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Mattew

Medical Stuff - I'll be OK

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(Sorry for the long length of this journal / blog, but I want everyone to understand fully whatís going on. I will answer many questions regarding this journal, but not all, that anyone has about whatís happening. Some of this Iím just not ready to talk about. But I did promise several people to explain why Iíve been sick / hurt lately).

I have been short with people on some of my social media lately, and Iím truly sorry for that. Hopefully, this will explain whatís been going on in my personal life lately thatís causing it. I also blame some of the pain medications that Iíve been on. Sometimes I havenít been thinking clearly due to either pain or the medications.

Starting around the beginning of January, I started to experience extreme pain in my right leg. I had some pain in my lower back at times, but not that often. The pain was primarily focused on my leg. Whenever I was asked to describe this pain, the best way that I could explain it was:


ďImage your leg was dipped in gasoline, and then set on fire. While burning, knives were then stabbed into my hip, thigh, calf, and ankle. When it wasnít burning, (which was rare), itíll always tingle, like my leg was falling asleep. Walking very short distances would also cause my calf muscle to feel like itíd run a marathon.Ē


Usually the only time that I could find relief from the pain, was when I was laying on my back. There was some pain while walking at times, but it was sitting that was extremely painful. The drive to and from TFF, wasÖ.agony. But Iíd made a promise to go.

There were days that the pain was so bad, that I physically couldnít stand. If I tried to stand, I might be able to stand for a few seconds, before collapsing to the ground. Sometimes even laying down didnít help. I havenít had a good night of sleep in months. Iíll sleep a few hours before the pain wakes me up, and I canít go back to bed. I was pretty sad to see, at times. Sometimes Iíd lay on the ground screaming for hours, wishing for the pain to stop.

I have many jobs. I work as a farmer for my family farm & as a volunteer firefighter. Both of these jobs require a lot of physical work. The pain was so bad, that I havenít been able to do any of this work in several months.

Iím a fairly young, healthy, and physically fit guy, from all the physical work that Iíve done since I was very young. So this was something that I wasnít used to experiencing.

After putting up with the pain for almost 4 months, I needed to see someone. The pain wasnít getting better, it was getting worse over time. I had originally thought that the pain was being caused by my sciatic nerve. But Iíd never heard of sciatic nerve pain feeling the way mine felt, or lasting for this length of time. The more that time went on, the more I began to suspect something was terribly wrong with me.

One of the downsides to back and leg pain, is that most doctors donít want to see you. Theyíll tell you that itíll go away over time. You just need to rest. The natural assumption is that back / leg pain, is probably a sciatic nerve issue. My age, and physical fitness, made it extremely hard for finding a doctor that would see me, as well. Someone my age shouldnít be having this kind of problem.

So it was naturally assumed by all the doctors that I attempted to see, that I was nothing more than a drug addict, which was faking pain, in attempt to get painkillers. I canít even count how many different doctorís offices I tried to go too, and was turned away. I remember my mother driving me to 5 different doctors in one day alone.

One of my biggest problems is that I donít have a regular doctor. I hadnít needed to see a doctor in about 10-15 years. I did have one doctor believe me about the pain, and gave me a prescription to some painkillers, which did help take the edge off on the bad days. He told me that it was a sciatic nerve, and itíd go away in a few weeks. I tried to explain to him that it wasnít a sciatic nerve, and I needed tests. I was ignored.

The pain got so bad at one point, I was taken to the ER. The ER doctor thought that I was a drug seeker. He kept asking me questions that would reveal that I was, but I didnít give him the answers that he wanted. He finally yelled at me, ďWhat the hell are you doing here?Ē I responded that something was very wrong. It wasnít a sciatic nerve, and that I needed to have an MRI done. I was escorted out of the buildingÖ

I had a friend from High School, whose dad is an MD. He was one of the doctors that had refused to see me, because he thought I was wanting drugs. I had to call his son, and beg him to get his dad to see me. I had to explain, that at no point would I ask for drugs. I simply wanted to know what was wrong with me, so that I could stop the pain.

His father agreed to see me. During his exam of me, he began to suspect that I was telling the truth, that something horrible was wrong, and it wasnít a sciatic nerve.

