologists.

    I know I've had bladder control problems all my life and basically deal with neurogenic bladder, I wear diapers and deal with it. It's better than pharmaceutical or surgical options I have been presented with. Nearly a decade ago I started having issues with testosterone levels and reactions to testosterone replacement methods. The final method we ended with was injections, and after several months I started having serious testicular pain. First urologist I was sent to focused solely on my diapers and insisted that I needed cured and out of them. The pain that made my life nearly unlivable was dismissed as 'insignificant'. Never went back to him.

    Second one was better, first tried me on prostate medications thinking that was where it was from, and took months of appointments and the pain getting worse before a simple injection of local anesthetic in spermatic cords that stopped the pain (for a night) let him conclude pain was in the testicles themselves. From there, it was several months of going to a pain specialist to do nerve blocks (each one failed within a month) and I was faced with one of two choices--either long and involved surgery to implant a neurostimulator and route wires to appropriate nerves, or simple bilateral orchiectomy (removal of testicles). Surgery for neurostimulator was estimated to be hours long and I would need smaller surgeries every few years to replace batteries. Pain specialist recommended the orchiectomy and suggested I talk to urologist about it.

    The urologist refused to even consider orchiectomy, said the implant was only possible option, refused to see me for any further discussion. I ended up getting a referral to Stanford where I finally found a good doctor who considered it, looked at all the options, and finally performed the surgery, ending the pain immediately.

  3. #3

    Default

    <Hugs analogrto>

    So sorry for your pain. I had a couple nerve blocks on spine and pelvis which definitely helped relieve much of my back pain and some of the pelvic pain including pain in my penis. It is hard finding good doctors and therapists. Especially pelvic floor therapists. A few actually made my symptoms worse.
    It is a bit embarrassing also to be leaking and having therapist treat me down there but I was able to connect well with my therapist.
    You would think that doctors would be quite sensitive to people feelings and pain especially for something so intimate.
    I am hesitant to seek another urologist but know i kinda should see one as my pelvic condition has changed some since last time I saw urologist

  4. #4

    Default

    Wow thats horrible and especially shameful from so called professionals and family >< After what you've been through you'd think they'd have some sensitivity

  5. #5

    Default



    Quote Originally Posted by kdlstarry9 View Post
    I am not sute where this belongs. Following my car crash 2 years ago I have been having urinary issues and pelvic issues on top of all my other pains, weakness and shaking etc since then. I have been able to recover mostly from my back pain and much of the pelvic pain and such. But I still have some urinary issues namely leaking slight to moderate amount a lot of time quite suddenly.
    I saw a number of urologists and also had many bad experiences with lousy doctors and therapists. Due to urinary retention nonresponsive bladder, pelvic floor issues I had to be catheterized in fact multiple times. And on top of that I underwent many painful procedures from couple cystoscopy to urodynamics and such. Each time my penis and genitals hurt a ton. I tried to push through it all and was in large part by myself dealing with all the pain, doctors, medical bills and whole mess.
    Many of doctors laughed or otherwise dismissued my urinary and pelvic complaints as did my family(whom I was very reluctant to even share with)
    I was left feeling very alone and ashamed and degraded on top of all the pain I had. I ended up being depressed and developing ptsd from the car crash experience.
    Working with my therapists I have been able to relieve some of those flashback of my car crash itself. I still get some but now it seem to change some.

    They are largely focused and centered around my urology visits, the pain, shame and helplessness as I laid there on hospital bed having some nurse and doctor sticking a huge tube up my penis. I even recall quite vividly how the nurses laughed and joked about catching me. But I was too scared, exhausted, ashamed and in pain to do anything
    Later when I finally got home I end up crying from all of that.

    I have scheduled to see a new urologist to help manage my care. From the reviews I read online he seems to be pretty good. I don't expect too much from his end as those medI cation largely gives me nasty side effects.
    Has anyone else ever had any flashbacks or sudden terrors/Panic to urological/medical procedure or such?
    I am experienceing very similar situation

    Sent from my SM-G925V using Tapatalk

  6. #6

    Default

    Sensitivity training in med school is either missing altogether or not very good.

  7. #7

    Default

    I have had similar pains. I had an ultrasound done on my testes, cystoscopy, pelvic xrays mri...every test i can think of. They still cant determine why i have crippling pelvic pains and incontinence

    Sent from my SM-G925V using Tapatalk

  8. #8

    Default



    Quote Originally Posted by BabyDenise View Post
    Sensitivity training in med school is either missing altogether or not very good.
    It's not that it's missing or poorly handled, it's that there are just doctors out there who don't empathize with their patients or don't care that much. There are a number of good doctors out there, it's simply a matter of finding them and getting in to see them (they tend to have full schedules since everyone who finds out that they're good wants to see them and nobody wants to go to the other asshats).

  9. #9

    Default

    I have as well. My last urologist told me it was basically a pain that I would just have to live with. My first meeting with him was positive, all others were much less. I have given up as this is the 4th that cannot find anything wrong and does not really care to try and help.

  10. #10

    Default

    I'm sorry that all of you have had to go through so much. I went through something similar in 1986 when I had a tumor removed from the nerves in my spine. After the surgery I couldn't pee and a middle aged, female nurse taught me how to cath. myself. My urologist informed me that things might start working, or I could be like that for the rest of my life. As it turned out, being able to pee kicked in about six weeks later and I was very relieved, but I had a miserable time during that period.

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