Cerebral Palsy & Incontinence
by, 02-Mar-2015 at 05:15 (281 Views)
For some reason I cannot figure out how to reply to all of your kind comments so hoping you all are able to see this. Thank you for the notes of encouragement over the least few months. I have been unable to login since my intial post and seeing all that suppport was overwhelming.
A few weeks after struggling with my diapers myself, I told my mother. It was the most difficult thing Ive ever done and we both cried for quite awhile. I showed her some pamplets that my dr. had given me and explained how difficult it has been for me to do my diapering on my own. She immediately volunteered to help.
After a few weeks of trying to do be diapered by my mother she came to me asking if we could get me some in-home help. I wasn't happy at all with that idea, mosty beccause my whole life I have taken care of my cerebral palsy on my own. I argued with her and she asked if we could just give it a try.
I came home from a physical therapy appointment one afternoon and my mom introduced me to Cynthia and asked if I would be open to hearing her out on getting some in-home help.
Cynthia is an occupational therapist and she helps people with everyday tasks like this one. She explained to me that the work involved for me to change myy diaper was phsically rxing on me and my energy was best spent on other things. She also explained how hard it is for a loved one to care for me in this way.
After a few days I agreed to a TRIAL RUN of an in home caregiver.
About three weeks ago my caregiver started. We worked out a way to chang my diapers (my hips are unable to support weight for the traditional side change) and it was really hard on me at first. I was embarassed beyond belief. She was extremely kind ad knew I was struggling but really talked me through it. I have never been good at talking about my health challenges. Sylvia has really prompted me to talk out loud about the new changes in my body and to feel comfortable. I still hate wearing them, like HATE HATE HATE but I know I need to. So one day at a time I guess.
Thank you frm the bottom of my heart to all of you who Personal messaged or were concerned. I hope this blog finds you.