He immediately sent me to see a neurologist. The Neurologist agreed that it wasnít sciatic. Itíd only taken almost a month, for people to finally listen to me, and over the next two weeks, I was subjected to a wide assortment of tests. (MRIís, CT Scan, X-rays, EMG test, etc.)

Today I was given the results of these tests:
There is a spot on my lower spine causing:
-The circulation in my right leg to be restricted (not completely cut off).
-Several nerves are being pinched.
-Several nerves have been damaged and arenít transmitting correctly.

This is being caused by a spot in my lower spine. I donít want to fully say what the spot is, causing these problems, because if I say the word, itíll have everyone more worried than they should be, and I also donít want to say it personally. Not saying it, helps keep it ďnot really happeningĒ in my mind.

I will be having a surgical consult very soon. I was told that I shouldnít worry. Itís a very common procedure, with extremely high success rates with little chance of risks. Now I know & understand that this is very serious, since itíll be a spinal surgery. I havenít even fully explained this to my parents. But the confidence of the doctors has left me feeling OK with whatís about to happen.

I wanted you guys to know this. But please donít feel sorry for me. I worried and scared, yes. But Iím hopeful that everything will turn out OK.
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Comments

  1. KimbaStarshine's Avatar
    I'm rather surprised by the reaction of the emergency room. I mean, if a person shows up there with a complaint, and they haven't been there multiple times in the past for the same reason (or can't see your medical records from the other doctors' offices) you think they would take you seriously. Perhaps I've just been indoctrined to think American health care is all about making money, but it seems like they'd want to run all the tests they could to make a bigger bill...

    Although I think just about anyone who reads this will be able to figure out what the ''word'' is. Not trying to be rude or anything though.
  2. Mattew's Avatar


    Quote Originally Posted by KimbaStarshine
    I'm rather surprised by the reaction of the emergency room. I mean, if a person shows up there with a complaint, and they haven't been there multiple times in the past for the same reason (or can't see your medical records from the other doctors' offices) you think they would take you seriously. Perhaps I've just been indoctrined to think American health care is all about making money, but it seems like they'd want to run all the tests they could to make a bigger bill...

    Although I think just about anyone who reads this will be able to figure out what the ''word'' is. Not trying to be rude or anything though.
    Yeah, the ER Doctor was an ass. I was so mad after I saw him. When he started to yell at me. I was laying there in pain, with my mother standing next to me, and calmly explained that something was wrong & I needed an MRI. This pain shouldn't have lasted this long. I didn't have a doctor that could order one, and I needed him to order it for me. His response was, "Are you F^&king kidding me? I'm not going to order that, I'm not your doctor, go ask your actual doctor."

    I calmly tried to explain that he actually was my doctor at that moment. I didn't have a family doctor, and no one would see me, since it was "back and leg" pain. They had the same opinion of me, that he did. He then walked out of the room, the whole time making fun of me. He started to talk in a funny voice going, "Ohh I'm in pain, I need an MRI, Something's wrong."

    I'm tempted to share the medical results with him and that hospital, and ask for some sort of an apology. What he did was extremely mean on a personal level, unprofessional, and possibly damaging to his career with medical boards, for turning away a sick person in the manner that he did.
  3. Paddedwolf's Avatar
    I'm hoping everything will turn out for the best. I've gone through many medical hoops before too and it's no fun.
  4. PrincessSara's Avatar
    Count yourself lucky that you've gotten diagnosed. I've had chronic issues dating back 5 years now that I've lost hope of ever getting fixed, I've been to easily 20 doctors and specialists in the past few years trying to find out what's wrong and while not QUITE as vulgar as your experience, even the ER has always been a giant waste of time the 9 times I've gone. hope everything works out fine :3
  5. Trevor's Avatar
    That's a harrowing tale! I'm really sorry that you encountered such resistance. I have a friend who had a similar difficulty, although I don't think they suspected drug use but just had a preconceived notion of the problem, much like the other part of your problem. He has finally gotten some traction with doctors and it wasn't what they were initially telling him without doing any serious tests. Modern medicine is wonderful but we can still be dumb about its use. As rough as anything is, knowing has to be better than being in the dark. Keep us posted if you can. I hope it all works out.
  6. KittyninjaW's Avatar
    To be 100% honest I hope you will be okay in the end, I will prey for you if that helps.
  7. Mattew's Avatar
    Thank you everyone
  8. secretlynappied89's Avatar
    Heck if I was you after all this is done and you got the paperwork I would go to to that hospital ask for that ass of an doctor show him the paperwork and have him apologies to you then say that you are getting a lawyer and sue them for malpractice and or for not taking you seriously when you were hurt.
  9. Mattew's Avatar


    Quote Originally Posted by secretlynappied89
    Heck if I was you after all this is done and you got the paperwork I would go to to that hospital ask for that ass of an doctor show him the paperwork and have him apologies to you then say that you are getting a lawyer and sue them for malpractice and or for not taking you seriously when you were hurt.
    I've thought about that. Either simply ask for an apology or take it further. I forgot to mention, but before he had me leave the ER, the only test I had done was a drug test, per his orders.

    It's a pretty humiliating experience to be in so much pain that you can't stand, & be told you have to give a urine sample for drug testing. The male nurse kept brining me water. Then when I needed to go, I laid there, got it out, & he assisted me in going. The doctor thought I might try to slip someone else's urine in the cup, so the nurse had to watch & physically assist, so that they knew they were getting my personal sample.

    I'll never go back to that hospital again. Which will be difficult. It's the closest one to me. It's about 20 minutes away. Next closest one is about 45 minutes away.
  10. Mattew's Avatar


    Quote Originally Posted by KittyninjaW
    I will prey for you...
    Ninja kitty is after me, help! Ohh wait im a Mountain Lion. Rawr! I'm no ones "prey".

    (Sorry. Not a grammar nazi. Just caught it & thought I'd be funny)
  11. Mattew's Avatar
    Unless you meant, you'd help me hunt, "I'll prey for you." :-p
  12. KittyninjaW's Avatar


    Quote Originally Posted by Mattew
    Ninja kitty is after me, help! Ohh wait im a Mountain Lion. Rawr! I'm no ones "prey".

    (Sorry. Not a grammar nazi. Just caught it & thought I'd be funny)


    Quote Originally Posted by Mattew
    Unless you meant, you'd help me hunt, "I'll prey for you." :-p
    I'm sorry, I keep misspelling that, I meant I'll pray for you. anyway I hope you do well, and I'm glad that you can still joke around, although personally I would sue the hospital for malpratice.
  13. KimbaStarshine's Avatar


    Quote Originally Posted by Mattew
    I've thought about that. Either simply ask for an apology or take it further. I forgot to mention, but before he had me leave the ER, the only test I had done was a drug test, per his orders.

    It's a pretty humiliating experience to be in so much pain that you can't stand, & be told you have to give a urine sample for drug testing. The male nurse kept brining me water. Then when I needed to go, I laid there, got it out, & he assisted me in going. The doctor thought I might try to slip someone else's urine in the cup, so the nurse had to watch & physically assist, so that they knew they were getting my personal sample.

    I'll never go back to that hospital again. Which will be difficult. It's the closest one to me. It's about 20 minutes away. Next closest one is about 45 minutes away.
    I think I might have left at that point. I doubt I would have allowed anyone to watch me give a urine sample. If you go into a bathroom and all you're wearing is a hospital gown and underwear, where exactly would you be hiding someone else's urine? (Although in my experience my local hospital doesn't always have me change, and sometimes has me leave my pants on.) And after that humiliation, just to be tossed out without anyone taking you seriously?
  14. Starrunner's Avatar
    I'm sorry for everything you've been going through. I hope you get the help you need and that the pain can be solved. I also hope you find some smarter, less judgemental doctors.
  15. Mattew's Avatar


    Quote Originally Posted by Starrunner
    I'm sorry for everything you've been going through. I hope you get the help you need and that the pain can be solved. I also hope you find some smarter, less judgemental doctors.
    Thank you very much. I hope so too. I just want this all to be behind me if possible. I haven't really been able to do much in the last 4 months because of this problem, then another couple of months before that because of breaking a bone in my foot... this isn't my year...
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